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- Scott Adams replied to KimMS's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease20considering iViG treament (normal anti ttg iga but high gliadin antibody iga)
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- WVGirl replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications13nuts.com -- no longer Celiac safe?
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- RMJ replied to JD-FLA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4What should tTG IgA be if Gluten Free?
It took me 5 years to get one of my celiac antibodies down into the normal range. A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might...- 1
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- KimMS replied to KimMS's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease20considering iViG treament (normal anti ttg iga but high gliadin antibody iga)
Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)? -
- KimMS posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0
Helping child go strict gluten-free and concerns about growth/height
Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is...
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By Scott Adams · Posted
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It took me 5 years to get one of my celiac antibodies down into the normal range. A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might correlate with the increase?
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Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)?
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Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is concerned that her antibody levels are not going down fast enough (they dropped drastically the first year and she grew three inches, but they have slowed the past 6-9 months and her growth has plateaued). Doctor is concerned that she will not grow to her full height if she doesn't get her levels down as low as possible before her growth plates set). It seems the main culprit for both of us is eating out. We are very careful, but I did begin to eat out more when she was diagnosed b/c I didn't want to unnecessarily restrict her (esp. socially), and the celiac nutritionist agreed. But now we are facing the reality that we need to redouble our efforts and only eat at home and possible dedicated gluten-free establishments. This is sad, but her health and growth are worth it (btw, she has been symptom free this whole time, so we thought we were okay, but the bloodwork tells a different story). My questions are: 1) What are ppl's experience with children hitting a growth spurt after going gluten-free? Is this likely that she will grow more if we get her levels down? 2) After her window of growth closes (growth plates set), is it possible for her to eat out again (still being extremely careful) and monitor with bw and possibly repeat biospsy if needed? Her growth is crucial right now, so that is our focus, but I'm wondering if she will be able to expand her eating options at some point when she is older or if she will have to stay this strict for life. 3) What recommendations do you have to navigate this time with an almost teenager (both navigating social things, parties and making sure she has adequate nutrition as she can be picky). I know she can bring her own food to events we anticipate (lots of prepping ahead which makes me tired ::sigh::). But the hardest thing is the spontaneous times where we can't prep ahead. I am concerned about her getting enough variety in her diet and the nutrients she needs (she loves rice and gluten-free pasta - basically rice - but these have little/no nutritional value).
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