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Help with celiac test results


SharonM

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SharonM Newbie

Hi Everyone,

im new to this site and I’m not sure if my test results are positive.  I’ve been sick for 3.5 years since starting immunotherapy (for stage IV melanoma).  I’ve done colonoscopy and EGD, but the doctor was only looking for cancer.  I have Addison’s disease, and vitiligo too.  I’ve lost over 120lbs because I’m always in pain and nauseous.  None of my doctors can figure it out and finally was give the Iga and tTg and it says:

image.webp.365e7a1b6607955929cf05eee7a1332e.webp

I’m hoping I find an answer soon!!!  I’m in terrible pain and just want to know what is causing it.  
 

thanks,

sharon

 


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RMJ Mentor

The results you posted are negative for celiac disease.  It included the tests most doctors seem to request, but it was not the full panel.  There is also a DGP test for deamidated gliadin peptides, and both TTG and DGP tests can be done with IgA and IgG antibodies.  Hope this helps!

Makky Apprentice
  On 7/3/2021 at 10:42 PM, SharonM said:

Hi Everyone,

im new to this site and I’m not sure if my test results are positive.  I’ve been sick for 3.5 years since starting immunotherapy (for stage IV melanoma).  I’ve done colonoscopy and EGD, but the doctor was only looking for cancer.  I have Addison’s disease, and vitiligo too.  I’ve lost over 120lbs because I’m always in pain and nauseous.  None of my doctors can figure it out and finally was give the Iga and tTg and it says:

image.webp.365e7a1b6607955929cf05eee7a1332e.webp

I’m hoping I find an answer soon!!!  I’m in terrible pain and just want to know what is causing it.  
 

thanks,

sharon

 

Expand Quote  

Hi Sharon, no worries :) I agree, from the nature of these results, it seems like to me that you are possibly not celiac, but gluten sensitive. Try cutting out gluten for a few days and see how it makes you feel! Gluten sensitivity can be just as painful as celiac, and your IGa seems high which I believe indicates a food allergy, anyone pls correct me if I'm wrong. I really hope you get to the bottom of things and wish you a full recovery. 

Scott Adams Grand Master

Hi Sharon, welcome to the forum!

I’m sorry to hear about your melanoma diagnosis.

Regarding your celiac test results, it looks like part of the scan you posted got cut off and I’m not sure I am reading all of it. Is it possible for you to post a full scan because I can’t see the whole thing here?

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