Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Not Celiac?

Smitten

Recommended Posts

Smitten Rookie
Smitten
Posted

I need help. I'm not sure what do do. My mom, sister, niece, uncle and cousin have been dx'd with Celiac. I have symtoms. My blood tests all came back negative but my endo biopsy came back that my villi were blunt. So, it suggest that I have it. My doctor is calling me back today to see what he wants me to do next. Anyone else out there that has been in this same siutation? Any suggestions will help! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

Are you doing a gluten-free diet? Is it helping?

mamaw Community Regular
mamaw
Posted

You didn't say if you are sick in any way? If it were me I would do the diet and see how I felt. You know some never have any outward issues.Maybe the gene testing would also help you decide and the blood work if you haven't done that yet.

good luck

mamaw

Sorry I reread and see that you already did the blood test. I've been having terrible brain fog lately...

mamaw

Smitten Rookie
Smitten
Posted
  • Author

I haven't started because I wanted to see how the results came back with first. I don't want to start if I don't know if I actually have it..... but may have to anyway to see if it makes a difference.

I do have bouts of diarrhea, hypothyroidism and have scaly, itchy patches all over my lower legs. I hate to admit that!!

julie5914 Contributor
julie5914
Posted

Interesting that your blood work would be normal and the biopsy abnormal. I would want to know what they tested in bloodwork, i.e., did they do the full panel. I had very pos. bloodwork, no endoscopy. My sister had inconclusive bloodwork and she only knows that they said the endoscopy saw that her intestines were inflamed. They never said celiac. So she is still on gluten. Let us know what your doc suggests.

Smitten Rookie
Smitten
Posted
  • Author

I believe they did an TTG, IGA, IGG & Endom??? antibody.......

key Contributor
key
Posted

If your villi are blunted, it sounds like you may definitely have celiac. Especially with the family history. Go to a dermatologist and have a biopsy of the rash on your legs. If you have it you should definitely stay gluten free. I am sure you would be happy to not have the rash and thyroid problems are very common with celiac.

THat is interesting that your blood tests were negative.

Monica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Silk tha Shocker
      - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Help

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    2. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    3. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    4. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    5. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748
    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Silk tha Shocker
      Help

      By Silk tha Shocker · Posted

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.