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BMT and celiac

Harjot Gill
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Harjot Gill Newbie
Harjot Gill
Posted

Hi,  

My name is Harjot Gill 22. I’m a celiac patient from childhood. I underwent Bone marrow transplant in February 2020. First few weeks in after the transplant there were no antibodies found and doctors suggested it might have cured my celiac disease too but I’m not sure if thats the case cause i tried whey protein and it gave me strong stomach pain. But if i do eqt normal wheat food it does not affect me at all. So I’m not sure that my celiac is cured or not.

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trents Grand Master
trents
Posted
32 minutes ago, Harjot Gill said:

Hi,  

My name is Harjot Gill 22. I’m a celiac patient from childhood. I underwent Bone marrow transplant in February 2020. First few weeks in after the transplant there were no antibodies found and doctors suggested it might have cured my celiac disease too but I’m not sure if thats the case cause i tried whey protein and it gave me strong stomach pain. But if i do eqt normal wheat food it does not affect me at all. So I’m not sure that my celiac is cured or not.

Welcome to he forum, Harjot!

Not sure how that would work since in some sense you now have a new immune system after the transplant. But, to be sure you should get retested for celiac disease. Just for your information, it is not uncommon for people with celiac disease to develop an intolerance to either lactose (the sugar in milk) or casein, the protein in milk. Interestingly, dairy can cause villi blunting in the small bowel just like celiac disease.

Scott Adams Grand Master
Scott Adams
Posted

Welcome! Keep in mind that whey is dairy, and it doesn't contain gluten, so this would not indicate whether or not you are still reacting to gluten.

There is a published case in which someone with celiac disease who received a bone marrow transplant for leukemia apparently no longer had celiac disease, however, in the study he was only followed for 5 years after resuming a normal diet. It is still possible that this person could relapse, or that another trigger could re-activate their celiac disease. It is also possible that they might have been cured.

Here is that study:

 

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