Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten freee for 17 years-no instant reaction from accidential large amount of gluten

Susan F.

By Susan F.
in Related Issues & Disorders

 Share

Recommended Posts

Susan F. Newbie
Susan F.
Posted

Hi, I have been 100% gluten free since 2006 when I was diagnosed with Celiac. Any time ive had a cross contamination exactly 3 hours from eating I would vomit for 2 hours! Last week by accident I bought regular raviols instead of gluten-free. I had about 10 of them I would say. 2 hrs later felt nausea, I looked in the garbage at the ravioli bag and realized I had been posioned withgluten. I was prepared for hours of vomiting but it never happened. Over week later I still feel sick to my stomach ,nauseous , couldnt go to bathroom,  finally had  abowel movement after a week of nothing.

Is this a common immune response? Feeling awful

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted

@Susan F., welcome to the forum!

You've done such a good job avoiding gluten, your immune system has calmed down.  If you continue to eat gluten, your immune system will rev up again and make your intestinal symptoms worse.

The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune cells die off (if not triggered by gluten) in about two years.  

If exposed to gluten after that, the immune system has to gear up antibody production again.  This can take a while.   Remember that a gluten challenge is trying to get those antibody levels high enough to register on a blood test and requires weeks of consistent gluten consumption. 

People that react violently to small gluten exposures still have an actively prepared immune system.  The antibody producing cells are still functioning and readily prepared to produce antibodies.  

Your lingering symptoms suggest nutritional deficiencies.  Low magnesium and B Complex vitamins and Vitamin D are frequently low in long-term gluten free diets.  

Do you supplement any vitamins or minerals currently? 

Scott Adams Grand Master
Scott Adams
Posted

I agree, many people with celiac disease who are gluten-free for years go into something like remission, and have few, if any, symptoms when they accidently eat gluten. If you continue to eat gluten your symptoms will likely return pretty quickly, but it might take time for the damage to occur, just like it takes time for it to heal.

Elliemae7395 Apprentice
Elliemae7395
Posted

I'm curious about the effects of gluten poisoning. Is it unusual after a year of 100% no gluten that when I ate gluten again I was vomiting etc for several days not hours? Is it relative to the length of time gluten free or the amount of gluten consumed? Is it different for everyone? Susan, you felt awful for a week. Is there any way  to know the damage done?

knitty kitty Grand Master
knitty kitty
Posted
25 minutes ago, Elliemae7395 said:

I'm curious about the effects of gluten poisoning. Is it unusual after a year of 100% no gluten that when I ate gluten again I was vomiting etc for several days not hours? Is it relative to the length of time gluten free or the amount of gluten consumed? Is it different for everyone? Susan, you felt awful for a week. Is there any way  to know the damage done?

 

 

The immune cells that produce anti-gluten antibodies (these are the same antibodies that also attack our bodies), those immune cells die off (if not triggered by gluten) in about two years.  

If exposed to gluten after that, the immune system has to gear up antibody production again.  This can take a while.   Remember that a gluten challenge is trying to get those antibody levels high enough to register on a blood test and requires weeks of consistent gluten consumption. 

People that react violently to small gluten exposures still have an actively prepared immune system.  The antibody producing cells are still functioning and readily prepared to produce antibodies.  

Susan F. Newbie
Susan F.
Posted
  • Author

Ugh, still not feeling great, its day 10 of the poisoning (I call it..lol) . I do take vitamins, and suppliments, started balanc eof nature few months ago, take D, B and slow mag for leg cramps.

My upper stomach is hurting, have not been eating much as i feel nauseous......did eat some dinner, doing fruit otherwise. I dont know if there is or will be damage from this epidsode, so crazy I AM so careful and did this to myself by mistake!

knitty kitty Grand Master
knitty kitty
Posted

I like Oolong tea.  It's very soothing on the tummy.  One can take some extra magnesium, too.  Take more B vitamins.  They are water soluble and become depleted quickly in diarrhea and vomiting.  Thiamine can help relieve the nausea.  

I think we've all had those moments when we're scrambling and re-reading the package label!  You're in good company.   

It'll get better.  With such a brief exposure, probably little damage was done.  

Best wishes!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Elliemae7395 Apprentice
Elliemae7395
Posted

For me when I got beyond sips of water I had tea and then Stony field organic whole milk probiotics yogurt. It was recommended to me. We had the vanilla already. I figured getting active cultures in my tummy might help. I took it slow. But it did help. I hope you feel better soon🤗

Scott Adams Grand Master
Scott Adams
Posted
17 hours ago, Susan F. said:

Ugh, still not feeling great, its day 10 of the poisoning (I call it..lol) . I do take vitamins, and suppliments, started balanc eof nature few months ago, take D, B and slow mag for leg cramps.

My upper stomach is hurting, have not been eating much as i feel nauseous......did eat some dinner, doing fruit otherwise. I dont know if there is or will be damage from this epidsode, so crazy I AM so careful and did this to myself by mistake!

It's likely too late, but maybe bookmark this article should it ever happen again...the article comments are also worth a read:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.