Blood Pressure medication taken for 3 days that is gluten free (only 10 parts per mil. gluten therein). The worst celiac reaction since 1993 when diagnosed.

[Ronald Corrigall]

Are there any 100% gluten free Blood Pressure (BP) pills available for Celiac sufferers.   I am Canadian and there are no such 100% gluten free BP pills here or the USA.  Britain has the distinction of discovering celiac disease during the 2nd World War (wheat ships, amongst others sunk during supply voyages from N. America).   As such I hope you may have 100% gluten free BP pills in pill, liquid or soft gel forms .   If so please provide me with the drug's name and the manufacturer.   Many thanks for reading this.     Ron Corrigall

[Wheatwacked]

I cannot tolerate the common BP. Most are diuretics and they cause me big problems. Nothing to do with Celiac. 

Atenolol and Clonidine lower my BP up to 40 points. They don't know why they work but they can also be used to treat adult ADHD. I can drink a double espresso and go to sleep. SSRI's make me twitch and keep me wide awake.

Be aware that lowering diastolic below 60 mmHg can cause heart and organ damage because of low perfusion (not enough blood to the feed the organ).

Lisinoprill caused cough that eventually caused an inguinal hernia.

Amlodipine tripled my urine output and dried my eyes out so bad I couldn't wear contacts.

Hydrolozine, after the first week caused Old Man Shuffle and wobbly standing up. Lost leg muscle control and my knee destabilized (medial meniscus tear 20 years ago) within an hour of taking a dose. It got better as it wore off but they wanted me to take it three times a day.

The diurectic in atenolol/chlorthalidone has almost unnoticible effects but I promised my doc to give it two weeks.

None of the diuretics lowered BP. Hydrolozine actually raised both diastolic and sytolic in addition to unacceptable side effects.

 

[Scott Adams]

You can search for your medication at this site, and see the ingredients section:

https://dailymed.nlm.nih.gov/dailymed/ 

[knitty kitty]

@Ronald Corrigall,

Welcome to the forum!

I was prescribed high blood pressure medications, but they made me very ill because I had developed Hypersensitivity Type Four to sulfa drugs.  Blood pressure medications are frequently sulfa drugs, as are medications for diabetes, and diuretics.

My Hypersensitivity Type Four causes an immune system reaction to sulfa drugs.  Celiac Disease is considered to be a Hypersensitivity Type Four reaction to gluten.  Development of a Hypersensitivity to Sulfa drugs is not unusual in Celiac Disease.  Hypersensitivity can develop at any time, at any age.  

I cannot take any sulfa drugs.  Sulfa preservatives in foods will cause a reaction, too.  

Here's an article that explains it well...

https://www.ncbi.nlm.nih.gov/books/NBK562228/

I have found that taking Thiamine helps lower high blood pressure and has lowered my blood glucose levels, so I don't need to take those prescribed pharmaceuticals.

Hope this helps!

[Wheatwacked]

Aside from the bad reaction did it lower your BP? Ask to try clonidine or atenolol. Not only does it lower my BP to around 130/70 in within 2 hours, lasts 4 hours and I notice a calming effect. I have untreated ADD at 71 years. My previous doctor sent me packing because he decided I was not compliant because the C channel blockers did not work as he expected. Clonidine was originally FDA approved for adolescents ADHD if Ritalin or amphetamines were not appropriate. They also make it extended release, which I will talk about next doctor visit in two weeks. Four doctors since 1985 this is the first drug has lowered my BP.

The DV for potassium in the US as per nutrition labels is 4.7 grams (4700 mg) a day. The RDA is only around 2.3 grams. The WHO and many countries consider low potassium intake of interest in controlling BP.  Some BP meds preserve potassium so they can cause hypercalimia which is where the caution about eating potassium comes from.

  How Potassium Can Help Control High Blood Pressure

Potassium Deficiency – Is Gluten to Blame?

[BluegrassCeliac]

I've had to deal with this problem for several years now: There are several HBP medicines available that are gluten free. You will need to request them by a NDC number (National Drug Code). This uniquely identifies the manufacturer, product, and dosage. Different doses can contain different ingredients, even from the same manufacturer. Taro and Teva both make gluten-free HBP medicines. I take 20mg pills of enalapril from TARO, available at Walgreens. It's gluten-free. There is no gluten-free lisinopril that I can find. Teva also makes gluten-free versions of amlodipine and HCTZ. I DON'T recommend taking these as they cause a severe Mg deficiency, even in non-celiacs. You could also have your medicines compounded at a compounding pharmacy.  Very expensive and insurance probably won't cover it. Active CoQ10 is another choice. DailyMed is an excellent choice mentioned above. I've used it for years. Here's another site to locate drugs by manufacture: 

https://www.accessdata.fda.gov/scripts/cder/daf/

This is NOT the complete list. Talk with your pharmacist to get more choices and do web searches. Contact the manufacturers. They all have web pages. Most will help. Some won't.  Keep in mind ingredients can change at any time, and pharmacies frequently substitute different brands to save money.  Always request drugs by NDC and verify that you received the correct product by looking at the pill imprint, found on DailyMed. Work with your pharmacist. Most will help. Teva makes gluten-free amoxicillin and augmentin as well, in cause you need an antibiotic. I think that their zithromax is gluten-free as well, but verify. Aurobindo also makes gluten-free products, e.g. augmentin.

 

[Ronald Corrigall]

On 12/19/2022 at 5:11 PM, Wheatwacked said:

Aside from the bad reaction did it lower your BP? Ask to try clonidine or atenolol. Not only does it lower my BP to around 130/70 in within 2 hours, lasts 4 hours and I notice a calming effect. I have untreated ADD at 71 years. My previous doctor sent me packing because he decided I was not compliant because the C channel blockers did not work as he expected. Clonidine was originally FDA approved for adolescents ADHD if Ritalin or amphetamines were not appropriate. They also make it extended release, which I will talk about next doctor visit in two weeks. Four doctors since 1985 this is the first drug has lowered my BP.

The DV for potassium in the US as per nutrition labels is 4.7 grams (4700 mg) a day. The RDA is only around 2.3 grams. The WHO and many countries consider low potassium intake of interest in controlling BP.  Some BP meds preserve potassium so they can cause hypercalimia which is where the caution about eating potassium comes from.

  How Potassium Can Help Control High Blood Pressure

Potassium Deficiency – Is Gluten to Blame?

Thank you so much for all the information which is enough for me to explore.  I have some investigation to do and in the meantime I am using Thiamin which seems to be helping.  I am also going to investigate the clonidine patch as my best alternative.  Thankyou     Ron Corrigall

[BluegrassCeliac]

Glad to help.

I forgot to mention celiacs should avoid products from Sandoz. Their polysorbate-80 is made from wheat, not corn like in the US and Canada. It triggered a life threatening cytokine storm in me. That's what started me doing all this research. I was posting this also for any celiac having trouble locating gluten-free  pharmaceuticals. It's a maze.

Good luck.

[Jenniferxgfx]

Do you kind saying what you were taking that glutened you? I’m on a low dose beta blocker (metoprolol) to control tachycardia and I’m actually here looking for potential sources of cc because I’m feeling so awful rn. 
 

Is your potassium checked regularly? Low potassium can increase BP. There are supplements and electrolytes but potassium rich food (potatoes, avocado, sweet potato, and plenty more) is supposed to be all we need. Your mileage may vary, obviously. 
 

super glad you brought this up. 

[Wheatwacked]

Amlodipine: Doubled urine output, dehydrated eyes interfering with contact lenses. No effect on BP

Lisinopril: persitant cough caused inguinal hernia. No effect on BP

Hydroxolene: neuromuscular effect large muscles. Shortly after taking I would be stooped over and shuffling with feet pointing out. I call it Old Man Shuffle. A previous medial meniscus injury this totally destabilized that knee. All wobbly. It would wear off and became normal until the next dose, 3 times a day, started it again.

Chlorthalimide: Similar to hydroxolene but not as bad. Once the dose kicks in my legs were like bobble heads. Like the brakes were slipping. Wobbling back and forth when standing.

Atenolol: not a diuretic but it was a combined pill Atenolol/Chlorthalidone. It would lower BP sporatically but the chlorthalimide part messed me up.

Clonidine: Good effect on BP. Does cause dry mouth and constipation, but it might be the metformin I started at the same time. It is not a diuretic. Works by slowing pulse, but it takes an hour or more to work and only effective for 4 hours on me where dosing is supposted to be twice a day. Maybe the patch or the extended release. Originally marketed for ADHD in 8 to 18 year olds.  Very helpful with my type of ADD in terms of organization and decision making.  I can drink double espresso and fall right asleep. SSRi's make me twitch.

When I was tracking potassium and eating 5 grams a day my BP came down. But I've gotten lazy. Grass fed milk is a good source. 600 mg per 12 ounce glass.

Finally, this doctor accepts that diuretics are not for me. Previous doctor accused me of not following his advice and told me to find a different doctor.

With the amount of coffee (a diuretic) I drink and now my high glucose is causing me to pee all the time anyway, the diuretics above, all calcium channel blockers I think, actually raised my BP a bit. Dehydration can also cause high BP and glucose.

The odd thing is that even with the higher BP and glucose levels (180 mg/dl) and rising lipids, my neuropathy and vision and are improving. Meaning to me that while diabetes and high BP and neuropathy and glaucoma can be comorbidities, if glucose was the cause I should be getting worse, not better.

[Ronald Corrigall]

12 hours ago, Jenniferxgfx said:

Do you kind saying what you were taking that glutened you? I’m on a low dose beta blocker (metoprolol) to control tachycardia and I’m actually here looking for potential sources of cc because I’m feeling so awful rn. 
 

Is your potassium checked regularly? Low potassium can increase BP. There are supplements and electrolytes but potassium rich food (potatoes, avocado, sweet potato, and plenty more) is supposed to be all we need. Your mileage may vary, obviously. 
 

super glad you brought this up. 

I took Perindopril known as Coversyl and manufactured at Sandoz Canada in late summer 2020.  Took 3 pills over 3 days resulted in a celiac reaction losing 9 pounds overnight rocket launching intestinal production.   As an aside, toto toilets accompanied by a washlet toilet seat are heaven on earth for such occasions.  Since taking 50mg of B1 (thiamine) (Jamieson B50  Complex vitamins)  my BP is down an average of 40 (180 to 140) in less then 20 days.  Thank you to this site and the people for that information.  My fluid intake is at least 100 ounces daily of which 50 ounces is water.     I will also look into my Potassium levels.   Hope this helps you on your journey

[Jenniferxgfx]

3 hours ago, Ronald Corrigall said:

I took Perindopril known as Coversyl and manufactured at Sandoz Canada in late summer 2020.  Took 3 pills over 3 days resulted in a celiac reaction losing 9 pounds overnight rocket launching intestinal production.   As an aside, toto toilets accompanied by a washlet toilet seat are heaven on earth for such occasions.  Since taking 50mg of B1 (thiamine) (Jamieson B50  Complex vitamins)  my BP is down an average of 40 (180 to 140) in less then 20 days.  Thank you to this site and the people for that information.  My fluid intake is at least 100 ounces daily of which 50 ounces is water.     I will also look into my Potassium levels.   Hope this helps you on your journey

Holy moly, Sandoz sounds evil. Really appreciate the heads up. Also really glad you’re on the mend— what a doozy of a reaction. 
 

appreciate the B1 tip, too. My spouse has HBP and is always looking for ways to reduce meds when possible or treat occasional bouts of higher than usual BP. (Life is so stressful right now, it’s tough to avoid stress.)

 

take care and stay safe!