Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Test Do I Need To Ask For?


VydorScope

Recommended Posts

VydorScope Proficient

Okay I am about ready to give up and bash my head against the wall. I have discovered that many of my medications have milk in them in some form, so even thoguh I have tried dariyfree in the past I was fooling my self since I was constantly get dairy. I guess I did not take it sresiulsy enough at the time, cuase I just noticed that the NON DARIY creamer that I sometimes use (its flavored, helps cheap coffee that I get sometimes when out) has Cassien (a milk protein) in it, my Zyrtec has Lactose in it, and so on. I just want to get better, is that so much to ask????? I already gave up all gluten, what esle do I have to lose? :(

So I want to get my doc to order some blood test for food alergies/intlorences. What do I ask for, and do I need to keep posining my self until test is done? I do not want to just test for milk, I want to test for ever dang food possible! I have already tired the scrtach test and they faild to find anything at all. I am realy fed up with being sick. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I got one blood test, that tested for allergies to about 30 different foods. I don't remember the name of it though. Hopefully your doctor will know which one it is. I think that you can also get a test for food intolerances.

StrongerToday Enthusiast

I took a blood test ordered by my dr. and sent to Great Smokies lab. I too was so frustrated and I wanted to know *right now* what foods I should avoid. I was lucky my insurance picked up half the bill, but it was still expensive. And all it showed was a very low tolerence to casein, milk, egg yolk, peanuts and a low tolerence to lima beans. (No reaction to wheat, oats, barley...) Both my dr. and dietitician said they had never seen a test come back so low, usually these tests show a lot of different food sensitivites.

Both my dr. and dietician encourage me to test one food at a time, slowly - over a four day period and be sure to not add anything else new during those four days.

I wish I would have listened to them and saved myself some money, that paper is practically worthless to me. I do understand your wanting to know, but like a lot of people on this forum have said - trust your body! Look into elimination diets, that might prove more reliable in the long run.

I do think they can do an official lactose test in a local lab, but the food sensitivity testing needs to be done by an outside specialty lab - there are lots of postings for Entrolab, York, Great Smokies....

Good luck in your quest!

Guest nini

I've got my copy of the lab report for food allergies and intolerances in front of me and it was basically useless as everything came in in range or normal... including wheat

the code numbers look like 10715SB

3489SB

273SBX

and it all looks like it was looking for IGE mediated response if that helps...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,604
    • Most Online (within 30 mins)
      7,748

    Kamisha
    Newest Member
    Kamisha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.