Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermatitis Herpetiformis or something else?? General help appreciated


lehum

Recommended Posts

lehum Apprentice

Hello All!

I am a little perplexed and looking for some help. I have been gluten-free since being diagnosed with Celiac in February of 2021, so a little over two years now. I am still experiencing some symptoms, although I am SO careful. Lots of fatigue, loose stools (not diarrhea, but just loose/fatty) and a general feeling of stomach discomfort. I really am very careful with my diet, only cook at home. etc. Somehow I have managed to have reactions to products like maple syrup or even certified gluten-free quinoa. Am I unbelievably sensitive or do things like that happen to others too? 
Many times after eating, I notice that my elbows will be slightly red. They never break out in a full blister rash like the way I understand Dermatitis Herpetiformis to be,  but they look a little irritated. Could this be a sign of trace gluten in things? Maybe it could be something else? 
My original antibody could was in the 1,120 range. In the last two gluten-free years, it has gone down to 40, where it was when it was last checked several months ago. My doctor says that I must be still making dietary mistakes because it should be below 20, but I have read elsewhere online that it can take some people as long as 6 years to actually sink so low if the original count was so high… 
It is kind of driving my crazy because I feel I am being remarkably careful and just can’t wrap my mind around what could be going on. If anything jumps out at anyone reading this that sounds like I might be missing and someone wants to give me some ideas, I would be VERY grateful.

thanks so much and wishing a pleasant day,
Lauren 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

For some with DH iodine can also trigger the rash, so you may need to cut back on iodized salt, seafood, and dairy to see if that helps.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,213
    • Most Online (within 30 mins)
      7,748

    Sassy620
    Newest Member
    Sassy620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
×
×
  • Create New...