Help needed for my partner x

[Kezza1978]

My partner just been diagnosed n we're both finding it difficult, I'm trying all types of recipes but he just can't eat ... He wasn't that heavy to start with but his weight dropping dramatically .. 

Any advice appreciated xxx

[trents]

Poor appetite can be symptomatic of a thiamine (B1) deficiency: https://www.healthline.com/nutrition/thiamine-deficiency-symptoms

Because celiac disease damages the villi that line the small bowel, the place where nutrient absorption happens, vitamin and mineral deficiencies are very common in this group. My suggestion would be to start your partner on a high potency B-complex (gluten free). Costco's Nature Made brand is a good choice.

It often takes around two years for full healing of the villi after achieving a consistent gluten free diet regime. There usually is a significant learning curve when it comes to actually eating gluten free because of how gluten is hidden by the food industry and because of cross contamination. This may help:

 

[Kezza1978]

Thank you , I will tell him so that he can speak to his doctor , much appreciated xx

[trents]

Be aware that most medical doctors are not attentive to or have much knowledge with regard to nutritional deficiencies. I would not feel confident you will get a good steer from the typical medical doctor in this matter.

[Kezza1978]

I know he's about as much use as a chocolate teapot , hence why I'm searching on internet , but you have been helpful x

[trents]

Even apart from diagnosing vitamin and mineral deficiencies, just with regard to celiac disease itself and diagnosing it, most primary care docs just don't have it on their radar. Most of us that participate on this forum regularly will attest to the fact that it took years and years after the onset of the disease to finally get diagnosed. That is slowly improving. Nonetheless, by the time your get a diagnosis, there is often considerable collateral damage done to the body already: osteoporosis, neurological problems, etc. , mostly related to nutritional deficiencies.

[Kezza1978]

I've been looking things up which I wouldn't have a clue about and a lot is making sense now ...

[trents]

Before going into a doctor visit having to do with celiac disease, go armed with knowledge and be prepared to be politely assertive. They must often be taken by the hand when it comes to getting anything done about celiac disease.

[Wheatwacked]

From the Merck Manual   https://www.merckmanuals.com/professional/gastrointestinal-disorders/malabsorption-syndromes/celiac-disease

Quote

Treatment of Celiac Disease

Gluten-free diet

Supplements to replace any serious deficiencies

Unfortunately, upon diagnosis many will prescribe the gluten free diet and downplay the vitamin and mineral deficiencies, other than admonish you to eat a "healthy diet".

 

On 3/7/2022 at 1:33 PM, Kezza1978 said:

He wasn't that heavy to start with but his weight dropping dramatically

Without the addictive aspects of gluten and that modern wheat turns on the fat storage genes his body will find its optimum weight. Be more concerned about vitamin and mineral intake than calories. Vitamins and minerals are the tools we need to process the calories from protein, fats and carbohydrates. This food log may give you ideas:  http://nutrientlog.doodlesnotes.net/

[Kezza1978]

Thank u sweetheart XXX