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DJFL77I

intermittent bleeding / reflux or ????????????

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So since FEB I've been experiencing some blood in the back of my throat on and off....  I first noticed it about 5 days after my upset stomach began back in FEB......

Had a CT Scan done in early April with oral and IV contrast from rectum up to mid chest...  nothing was seen...

Had a Endoscopy done in early May..  Dr said he was going to look for any signs of bleeding anywhere..  afterwards he said no blood was seen anywhere and it looked like a normal GI tract.....     he was adamant that its not coming from my GI tract..  and mentioned seeing an ear/nose/throat doc....  fecal occult blood test came back negative....

 

My bloodwork all looks normal beyond Liver enzymes being a bit off but that's common with newly diagnosed Celiac.....  had every test in the book done on my liver..  everything negative...

Recently got a new GI Dr.. highly rated...  mentioned it to him again...  he asked if I had nasal drip...  so he was going in the same direction as the other Dr I guess....

I have an appointment on Wednesday with an ear/nose/throat Dr.....   If he finds nothing there...  I think I'm going to have another Endoscopy done....   

I still think its coming from my stomach.

???????????????

 

 

 

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I was also diagnosed with superficial gastritis after endoscopy..  I always thought it was from a gastritis flare up...  but based on the Dr's description it seemed like a minimal amount of gastritis...

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do you have white patches on the inside of your mouth?  my daughter used to get thrush originating in her g.i. tract and it would work it's way up into her throat.  (she is also celiac and that was happening before she started the gluten-free diet)

edited to add:  i think the doc that asked you about nasal drip was alluding to maybe you have allergies?  post nasal drip will make you nauseas (especially in the morning after snot runs down your throat while you're sleeping) and may make your throat sore/raw.  

Edited by notme!
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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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50 minutes ago, notme! said:

do you have white patches on the inside of your mouth?  my daughter used to get thrush originating in her g.i. tract and it would work it's way up into her throat.  (she is also celiac and that was happening before she started the gluten-free diet)

edited to add:  i think the doc that asked you about nasal drip was alluding to maybe you have allergies?  post nasal drip will make you nauseas (especially in the morning after snot runs down your throat while you're sleeping) and may make your throat sore/raw.  

Never have a sore throat or cough or any problem with my throat..  nose doesn't seem to bother me..

I do have a bit of a pressure or tension across my forehead temples area though..  maybe sinuses?

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maybe.  is it blood with mucous?  i have no medical degree but i am a mom lolz


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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so I just got back from the ENT dr...

He looked in my nose...  said i have some inflammation up there..  allergies...  said it can cause some bleeding...   so I got some nasal sprays to use for 3 weeks...

so we'll see....   throat looked normal...   he said if its still noticed after about a month then he'll send me for a scan...  could be a mild sinus infection

blood pressure was   100 / 80.. pulse 76......

 

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before i was diagnosed, i used to catch every germ/illness that came around.  after being on gluten-free diet, the only thing that i had to take antibiotics for in the last 10 years was a sinus infection.  i do have allergies and i take daily doses of zyrtec and flonase.  the sinus infection was already 4 years or so ago.  once your immune system starts running like it's supposed to, i guess it fights off stuff like it's supposed to.  

i have hot water radiators that heat my hundred year old house.  i can not do forced air heat (too dry) and even with the heat system we have, i try to add humidity to the house in the winter by keeping some water simmering, maybe with cinnamon or orange peels to make it smell nice.  helps to keep my sinuses from getting too dried out.  

if you are in florida, you can just walk outside for humidity, lolz  :D 


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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I had major issues with acid reflux even after going gluten free. Acid reflux is NOT USUALLY CAUSED BY TOO MUCH ACID, IT'S TOO LITTLE!!!  As we age or have digestive issues from Celiac's the hiatal spincter can get damaged. Also as we age, or from Celiac's, our stomach acid gets REDUCED.  Yes, REDUCED.  All this adds to not digesting your food (and reduced absorption of vitamins), and the food ends up fermenting and rotting instead of digesting, CAUSING REFLUX.  The fumes can come up the esophagus to the lungs.  In my case, it was so bad, the fumes that get inhaled into the lungs, were also severely irritating my asthma and a severe dry cough when laying down (some people get that every time they eat).

A ENT doc finally guessed I had acid reflux, but prescribed antacids for me, but I refused to take them because I know we need acid to digest and get value out of our vitamins and food.  Several important vitamins like D especially needs acid, and that is one that people low in D have been found to have more fatalities from Coronovirus. I did not want to risk my ability to absorb D.

I researched and found several things helped me.  Here's the article I started with:  https://drjockers.com/hiatal-hernia/

Also search for and read articles by Dr. Jonathan Wright. He also has youtube's and an archive for his radio show.

1.  I take a little sip of apple cider vinegar before every meal with protein (at first, it burned my throat soooo bad, but thin with a little dash of water until throat heals and you can tolerate it straight).

2.  The exercise "The Warm Water Fix" worked great and I did that a few times a day, now only when needed.

3.  DGL tablets https://www.amazon.com/gp/product/B001IAJW0K/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1  help TREMENDOUSLY. At first, after every meal (but have a laxative effect if too much), but now I just take 2 before bed.

4.  I was Vitamin B1 thamine deficient, and that was the final thing that really helped my asthma.

So, sometimes it's one thing that fixes your problems, and sometimes it's multiple.  Keep reading and trying to find what will work. I highly recommend a GOOD (not all are good) naturopath to work with identifying any deficiencies and so you don't get in the trap of prescriptions to treat symptoms and never identify the underlying / root cause .

 

 

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