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Newly diagnosed

trying2heal
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trying2heal Newbie
trying2heal
Posted

I've been very careful since diagnosis this past Saturday. Today my friend made me supposedly gluten free spaghetti. I enjoyed it but since then I have horrible body rash that feels like stinging all over and intense itching! I was also cleaning with comet earlier but this is a severe reaction.  Do you think I've been glutened?

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trents Grand Master
trents
Posted

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

trying2heal Newbie
trying2heal
Posted
  • Author
1 minute ago, trents said:

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

I would occasionally get raised lines always on neck sometimes back and shoulders but wasn't sure from what. They would itch horribly just like now. Been eating gluten all my life only recently like past month have I developed bloating, pain, gas, etc. Went to Dr. And ran blood test and diagnosed. I was going to post a pic of it, but not sure how lol

trents Grand Master
trents
Posted

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Scott Adams Grand Master
Scott Adams
Posted

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

  • 2 weeks later...
trying2heal Newbie
trying2heal
Posted
  • Author
On 8/29/2023 at 5:24 PM, trents said:

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Thank you for taking the time to reply. Turns out I was diagnosed with cholinergic uticaria. A little gift courtesy of celiacs disease. It causes extremely itchy stinging hives when you're body temperature raises and you sweat. The body sends out a histamine response and it's pretty miserable. I take Zyrtec and make sure to try to cool down quickly. It's made exercise quite difficult lately as you can imagine, but it seems to be calming down some.

On 8/30/2023 at 10:29 AM, Scott Adams said:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

Thank you very much for these informative articles!

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