Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I cannot stop crying right now!

Jlsnj
 Share

Recommended Posts

Jlsnj Rookie
Jlsnj
Posted

Hi everyone, I decided to try gluten free almost 2 weeks ago, and so far this has been life altering to say the least! At first the gastrointestinal problems calmed, then the pain let up, now my lifelong anxiety is completely gone and my rashes are disappearing! Everyday is bringing such drastic change, at first I thought I was imagining it, maybe placebo effect . I cannot stop crying today, I think it is finally sinking in that I’m ok after years of mystery symptoms.symptoms I thought I would have to live with forever. It’s so weird having chronic problems relieved so fast, it’s like my mind is being lazy catching up to my body. Mentally I’m still fatigued but physically the pain is 85% gone if not more! I’m just gonna let the tears roll!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted
1 hour ago, Jlsnj said:

Hi everyone, I decided to try gluten free almost 2 weeks ago, and so far this has been life altering to say the least! At first the gastrointestinal problems calmed, then the pain let up, now my lifelong anxiety is completely gone and my rashes are disappearing! Everyday is bringing such drastic change, at first I thought I was imagining it, maybe placebo effect . I cannot stop crying today, I think it is finally sinking in that I’m ok after years of mystery symptoms.symptoms I thought I would have to live with forever. It’s so weird having chronic problems relieved so fast, it’s like my mind is being lazy catching up to my body. Mentally I’m still fatigued but physically the pain is 85% gone if not more! I’m just gonna let the tears roll!

Thanks for sharing! Keep the good work up.

Scott Adams Grand Master
Scott Adams
Posted

It's great to hear that you are finding relief! As I recall you were diagnosed with Lupus, but were never tested for celiac disease. Given how great things are going for you on a gluten-free diet it's probably too late to worry about celiac disease screening at this point, but you could still get a genetic test for celiac disease if you are curious.

Jlsnj Rookie
Jlsnj
Posted
  • Author

I feel that it doesn’t matter for me celiac or not, I’m convinced wheat is terrible! I am also sure that my grandmom suffered from this as well, and my aunt is going through it now during cancer recovery, she is done her treatments but her digestive system is a mess. She is going to get tested at her next visit. She is amazed by my recovery but she has it in her head that gluten free is hard to do. I find it simple: no wheat = I feel good.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,994
    • Most Online (within 30 mins)
      7,748
    Gma4anna
    Newest Member
    Gma4anna
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...