Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I likely have celiac?


temp8665

Recommended Posts

temp8665 Apprentice

1. It runs in my family.  My dad's cousin has it.  My nephew has it.

2. About five years ago, I would buy three medium pizzas via delivery and eat them over a few days.  Suddenly, doing so, made me not be able to pee for an entire day.  I started just buying one pizza and it was OK.  But then a few months later even that one pizza would make me not be able to pee for an entire day.  I tried several companies and they all had the same result.  I tried Pizza Hut and it was OK.  I would get one pizza hut pizza.  But then, even doing that, would make me not be able to pee.  I stopped getting pizza delivery.  I still get store bought pizza but I only eat 1/2 of it.  I get diarrhea when I eat store bought pizza too many days in a row.

3. About the same time - five years ago - I was diagnosed with eczema on my inner legs and in my ear.

4. I had a blood test this year and it showed I was very low on Vitamin D and Vitamin B12.

5. I do not eat much gluten as it is.  The only gluten I eat is that 1/2 store bought pizza.  I bought bread this week for the first time in forever and I was eating it a lot.  I've had diarrhea for three days now.

6. I have had issues with numb pinky fingers usually associated with using a computer too much.

 

So, do these things warrant a blood test do you think?!  Is there anything I listed that doesn't really fit with celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Abolutely! You need to get tested for celiac disease. Ask the physician to run a full celiac panel and not just the tTG-IGA. The tTG-IGA is the most specific antibody test but not the most sensitive. It can miss those who truly have celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

For the testing to be valid you need to be eating a substantial amount of gluten for 6-8 weeks leading up to the test. Substantial amount guidelines are 2 slices of wheat bread daily or the equivalent.

Edited by trents
Scott Adams Grand Master

Good advice @trents, you should definitely get tested, and a couple of slices of pizza a day would also be enough gluten before getting the test.

Let us know how it turns out, and keep in mind that if the results are negative, you could still have non-celiac gluten sensitivity, for which there currently isn't a test.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,340
    • Most Online (within 30 mins)
      7,748

    Rachel Hill
    Newest Member
    Rachel Hill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...