Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone Have This Problem After Dx

Moongirl

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

After my Dx i started to get this burning/acid churning going on in my stomach. I never had a problem before with acid or reflux...it all started after i went gluten-free, anyone have this problem too?!!?

Im taking prilosec for it now which helps but I wonder why this happend in the first place....i thought it could be due to the diet, even my GI was baffeled, but he doesnt think it related to the celiac... i thought things were supposed to get better, whats going on here? :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Yes--I never was troubled with reflux before. I've been gluten-free since last June and started having the reflux/gas/burning in December.

Moongirl Community Regular
Moongirl
Posted
  • Author
Yes--I never was troubled with reflux before. I've been gluten-free since last June and started having the reflux/gas/burning in December.

could anyone explain what it was? or did they just put u on a med?

jerseyangel Proficient
jerseyangel
Posted

My GI, as he was closing my folder and heading towards the door, told me it was gas in my upper abdomen and to take Phazyme. I asked my GP the last time I was in and she nodded in agreement and said Phazyme is what she would suggest, too. So, there ya go--I won't be much help. :D But I would also be interested in what others have to add.

penguin Community Regular
penguin
Posted

I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened.

Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( :rolleyes: )...nothing seemed to help.

I sleep on a pyramid of pillows (I don't think I need it now, but it's habit), and I take antispasmodics (I use bentyl as needed) when it flares up.

I don't get it as much since going gluten-free, so I'm not much help for you. Has your dr ever given you antispasmodics?

Moongirl Community Regular
Moongirl
Posted
  • Author
My GI, as he was closing my folder and heading towards the door, told me it was gas in my upper abdomen and to take Phazyme. I asked my GP the last time I was in and she nodded in agreement and said Phazyme is what she would suggest, too. So, there ya go--I won't be much help. :D But I would also be interested in what others have to add.

has that helped u? and r u still on it? i dont like taking prilosec, even though it makes the burning go away

jerseyangel Proficient
jerseyangel
Posted

My doctor did give me antispasmotics--I have Neulev and Pamene. I thought those were for the D type cramping?

Moongirl--it does help a little bit--kind of gets the gas moving.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Moongirl Community Regular
Moongirl
Posted
  • Author
I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened.

Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( :rolleyes: )...nothing seemed to help.

I sleep on a pyramid of pillows (I don't think I need it now, but it's habit), and I take antispasmodics (I use bentyl as needed) when it flares up.

I don't get it as much since going gluten-free, so I'm not much help for you. Has your dr ever given you antispasmodics?

oh yah, we tried Levsin once, and boy the side effects were awful, i said id rather deal with the pain!

penguin Community Regular
penguin
Posted
oh yah, we tried Levsin once, and boy the side effects were awful, i said id rather deal with the pain!

I didn't do well on the Levsin, that's why I have the Bentyl. I think it works better and faster, too. My dr originally gave it to me to yes, stop the D cramping, but also to stop the digesting-glass pain in my actual stomach. It was a nice (and effective) change from the narcotics the dr would thow at me.

It was a clue to the dr when the bentyl didn't stop the daily D.

Now I'm on it as needed instead of the originally presrcibed 4x per day, every day. I only take it a few times a week, and usually only if I've been glutened!

jerseyangel Proficient
jerseyangel
Posted

Geesh--shouldn't be surprised the doctor didn't tell me I could use the antispaz. for this <_< . Thanks!

Susan123 Rookie
Susan123
Posted

I only get the burning sensation after eating gluten. After eating gluten for a year from a gluten challege my stomach lining was raw. Dr said it is from excess stomach acid that is produced due to sensitivity/allergy. I have a wheat allergy as well as gluten sensitivity. Once I stopped gluten the burning went away in a week. When I accidentially eat gluten it comes back the next day.

bklyn Enthusiast
bklyn
Posted

I've had this burning stomach and nausea since February. I've been gluten-free since Sept. 2004. The same thing happened to me last year around the same time, and it lasted for several months. My dr. doesn't think it['s related to celiac, but after several tests, he says he really doesn't know. I'm taking Zantac 150, but it doesn't help much. I never had this problem until I went gluten-free! It's a mystery.

Lisa Mentor
Lisa
Posted

I have a large Hiatal Hernia as well as gastritis which is the cause of my burning and reflux.

I take Prilosec twice a day, morning and night...that seems to really help. Also sometimes a zantac when in real need.

Lisa

bklyn Enthusiast
bklyn
Posted

Lisa,

I've tried Prilosec, but it gives me a giant headache. Also, I've read that once you start using the PPIs, that you can't stop. I feel like Zantac is an "old" medicine, with not so many side effects.

Guest Robbin
Guest Robbin
Posted

I have had the same burning, sharp pain in the stomach for quite a while (years) but it did seem to get worse after going gluten-free in January. It didn't stop until a couple of weeks ago when I got my last test results back and found out I was casein intolerant. I never was a milk drinker and thought I was lactose intolerant, so I ate cheese. (LOVED cheese, sniff) Well, I stopped all dairy now and I have to say, with the exception of an accidental gluten incident (still learning), the acid/pain/gas/nausea has stopped. I sincerely hope that my giving up cheese will help others 'cause it has helped me, but oh, do I miss it!!! Try going completely dairy free and see if it helps you. Just a thought :)

covsooze Enthusiast
covsooze
Posted

For me, stomach burning has always been the indication that I've eaten something that disagrees with me. It stopped for a couple of weeks when I went gluten-free then resurfaced. For me, it's a good indicator of me being intolerant to something. Like Robbin, cheese was also a problem for me. I too have never liked milk - have always known I can't 'stomach' it and remember mum thinking I was being fussy about milk as a child - but I adore cheese, so miss it loads too :( However, it's worth it to feel better :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,993
    • Most Online (within 30 mins)
      7,748
    Kelly C
    Newest Member
    Kelly C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.