Headache

[Raptorsgal]

Does anyone get them. I been getting a lot lately 😞 ? 

[Scott Adams]

This is a common celiac disease symptom, are you 100% gluten-free? Do you eat out?

[Migraine Sufferer]

On 2/13/2023 at 11:28 PM, Raptorsgal said:

Does anyone get them. I been getting a lot lately 😞 ? 

After receiving a gift of gourmet English muffins, I started having severe migraines that lasted for over a month. Because I have a dairy allergy that causes migraines, I looked at what I might have done differently. Because I normally avoid carbs in order to control my weight, I immediately realized I had been consuming gluten. When I eliminated gluten the migraines stopped. Now I am concerned that I will not get accurate test results because I have not consumed gluten for four weeks.

[trents]

8 minutes ago, Migraine Sufferer said:

After receiving a gift of gourmet English muffins, I started having severe migraines that lasted for over a month. Because I have a dairy allergy that causes migraines, I looked at what I might have done differently. Because I normally avoid carbs in order to control my weight, I immediately realized I had been consuming gluten. When I eliminated gluten the migraines stopped. Now I am concerned that I will not get accurate test results because I have not consumed gluten for four weeks.

Your concern is a valid one. You should either go back to consuming gluten for 6-8 weeks before being tested or push ahead with the assumption that you wither have celaic disease or NCGS (Non Celiac Gluten Sensitivity).

[Raptorsgal]

I’m Still getting headache everyday I’m not sure if it from dehydration iron low or maybe it from this disease . I had my blood test done my ttg was high .
 

im seeing a gastroenterologist this week for the first time. What should I expect I get anxiety I like to know what to expect I know she will talk my blood test and if I need further test. I know the headache  daily are hard on me does anyone else get headache a lot 

[trents]

31 minutes ago, Raptorsgal said:

I’m Still getting headache everyday I’m not sure if it from dehydration iron low or maybe it from this disease . I had my blood test done my ttg was high .
 

im seeing a gastroenterologist this week for the first time. What should I expect I get anxiety I like to know what to expect I know she will talk my blood test and if I need further test. I know the headache  daily are hard on me does anyone else get headache a lot 

I do. Lately, I get a headache about half the days. Mine usually develop it the wee hours of the morning or close to the time when I wake up in the morning. Migraines/headaches are very common in the celiac population. I have penned down some foods that often trigger mine but there are other trigger factors as well for me such as interruption in normal sleep patterns or changes in the weather. I have medication I take after the onset that works well (Sumatriptan) and recently my physician put me on a preventative med called amitriptyline.

[Scott Adams]

We have a category of research articles that we've summarized on this topic in case you're interested:

https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/ 

[Mathew]

On 2/14/2023 at 4:28 AM, Raptorsgal said:

Does anyone get them. I been getting a lot lately 😞 ? 

Yes i was glutened 17 days ago and still have headaches and really achey legs. Slight pain on and off in left side of abdomen too. Hope you find some peace

[Toni Morrissey]

On 2/13/2023 at 11:28 PM, Raptorsgal said:

Does anyone get them. I been getting a lot lately 😞 ? 

 

On 3/7/2023 at 10:58 AM, Mathew said:

Yes i was glutened 17 days ago and still have headaches and really achey legs. Slight pain on and off in left side of abdomen too. Hope you find some peace

I have a headache every day. I have not yet been diagnosed. But I strongly believe I’m positive since my daughter has it. I’m currently being treated for heartburn and see the doctor on May 19th. It sure gets tiresome being sick everyday, doesn’t it? I hope you get it figured out.

[I.M.Celiac]

On 3/5/2023 at 9:39 AM, Raptorsgal said:

I’m Still getting headache everyday I’m not sure if it from dehydration iron low or maybe it from this disease . I had my blood test done my ttg was high .
 

im seeing a gastroenterologist this week for the first time. What should I expect I get anxiety I like to know what to expect I know she will talk my blood test and if I need further test. I know the headache  daily are hard on me does anyone else get headache a lot 

I had headaches for days before my Celiac diagnosis. I loved bread. Never knew the connection. Also, some Belgian beers were giving me days-long headaches but I thought it was the yeast or alcohol. All have gluten. Dropped all gluten and that was my first relief! Good luck. It's been 12 years but I remember the pain SO well. My heart breaks for you.

[knitty kitty]

Not getting enough thiamine causes headaches.  

Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey

https://pubmed.ncbi.nlm.nih.gov/36047917/

"We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females."

And...

B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9860208/

"Conclusion: The results of this study showed that B1, B6, B12, and B9, and a combination of these vitamins could be effective as an adjuvant in treatment and prophylaxis of EM. Further large trials with long-term follow-ups will be required to confirm our results."

 

I used to get several-days-long migraines very frequently.  But since I started taking high dose Thiamine, I haven't had another as bad as those.  

Edited May 13, 2023 by knitty kitty
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