Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another round of neuropathy coming! Anything I can do?


BuddhaBar

Recommended Posts

BuddhaBar Collaborator

2 Christmas glutenings and now I found out I've been slowly ingesting poison from the new coffee machine at work. The coffee itself is gluten free, but it comes out from the same pipe as cocoa and other drinks which I found out today had gluten in them. This is a major one folks! 

Gallbladder and all that is fine now, but I've been having neuropathy itch for a week. Today the itch slowly began to transform into the horrible zip zaps I had all over my body a few years ago. 

I know the source now so no more coffee and the neuropathy will pass, but is there anything I can do to ease it? I hate neuropathy! Would rather have D for a month! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I don't know for sure if it would help but you could try some sublingual B12. It can aid in healing nerves if your glutenings impacted the levels.

Scott Adams Grand Master

Supplements should help, but of course the main thing is to cut out all gluten, which it sounds like you've done.

knitty kitty Grand Master

BuddhaBar,

I dislike neuropathy, too!

"Peripheral Neuropathy Due to Vitamin Deficiency, Toxins, and Medications"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208100/

I take B12, Vitamin C, B6, and thiamine (B1) and thiamine's partner, magnesium, for the neuropathy.  Sometimes I take copper.  

That's all for the neuropathy.  To help me relax, I take tryptophan and L-Theanine.  I have also used passion flower extract and CBD oil.  Epsom salt (magnesium again) baths help.  

A hot water bottle pressed on problem areas works well for me.  

Find something for your mind to focus on, like a suspense movie  or a mystery.  Or a hobby, like knitting.  I try to find a project where I have to concentrate on something besides my buzzing toes! 

Stay hydrated. Don't eat sugar or carbohydrates. 

Lay on your back and prop your feet up.  Don't cross your legs or ankles.  Now try to wiggly each toe individually.  Let me know if that works for you and I'll explain why it works tomorrow!

Hope you feel better soon!

 

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,231
    • Most Online (within 30 mins)
      7,748

    ethan710
    Newest Member
    ethan710
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas.  Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates.   Candida is a yeast infection, so the antibacterial wash is not going to help.  I had to change my diet to a Paleo diet before it went away.  If I consume high levels of sugar or other simple carbohydrates (rice, corn, dairy, etc.), boils would occur at pressure points like the groin and back of the legs.  Your doctor might be able to prescribe an antifungal medication, but some of those antifungal medications destroy thiamine.  Thiamine is needed to keep fungal and bacterial infections in check.  I took Thiamine in the form Benfotiamine, but TTFD (tetrahydrofurfuryl disulfide) will work, too.   Thiamine, and the other B vitamins, especially Niacin and Biotin, along with Vitamin A, Vitamin C, and Vitamin D will help keep skin healthy.  Be sure to address these nutritional deficiencies that occur with Celiac! Ask your doctor to rule out autoimmune hidradenitis suppurativa (HS) and Human Papilloma virus, too.   Hang in there!  You'll get over this rocky patch of the journey!  Best wishes!
    • Scott Adams
      As I mentioned, gluten intolerance encompasses more than just those with celiac disease, and in the past was used more like the term "gluten sensitivity" is used today.
    • Scott Adams
      By the way, have you been diagnosed with celiac disease, and if so, are you on a 100% gluten-free diet?
    • Ryangf
      I haven’t had any noticeable reactions to salt so I will continue using it. I think I just freaked out when I realized this but it doesn’t cause me any discomfort- so thanks!
    • plumbago
      Ok, thanks. I'm so glad to hear you are in the hands of a dermatologist. I hope he/she has given you 1) a diagnosis; and 2) a plan of care with a couple of options so that you have buy-in and comfort with it. I have some ideas, but not having seen the abscesses or you in person, it doesn't really make sense for me to kind of ... speculate further. But your question was regarding gluten, and you've gotten a couple of other follow up questions and answers that are good, including the idea to keep a food diary. Let us know if we can help further or answer any other questions. I'm sorry you're going through this, it sounds very painful.
×
×
  • Create New...