Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating and Other Issues


Ginger38

Recommended Posts

Ginger38 Rising Star

I just found out recently something I was consuming was not gluten free. This was something that was basically a daily part of my life. 
It has been around 2 weeks since I stopped that and have been as far as I know gluten free. 
this current reaction has made me extremely ill from head to toe, including lots of fluid retention, swelling, pain and gastrointestinal issues. I am still having horrible bloating when eating (regardless of what it is) I look pregnant. I have also continued to have lots of gas and stomach rumbling and other GI issues.
Even though I haven’t had gluten for a few weeks is it normal to continue to have these issues and to assume this bloating and gas and other slushes are residual from immune reaction bc everything is all inflamed and aggravated? 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

How long were you eating it, and are we talking about large amount of gluten each time? 

If you've been eating this for a couple of months you could be back to square one, which means it could take you a few months, or even longer to heal and recover. Be sure to take a good multi-vitamin like Geritol (if you can include iron in your supplements) to help with any nutrient deficiencies. It's probably too late, but this article may also be helpful:

 

Ginger38 Rising Star
5 hours ago, Scott Adams said:

How long were you eating it, and are we talking about large amount of gluten each time? 

If you've been eating this for a couple of months you could be back to square one, which means it could take you a few months, or even longer to heal and recover. Be sure to take a good multi-vitamin like Geritol (if you can include iron in your supplements) to help with any nutrient deficiencies. It's probably too late, but this article may also be helpful:

 

Thanks for replying and for the information. It was a month, at least maybe 2, of consumption. I am not sure what is considered a large amount of gluten. Can you give an example? 
I have been taking vitamin d, zinc, vitamin b1 and a super b complex. I have a centrum womens multi vitamin but I have not been taking it. I did try a digestive enzyme but it didn’t seem to be helping. 
This go around has been terrible. I have been really sick with symptoms ranging from head to toe. When it seems like things are getting a little better it all seems to come back or something new pops up. The bloating and gastrointestinal issues will seem to get better and come back with a vengeance. I’ve had a lot of pain and aches, severe brain fog to the point I can’t find words and just pure exhaustion. It’s been rough to say the very very least. 
 

Scott Adams Grand Master

I think the amount that would cause intestinal inflammation, damage and positive blood tests would vary a lot from person to person, but to me it seems that you may have crossed this threshold. I was hoping you'd say that what you were eating was a pill that might use wheat starch, as that would contain very small amounts of gluten, and may not trigger a reaction in many celiacs.

At this point it may take you a few months to recover, and perhaps longer, but the important thing is that you've hopefully identified all gluten issues with your diet, and are not 100% gluten-free. 

Taking gluten-free supplements may be helpful, and you may want to look into amino acids like tryptophan and glutamine:

Quote

Glutamine is an important amino acid. In the digestive tract, it's best known for helping to repair the intestinal lining. Research from 2015 has shown that glutamine can improve the growth and survival of enterocytes, or intestinal cells.

 

knitty kitty Grand Master

@Ginger38,

Are you keeping a food/mood/poo'd journal?  Doing so can help pinpoint foods that are causing problems.  

Are you eating a high carbohydrate diet?  

Are you eating out at restaurants? 

Are you consuming dairy?

Have you tried the Autoimmune Protocol Diet?

Ginger38 Rising Star
On 6/28/2022 at 3:04 PM, Scott Adams said:

I think the amount that would cause intestinal inflammation, damage and positive blood tests would vary a lot from person to person, but to me it seems that you may have crossed this threshold. I was hoping you'd say that what you were eating was a pill that might use wheat starch, as that would contain very small amounts of gluten, and may not trigger a reaction in many celiacs.

At this point it may take you a few months to recover, and perhaps longer, but the important thing is that you've hopefully identified all gluten issues with your diet, and are not 100% gluten-free. 

Taking gluten-free supplements may be helpful, and you may want to look into amino acids like tryptophan and glutamine:

 

Thanks. Yeah I wish it had been something small too, but that’s not the case. This diet is so hard. There are things that I guess I just don’t think about sometimes or foods that I just don’t think would have gluten. Condiments drinks coffee just lots of stuff. And I’m still paying for it all mentally and physically 

Ginger38 Rising Star
On 6/28/2022 at 9:41 PM, knitty kitty said:

@Ginger38,

Are you keeping a food/mood/poo'd journal?  Doing so can help pinpoint foods that are causing problems.  

Are you eating a high carbohydrate diet?  

Are you eating out at restaurants? 

Are you consuming dairy?

Have you tried the Autoimmune Protocol Diet?

No, I’m not familiar with the journal thing. I do eat out but I try to be careful and read. I do eat carbs and dairy. Not familiar with the autoimmune diet 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master
(edited)

Keep a journal of what you eat and the time you eat, what kind of bowel movements you have and when, and how you feel emotionally.  

Dairy makes me terribly depressed.  And I get diarrhea with dairy.  A day or two later I get dermatitis.  Keeping my food/mood/poo'd journal helped me become aware of the connection. 

The Autoimmune Protocol Diet  (AIP diet) was created by a doctor with Celiac and her Celiac children.  It has been scientifically proven to promote healing in the small intestine and lowering inflammation in autoimmune diseases like Celiac Disease.  

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

Keep us posted on your progress.

P. S.  This article is about high carbohydrate diets...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Edited by knitty kitty
Add link
Posterboy Mentor
On 6/22/2022 at 10:55 PM, Ginger38 said:

I just found out recently something I was consuming was not gluten free. This was something that was basically a daily part of my life. 
It has been around 2 weeks since I stopped that and have been as far as I know gluten free. 
this current reaction has made me extremely ill from head to toe, including lots of fluid retention, swelling, pain and gastrointestinal issues. I am still having horrible bloating when eating (regardless of what it is) I look pregnant. I have also continued to have lots of gas and stomach rumbling and other GI issues.
Even though I haven’t had gluten for a few weeks is it normal to continue to have these issues and to assume this bloating and gas and other slushes are residual from immune reaction bc everything is all inflamed and aggravated? 

 

Ginger38,

Intense bloating can be from Low Stomach acid.

Fats delay stomach emptying and CARBS ferment during this delaying of stomach emptying leading to intense bloating often.

Try eating either Fats or CARBS  in a meal and it should help......not both in the same meal.

You can try the baking soda test to see how low your stomach acid is.

See this article about how to test for Low Stomach by Dr. Jockers entitled "5 Ways to Test Your Stomach Acid Levels"

https://drjockers.com/5-ways-test-stomach-acid-levels/

I wrote about a Posterboy blog post once about the connection of Low or NO Stomach Acid to to either NCGS or Celiac disease once it might help you to read it.

Low or NO Stomach acid is common in Celiac's but this medical fact has long been forgotten.

Here is the research on it....

Entitled "Gastric morphology and function in dermatitis herpetiformis and in coeliac disease"

https://pubmed.ncbi.nlm.nih.gov/3992169/

Good luck on your continued journey!

I hope this is helpful but it is not medical advice.

2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things.

Posterboy by the Grace of God,

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,555
    • Most Online (within 30 mins)
      7,748

    zhanhuo
    Newest Member
    zhanhuo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...