Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly diagnosed


trying2heal

Recommended Posts

trying2heal Newbie

I've been very careful since diagnosis this past Saturday. Today my friend made me supposedly gluten free spaghetti. I enjoyed it but since then I have horrible body rash that feels like stinging all over and intense itching! I was also cleaning with comet earlier but this is a severe reaction.  Do you think I've been glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

trying2heal Newbie
1 minute ago, trents said:

Welcome to the forum, trying2heal!

Before diagnosis, did you get this type of reaction when consuming gluten?

I would occasionally get raised lines always on neck sometimes back and shoulders but wasn't sure from what. They would itch horribly just like now. Been eating gluten all my life only recently like past month have I developed bloating, pain, gas, etc. Went to Dr. And ran blood test and diagnosed. I was going to post a pic of it, but not sure how lol

trents Grand Master

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Scott Adams Grand Master

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

  • 2 weeks later...
trying2heal Newbie
On 8/29/2023 at 5:24 PM, trents said:

Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up endoscopy with biopsy to confirm the serum antibody tests? This is the normal process unless your antibody scores are very high.

Thank you for taking the time to reply. Turns out I was diagnosed with cholinergic uticaria. A little gift courtesy of celiacs disease. It causes extremely itchy stinging hives when you're body temperature raises and you sweat. The body sends out a histamine response and it's pretty miserable. I take Zyrtec and make sure to try to cool down quickly. It's made exercise quite difficult lately as you can imagine, but it seems to be calming down some.

On 8/30/2023 at 10:29 AM, Scott Adams said:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful:

   and this one may be helpful:

 

Thank you very much for these informative articles!

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,966
    • Most Online (within 30 mins)
      7,748

    lorimarielove
    Newest Member
    lorimarielove
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Welcome to the forum! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    This article may also be helpful:
    • Keith Hatfield
      Many years ago yes, after eating and going to bed, apparently my esophagus filled with food that my body rejected, the esophagus would lay against the Heart sack (pericardium?) and the heart would respond by becoming arrhythmic. That went away with the strict diet.
    • Ynotaman
      I was commenting on the report saying it did not mention migraines! Yes it does last paragraph says have not seen any evidence that Celiac cause migraines! I thought this was about truth?
    • trents
      It has been known for some years that celiacs suffer from migraines at a higher rate than the general populatation. It is an established symptom.
    • Ynotaman
      I suffer so bad with migraines when I eat gluten! Yes diagnosed celiac disease n 2015 and it took me years to discover gluten was behind me having severe migraines.  So yes it happens there has to be others like me!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.