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Celiac Or Not Celiac?

Smitten

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Smitten Rookie
Smitten
Posted

I need help. I'm not sure what do do. My mom, sister, niece, uncle and cousin have been dx'd with Celiac. I have symtoms. My blood tests all came back negative but my endo biopsy came back that my villi were blunt. So, it suggest that I have it. My doctor is calling me back today to see what he wants me to do next. Anyone else out there that has been in this same siutation? Any suggestions will help! :)

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StrongerToday Enthusiast
StrongerToday
Posted

Are you doing a gluten-free diet? Is it helping?

mamaw Community Regular
mamaw
Posted

You didn't say if you are sick in any way? If it were me I would do the diet and see how I felt. You know some never have any outward issues.Maybe the gene testing would also help you decide and the blood work if you haven't done that yet.

good luck

mamaw

Sorry I reread and see that you already did the blood test. I've been having terrible brain fog lately...

mamaw

Smitten Rookie
Smitten
Posted
  • Author

I haven't started because I wanted to see how the results came back with first. I don't want to start if I don't know if I actually have it..... but may have to anyway to see if it makes a difference.

I do have bouts of diarrhea, hypothyroidism and have scaly, itchy patches all over my lower legs. I hate to admit that!!

julie5914 Contributor
julie5914
Posted

Interesting that your blood work would be normal and the biopsy abnormal. I would want to know what they tested in bloodwork, i.e., did they do the full panel. I had very pos. bloodwork, no endoscopy. My sister had inconclusive bloodwork and she only knows that they said the endoscopy saw that her intestines were inflamed. They never said celiac. So she is still on gluten. Let us know what your doc suggests.

Smitten Rookie
Smitten
Posted
  • Author

I believe they did an TTG, IGA, IGG & Endom??? antibody.......

key Contributor
key
Posted

If your villi are blunted, it sounds like you may definitely have celiac. Especially with the family history. Go to a dermatologist and have a biopsy of the rash on your legs. If you have it you should definitely stay gluten free. I am sure you would be happy to not have the rash and thyroid problems are very common with celiac.

THat is interesting that your blood tests were negative.

Monica

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  • Posts

    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      By Redanafs · Posted

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    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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