Weight loss and malabsorption?

[Danni2595]

Hi all I’m newly diagnosed and I’m just baffled by all this if I’m honest and worrying if this is normal I’m eating loads of food and can’t seem to put weight on but before I was diagnosed I’d put weight on so easily I’ve stayed around the same for 2 weeks or I either drop a pound or 2, I think I’m also suffering malabsorption I’m not opening my bowels as much as I would and when I am it’s a mushy stool but I don’t feel constipated or I haven’t got any stomach aches does anyone know what would cause this or if they’ve had a similar experience? I suffer health anxiety and always think the worst so now I’m convincing myself I have another condition

[cristiana]

Hi Danni

Welcome to the forum!

I continued to lose weight for a while when I was first diagnosed, from memory, and I actually thought I'd never put it back on.  However, now my gut has healed it's back again, perhaps with a bit more!

When you say you are newly diagnosed, how long ago was it?  And what tests did they offer - was it just blood tests or did you have an endoscopy and perhaps did they give you a colonoscopy too?

Cristiana

 

[trents]

Newly diagnosed with? Celiac Disease? Gluten sensitivity?

It is common for celiacs to also react to CMP (cow's milk protein) and oats like they do wheat, barley and rye. You might try eliminating those two things for a period of time and then if you heal and things improve, add them back in one at a time.

It is also unusual for those newly diagnosed to have a clear picture of how and where gluten is found in the food supply, particularly in processed foods. There is a learning curve and you still may be getting gluten in your diet regularly without realizing it.

[Data]

You sound like me.  I was diagnosed last fall via blood test with a 'borderline' positive.  Waiting on a colonoscopy, but that is months away thanks to COVID. I also have crippling anxiety so i've already jumped to worst case scenario.  I was 235-240lbs but overhauled my diet to cut out gluten and sugar.  I seemed to plateau at 200 for a while, which is an ideal weight for me, but have I've started to drop again which has caused my anxiety to explode.  Of course I am now thinking colon cancer or something as equally horrible.  Cutting gluten has made a big difference, so that aspect is what's keeping me somewhat grounded. 

[GodsGal]

3 hours ago, Data said:

You sound like me.  I was diagnosed last fall via blood test with a 'borderline' positive.  Waiting on a colonoscopy, but that is months away thanks to COVID. I also have crippling anxiety so i've already jumped to worst case scenario.  I was 235-240lbs but overhauled my diet to cut out gluten and sugar.  I seemed to plateau at 200 for a while, which is an ideal weight for me, but have I've started to drop again which has caused my anxiety to explode.  Of course I am now thinking colon cancer or something as equally horrible.  Cutting gluten has made a big difference, so that aspect is what's keeping me somewhat grounded. 

 

On 4/14/2021 at 6:13 PM, Danni2595 said:

Hi all I’m newly diagnosed and I’m just baffled by all this if I’m honest and worrying if this is normal I’m eating loads of food and can’t seem to put weight on but before I was diagnosed I’d put weight on so easily I’ve stayed around the same for 2 weeks or I either drop a pound or 2, I think I’m also suffering malabsorption I’m not opening my bowels as much as I would and when I am it’s a mushy stool but I don’t feel constipated or I haven’t got any stomach aches does anyone know what would cause this or if they’ve had a similar experience? I suffer health anxiety and always think the worst so now I’m convincing myself I have another condition

Hi Danni!

I am not a medical professional. So, please don't take this as medical advice. Have you been able to talk to your doctor about your concerns? I'm 1 year post celiac diagnosis. I also have some anxiety issues. It is really stressful, especially when you are first learning. Having a good counselor has helped me as well.

I would suggest that you also cut out oats and dairy for awhile at least. I personally react to them.

Just because something says it is gluten free, it doesn't mean that it is totally gluten free. Make sure you read labels. 

In cutting out gluten, have you introduced any new foods? Sometimes I think that it takes time for my gut to "recalibrate".

Hope this helps.