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Years of undiagnosis

James47
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James47 Apprentice
James47
Posted

Hi everyone,I'm 48 and after suffering ill health that really declined over last couple years I have recently been diagnosed with celiac.I got an endoscopy and had I been spitting up blood a lot .the doctors said internally it's like a barren wasteland but assured me I will get full recovery but be long process.Is there anything I can do immediately to help with internal recovery,my blood count is extremely low as well.

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trents Grand Master
trents
Posted

Welcome to the forum, James47!

It can take a couple of years or longer for complete healing of your gut once you go gluten free. Celiac disease damages the villi that line the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed from what we eat. Consequently, celiac disease typically causes vitamin and mineral deficiencies which, in turn, results in a myriad of other health issues. So, besides really taking gluten-free eating seriously, you should invest in some quality gluten-free vitamin and mineral supplements. We would recommend: an adult multivitamin, high potency B-complex, sublingual B12, 5-10k of D3 daily, magnesium glycinate and zinc. Costco's Nature Made and Kirkland brands are a good choice for the adult mv, D3,B-complex, and zinc but the mag glycinate you won't find there. I get that on Amazon. Make sure all supplements are gluten-free. Wheat starch is sometimes used as a filler in pills.

In your case, a gluten-free iron supplement. Some people don't tolerate iron well so look into the buffered products if that is the case for you.

As far as gluten-free lifestyle, this primer might help you get off to a good start as there is a learning process involved:

 

James47 Apprentice
James47
Posted
  • Author
13 minutes ago, trents said:

Welcome to the forum, James47!

It can take a couple of years or longer for complete healing of your gut once you go gluten free. Celiac disease damages the villi that line the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed from what we eat. Consequently, celiac disease typically causes vitamin and mineral deficiencies which, in turn, results in a myriad of other health issues. So, besides really taking gluten-free eating seriously, you should invest in some quality gluten-free vitamin and mineral supplements. We would recommend: an adult multivitamin, high potency B-complex, sublingual B12, 5-10k of D3 daily, magnesium glycinate and zinc. Costco's Nature Made and Kirkland brands are a good choice for the adult mv, D3,B-complex, and zinc but the mag glycinate you won't find there. I get that on Amazon. Make sure all supplements are gluten-free. Wheat starch is sometimes used as a filler in pills.

In your case, a gluten-free iron supplement. Some people don't tolerate iron well so look into the buffered products if that is the case for you.

As far as gluten-free lifestyle, this primer might help you get off to a good start as there is a learning process involved:

 

Listen thank you so much that was very helpful .it's an education these days and realise will be long process..thanks again

 

James 

captaincrab55 Collaborator
captaincrab55
Posted
6 hours ago, James47 said:

Hi everyone,I'm 48 and after suffering ill health that really declined over last couple years I have recently been diagnosed with celiac.I got an endoscopy and had I been spitting up blood a lot .the doctors said internally it's like a barren wasteland but assured me I will get full recovery but be long process.Is there anything I can do immediately to help with internal recovery,my blood count is extremely low as well.

IMO, First, You need a strict gluten-free diet, Second, You need to visit a Hematologists to study your low blood count.  Third,  You need a General Practitioner that understands Celiac Disease.   Just as important, Don't forget to visit your GI Doctor.   Good Luck

 

Scott Adams Grand Master
Scott Adams
Posted

I am concerned that you said you are spitting up blood… This is not a typical symptoms of celiac disease. Be sure to consult your doctor about this, as it could be something else separate from your celiac disease.

trents Grand Master
trents
Posted

Scott is right. Spitting up blood is not a normal symptom of celiac disease. Did the doctor comment on that in relation to the endoscopy? Do you have peptic ulcers or something that needs special attention? And it may be contributing to your low blood counts.

James47 Apprentice
James47
Posted
  • Author

.Listen appreciated guys thank you.well no more was mentioned so I assumed was just the rawness internally that was contributed to that.they said my insides had almost totally eroded.tbh after 4 weeks of the gluten free diet it's not as much so has been improvement but my mid drift still feels like iv took a kicking

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