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Still having symptoms


CorgisInOregon

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CorgisInOregon Newbie

Hi all,

I am new in my diagnosis. I’ve been eliminating gluten for four months, but have still had many times where I have eaten gluten accidentally.

I’ve been working hard to make sure I don’t accidentally eat gluten, or eat something that has been cross contaminated with gluten. However I still have days where I end up with a horrible stomach ache. It doesn’t feel the same as when I get gluttened.

(I’ve also learned that I have other food allergies, like dairy, so I stay clear of those foods as well.)

Is it normal to still have stomach pain/bloating/indigestion even after eliminating gluten from your diet? 
 

thanks!


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Scott Adams Grand Master

Recovery can take an average of 2 years IF you are 100% gluten-free. Many people take enzymes like GliadinX (they are a sponsor here) to help them deal with cross-contamination if they eat outside their homes...there are many studies that support their use for small amounts of accidental gluten:

https://www.celiac.com/search/?q=gliadinx&quick=1&type=cms_records2

Above all, you need to be 100% gluten-free, and you may also need to eliminate other things, at least temporarily, like cow's milk, corn, soy, etc., until you've fully healed.

CorgisInOregon Newbie

Thank you for the information. So is it normal to have flare ups during the recovery process? 

DJFL77I Experienced

i'm at 5 months and i still have upset stomach..  not as bad as it was a few months earlier though..  its improving.. 

My Dr said 6 - 12 months.....

and don't eat at restaurants...

i never eat out... only fresh foods...

the only "packaged" foods i eat right now is:  Greek Yogurt / certified gluten free,  Bryers vanilla ice cream lactose free / gluten free,  and plain potato chips certified gluten free with only 3 ingredients, organic potatoes, sea salt, sunflower oil..

dairy doesn't bother me

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      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
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