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Celiac just diagnosed

versace114
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versace114 Newbie
versace114
Posted

I am 52 yrs old and never been able to gain weight, my biopsy and blood work confirms, I am going to have to go to Carti so they can keep an eye on my blood and give me IV vitamins and nutrients as my body will no longer hold them. Any encouragement and advise is welcome as I am scared due to the fatigue and all the other symptoms. I’m suppose to go gluten free for 3 months recheck my blood work all though we don’t look for it to change as I’m not a bread person. Is there any help out there for people who can’t afford the food? Thank you all in advance .

🙏✨😊

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trents Grand Master
trents
Posted

Welcome to the forum, versace114.

Carti?

You don't have to rely on processed "gluten free" food in order to avoid gluten. It is not that difficult to avoid gluten while resorting to main stream food if you are careful. Much ordinary food is naturally gluten free such that you only need to be concerned with cross contamination.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Hopefully you will be feeling a lot better by that appointment. It can take some time to heal though so don't get discouraged if you make some mistakes with the gluten free life at first. If you go to the top of the Coping Section there is 'Newbie" post that has a lot of good info. You may feel a bit better once the infusions are over and you vitamin levels are up a bit. Do make sure they know you are celiac just to be on safe side. If you take any meds call your pharmacist and let them know you have been diagnosed so they can check any scripts you are on.

Eating gluten free doesn't have to be expensive. You an go with meats, fish, chicken, veggies and fruits etc that yuo prepare at home. I would advise avoiding restaurants or eating in others homes as these are the most common ways we can get 'glutened'. I don't have much time but we have a lot of great and very knowledgable folks here that can help. Read as much here as you can and I hope you are feeling better soon.

trents Grand Master
trents
Posted

The main thing is to focus on buying fresh meat, fresh vegetables and fresh fruit when available. Avoid seasonings apart from salt and black pepper as some seasonings are cross contaminated with gluten in production processes. Cook your own meals. Avoid eating out like the plague. Fix simple things that don't have coatings or crusts.

Do you share a house with people who are still using gluten?

Wheatwacked Veteran
Wheatwacked
Posted
1 hour ago, versace114 said:

give me IV vitamins and nutrients

Make sure you are getting Choline. Either eggs and meat or pills. Apparently no one sells choline in parenteral feeding choices. They do in Europe. 

"choline deficiency appears to activate cellular apoptosis."   https://pubmed.ncbi.nlm.nih.gov/19874943/

Quote

Choline is an essential component of all cell membranes, and has been considered a required dietary nutrient since 1998 by the US Institute of Medicine's Food and Nutrition Board. Choline is necessary for DNA repair, mediated by its role as a methyl donor. It also serves as the precursor for the neurotransmitter acetylcholine. Evidence has accumulated that hepatic steatosis, which occurs during parenteral nutrition therapy, develops as a result of choline deficiency Buchman AL. The addition of choline to parenteral nutrition. Gastroenterology. 2009 Nov;137(5 Suppl):S119-28. doi: 10.1053/j.gastro.2009.08.010. PMID: 19874943. https://pubmed.ncbi.nlm.nih.gov/19874943/

 

Wheatwacked Veteran
Wheatwacked
Posted
2 hours ago, versace114 said:

my body will no longer hold them.

A short time gluten free and you will start getting better. Next step is to replenish your vitamins and minerals. Some are low because of malabsorption (the reason for Carti) but some could be diet. Recovery is do-able. In 2013 I could not stand long enough to watch a single cup coffee brewer do its job.

RMJ Mentor
RMJ
Posted

Gluten is in a lot of processed foods besides bread. I didn't eat much bread before my diagnosis but still got enough gluten for high antibody levels.

Hopefully now that you have a diagnosis and will soon have iv nutrients you’ll start feeling better and will become less and less scared.  We’re here to support you.

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