Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I probably have celiac don't I...

PhoMu
 Share

Recommended Posts

PhoMu Newbie
PhoMu
Posted

Hi everyone, 

My name is Jenn (35) and have been a type 1 diabetic since 1992. I went in for my regular diabetic check up thingy and my doc called me back worried.
She told me I maybe have celiac and send me to a specialist doc and get me further tested. Which I did. 

These are my results:

IgA 2.34 g/L (normal 0.40-3.50)
anti - tTG IgA >128 U/ml (normal <10.0)
anti endomysium IgA posittive (normal negative)
MCM6 gen negative. (so I am also lactose intolarant) primaire lactose intolerant

My new doc will call me next wednesday about the results.

So far I didnt experience any of the regular symptoms. 
I did/do feel down for over a year now, and just found out that this maybe can be related to celiac? (I always thought I had this because I made a career switch which I am not happy about)
I do have a little bit reddish rash on my arm, but it is not tested yet.
And I am tired all the time (which I always thought it was because of being a type 1 diabetic for so long)

So I think I am maybe a silent celiac?
 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, PhoMu!

With those high numbers in the celiac antibody tests there is not much question that you do have celiac disease and your conclusion that you may be a silent celiac certainly makes sense if you have not GI symptoms. However, that does not equate to having no villous atrophy in the small bowel lining. Your GI doc may want to do an endoscopy  with biopsy to check that. By the way, silent celiac disease is very common.

PhoMu Newbie
PhoMu
Posted
  • Author

Thanks @trents for replying!

I will patiently wait for the phone call next wednesday then to get it officialy confirmed.
and enjoy my last weeks of eating gluten before the endoscopy...

Scott Adams Grand Master
Scott Adams
Posted

In Europe doctors may diagnose you with celiac disease if your results are 10x the level for celiac disease or higher on a anti - tTG IgA test, without doing a biopsy, but you should ask your doctor about this.

PhoMu Newbie
PhoMu
Posted
  • Author

@Scott Adamsthat would be nice! I will ask him when he calls.

Scott Adams Grand Master
Scott Adams
Posted

Please let us know how things turn out.

PhoMu Newbie
PhoMu
Posted
  • Author

I will!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kurlykaitlyn Explorer
Kurlykaitlyn
Posted
On 9/13/2023 at 1:40 AM, PhoMu said:

Hi everyone, 

My name is Jenn (35) and have been a type 1 diabetic since 1992. I went in for my regular diabetic check up thingy and my doc called me back worried.
She told me I maybe have celiac and send me to a specialist doc and get me further tested. Which I did. 

These are my results:

IgA 2.34 g/L (normal 0.40-3.50)
anti - tTG IgA >128 U/ml (normal <10.0)
anti endomysium IgA posittive (normal negative)
MCM6 gen negative. (so I am also lactose intolarant) primaire lactose intolerant

My new doc will call me next wednesday about the results.

So far I didnt experience any of the regular symptoms. 
I did/do feel down for over a year now, and just found out that this maybe can be related to celiac? (I always thought I had this because I made a career switch which I am not happy about)
I do have a little bit reddish rash on my arm, but it is not tested yet.
And I am tired all the time (which I always thought it was because of being a type 1 diabetic for so long)

So I think I am maybe a silent celiac?
 

 

Hi there, 

It’s very common when being diagnosed for celiac as an adult to have silent symptoms. Even though we might have minor symptoms like fatigue, rashes, or digestive issues, it seems as though our bodies can mostly tolerate gluten. I always had my own health struggles growing up that had nothing to do with celiac disease, but I got diagnosed at age 24 and my health improved immensely after diagnosis!! I knew something was wrong with me but no idea about gluten and celiac. With that, I am ALOT more sensitive to gluten now than I was before diagnosis because I am so careful about ingesting and getting contaminated, I try to be anyway… 🙄 typically your sensitivity to gluten can increase once you avoid it, though some can be truly silent. 

if you get confirmed as a celiac, welcome to the group. I highly recommend you research about celiac disease, living with an autoimmune diseases, and especially especially especially about contamination and preparing your kitchen to be celiac safe. This site has a ton of resources and information about celiac to help you! I’m wishing you all the best whatever the results are and your journey!

PhoMu Newbie
PhoMu
Posted
  • Author

Doc called today,

He confirmed that I am a celiac. So it is official now. I am a member of this club now :)

It is going to be a big transition tho hahah

trents Grand Master
trents
Posted
21 minutes ago, PhoMu said:

Doc called today,

He confirmed that I am a celiac. So it is official now. I am a member of this club now :)

It is going to be a big transition tho hahah

Welcome to the celiac club! Big transition, yes! But it will become the new norm.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      Researchers are working on T cell modification therapy that could one day let celiacs eat gluten.
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      It's like a double edged sword.......we do one thing to improve a problem and cause another problem. I'd like to think the ultimate cure might be something that would train or modify the body to prevent the damage that gluten causes.
    3. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

      You might try Heallix. It's a silver solution with fulvic acid. I just put the solution on with a cotton ball. It seemed to stop the nerve pain. Again, not in your eyes or ears. Go to heallix.com to read more about it and decide for yourself Also, I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out...
    4. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being...
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748
    dalimoda
    Newest Member
    dalimoda
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.