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Gluten Free Prior Endoscopy

Nick431
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Nick431 Newbie
Nick431
Posted

I was told this week that I am celiac. I have significant iron deficiency, my celiac antibody indicators were all high.  I went gluten free about three days ago (11/20). I had upper endoscopy scheduled today for 12/10, from what I gather I should keep eating some gluten till after the endoscopy? I did message my doctor in the patient portal but just to get some community input as well.

Also on a side note I paid to unlock my 23andMe health results and the celiac report said I had both gene variants for celiac. 

Thanks!

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trents Grand Master
trents
Posted

Strictly speaking, you should continue to eat gluten until after the endoscopy but I doubt there could be enough healing in the small bowel in to invalidate the results. But if you can stick it out, eat the gluten until then.

Scott Adams Grand Master
Scott Adams
Posted

It sounds like your doctor has already made the formal diagnosis based on your blood test results, iron deficiency, etc., so perhaps the results won't be a big factor for your doctor either way. Three days off gluten likely isn't enough time to heal if you do have gut damage. Let us know how it turns out!

trents Grand Master
trents
Posted

Scott, the endoscopy is not until Dec. 10. So maybe like 15 days.

Nick431 Newbie
Nick431
Posted
  • Author
24 minutes ago, Scott Adams said:

It sounds like your doctor has already made the formal diagnosis based on your blood test results, iron deficiency, etc., so perhaps the results won't be a big factor for your doctor either way. Three days off gluten likely isn't enough time to heal if you do have gut damage. Let us know how it turns out!

Yeah my primary doctor told me I was celiac based no all that and sent my stuff to Gastroenterology to see if they wanted to see me. Their receptionist scheduled a biopsy yesterday. They told me this morning to keep eating my normal diet till the test. I don't have any major noticeable stomach issues so I'll be okay eating some gluten till then I think. I'm on iron supplements which are already helping with the anemia.

My bloodwork was:

TT Iga-  148 U/ml

Anti-gliadin IgG 51 U/ml

Anti-Gliadin IgA 174 U/ml

 

Thanks for the help!

Scott Adams Grand Master
Scott Adams
Posted

Yes, continue to eat gluten until the testing is finished...normally a slice of wheat bread a day is the amount recommended.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      Question

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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