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I have been told that a intolerance to gluten can develop over time?

Lura Banks
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Lura Banks Newbie
Lura Banks
Posted

I need help understanding this because my doctors are no help.  Why would my Gastro Dr. not tell me about Gluten free diet?  My son is actually the one who told me that I may have a sensitivity after seeing me in pain everyday and feeling like I cannot eat....and he's not a Dr.! I am hoping to have people reach out because I am at my wits end!

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Scott Adams Grand Master
Scott Adams
Posted

Are you saying that you were diagnosed with celiac disease but your doctor did not tell you to go gluten-free afterwards? That would amount to malpractice. There is no excuse, yet after 25 years of running this site we still hear stories like this...sad!

trents Grand Master
trents
Posted

Welcome to the forum, Lura!

There are more than one gluten-related medical conditions. And on top of t hat, the terminology can be confusing. "Sensitivity" can be a catch-all term. There is Celiac Disease. There is gluten intolerance. And, there is gluten allergy.

Before you go on a gluten free diet, you would need to get tested for Celiac Disease. There are blood tests for the antibodies but the more definitive test is an endoscopy/biopsy of the small bowel. If you go gluten free before these are done then you will render the tests invalid. Now, I am assuming you have not had any of this done so correct me if I am mistaken.

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    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
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      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
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