Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anybody Celiacs and Had an Allergy To rubbing alcohol/perfumes

zenith12

By zenith12
in Super Sensitive People

 Share

Recommended Posts

zenith12 Enthusiast
zenith12
Posted

I was diagnosed with celiacs in 2017. Then in 2020 when I took my food allergy test since I knew  I was alergic to corn and rice, when the lab tech slathered rubbing alcohol on my skin then pricked my skin I had a horrible reaction which took me over a month to get over it.  Rubbing alcohol is a CORN and RYE derrivitive.  Anyway it triggered my MCS. Anybody else with celiacs and struggle with MCS from time to time? (multiple chemical sensitivity). I am alergic to all chemicals, as well as celiacs, as well as being allergic to 10 other foods. ( corn, rice, peanuts, legumes,  shell fish, wheat, brocolli) etc etc. 

I noticed when I got GLUTENED from the wal mart  "gluten free" chips, that triggered my MCS.

And after I got acupuncture on my head in 2017 before knowing I had celiacs. What a freaking FARCE and bull crap. Big scam!!!   N Ds are worthless too. That is why my N D doc could NOT tell me i had celiacs because she is not allowed to diagnose.  My test came up positive and after doing research that is when i realized what the difference is between intolerance and celiacs. Hello!!!!  Get your head of your ---- , if you have antibodies you have celiacs if you don't intolerance. I had high antibodies.      I HAD TO FIGURE THAT OUT ON MY OWN. And how all gluten-free food companies are  big  farce too. Most celiacs become alergic to all grains.  I learn a lot from amazon comments and questions.

But anyway funny how the rubbing alcohol brought out severe perfume allergy in my system as well as MCS.   I am getting better (its been 3 mos)  but still don't know if I will ever be able to wear perfume again. I can maybe smell it from a distance and that is it. For now I am doing good with NOT having any chemical nose attacks , except with petrol wiffs and perfume wiffs. I get horrid symptoms. 

 

Well anyway just looking for a better mask, probably gonna have to go with a full face for awhile.

Can anybody  relate to celiacs, MCS, and other food allergies?  IT ALL GOES TOGETHER.

AS WELL AS  "ADRENAL FATIGUE" .  I have the Pituitary problem and not the adrenal problem.

It is all related.   Well  I know it is so nice not having any celiacs problems anymore once knowing I  can't handle ANY grains.  And knowing what to eat and not eat.  I see all the time on here about celaics "oh i can't eat corn anymore".  "Oh i can't handle  Millet" .  That is because they are GRAINS and those people have TRUE allergies towards them. (hence because of their celiacs status). So anyway moral of the story YOU can get GLUTENED on rubbing  alcohol. No doc will ever touch me with that toxic crap again!! 

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

I don't have much experience with MCS, but it sounds like it's difficult to deal with. Chemicals are in many things we put on our skin each day. 

Many people on this forum have spent years to get their celiac disease diagnosis, and I am no exception...it took my doctors several years to figure it out, even though I had pretty classic symptoms. In the end you are your best advocate for your health, and it's important not to give up even if your doctors do.

  • 3 weeks later...
zenith12 Enthusiast
zenith12
Posted
  • Author
On 11/30/2020 at 3:11 PM, Scott Adams said:

I don't have much experience with MCS, but it sounds like it's difficult to deal with. Chemicals are in many things we put on our skin each day. 

Many people on this forum have spent years to get their celiac disease diagnosis, and I am no exception...it took my doctors several years to figure it out, even though I had pretty classic symptoms. In the end you are your best advocate for your health, and it's important not to give up even if your doctors do.

Thanks. I am doing pretty good now except perfumes and fragrance smells .I been wearing a full on respirator at work and to the store etc etc. So NOW my symptoms are less .The filters don't last long which is sad since they are only picking up on ambient smells.  My food allergy test came up me alergic to turkey but not chicken in August. WELL now i am alergic to chicken. I was nervous to try to eat it since i hadn't eaten since  MAY.  I got a sore throat and extreme dizziness and I am sure more symptoms are to come. Well I had to poo poo too and my stomach hurts a bit.  BUT because of my MCS I cannot eat any processed foods. Because all processed foods has chemicals . OR most do.   Surely I am not the only celiac person with  20 other food allergies.   BUT i just eat the same things over and over again and i am doing fine. Beef, eggs, cheese, banana, advocado, potatos, blueberries. Almonds and almond bread.  I really don't get sick  of eating all that either over and over again. I don't really like eggs so  I don't eat them much. BUT I can't wait to make my own potato chips and sweet potato chips fried in coconut oil. I buy the stuff at aldis. It is pretty good quality. That Spectrum I bought long ago at wal mart had a chemical in it.  AND sad that the food supply has been poisoned for a long time and some batches are and some aren't. I just had a bad alergic reaction to the Terra chips!!!!  (sweet potato). I smelled the chemical but i kept eating them. The first 8-9 bags i did NOT smell no chemical smell. IT was the last 3 bags i bought before Thanksgiving, all 3 were laced!!!!  The first bag I did fine then the second bag I smelled more of the chemical on the chips etc and i REACTED.   SO never again. I gotta make my own now. And i definitely don't eat any potato without peeling them first. Ok I hope you are doing great now!!!!  It used to be fun going to the store or Dollar General buying chemicals and  junk food. NOW it is no fun because i don't do much shopping. I only use coconut oil and baking soda and that is it, for my body ,teeth and clothes. IT is NOT hard for me .

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.