Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Things Are Going A Little Better


Smunkeemom

Recommended Posts

Smunkeemom Enthusiast

My 4 year old has been having "food issues" lately, and pretty much didn't want to go anywhere (church, choir practice, friend's birthday's, ect.) because they were having food that she couldn't eat. I understood, but was worried about her socialization, I mean her dad, sister and I are cool and all, but she's gotta hang out with someone else.......right?

She still doesn't want to go to choir, since they eat dinner there and the menu is either hotdogs with tots (gluten), hamburger with fries (gluten), or corndogs and chips (she can eat the chips.....sometimes), so I bring her food that's gluten free and the kids are either rude to her of stare at her.

So, how are things going better you ask.......

First my friend bought some gluten free food just for Kathryn, more than the animal crackers I bring for them, she got her some rasberry cookies, that are "Kathryn only" they look so fancy and I triple checked them they are for sure gluten free.

Second, the same friend is running VBS this year, and she is making sure that everyone's snack is gluten free and lactose free (there are some children at church with milk allergies)

Third, the church is hiring a new children's minister and her child is alergic to milk, eggs, corn, and might have celiac, so she understands 100% about cross contamination (something that Kathryn is really worried about) and also about making sure nobody is left out when there is food.

and the best thing of all?

A few ladies from my church are starting a brownies group and they are making sure that nobody is ever left out, almost all the girls have some type of restricted diet (celiac, milk allergies, diabetes, ect.) and they are doing a "bring your own snack" rule, so that everyone is "brown bagging it" and the only other time there will be food at the meeting is when they do cooking badge and she can cook something gluten free :D

I guess this is my anti-rant. :P

I do kinda feel like we are avoiding her food issues...anyone else have kids with food issues? what do you suggest I do to try to fix it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

What a POSITIVE outlook. I am so glad that your child is going to be able to mainstream without those looks that so many get (including the adults). These things will go a long way to build her confidence. Thank you for sharing.

penguin Community Regular

I love love LOVE the scouts thing! What a great idea! (I'm not biased or anything :rolleyes: )

Even with a "normal" troop, they'd be ok probably. I know with my own scouts, they're really understanding about the health problems other people have. They may be in the minority, since one of the scouts' dad has ALS and they've been dealing with that since daisies, but scouting tends to breed tolerance. You may even have them go to other troops and educate others about various allergies and diseases (especially in juniors and up as a bronze, silver, or gold award project).

And the cooking badges are SO much fun! I believe strongly that kids should learn how to cook from an early age, celiac or not, because you're going to have to eat every day for the rest of your life.

My 4th graders did theirs on an overnight and I split them into 3 teams: a dinner team, a snack team, and a dessert team, and everyone cooked and everyone cleaned (but the cooks didn't clean their own meal). They did everything themselves, from chopping to sauteeing. Make sure you give the scouts trust, my co-leader squirmed at the thought of 9-10 year olds handling large knives for chopping and slicing, but they did just fine. We don't give kids enough credit for what they're capable of!

OK, now I'm done with MY anti-rant :lol: I just get so excited about scouting! :)

KayJay Enthusiast

oh that is such good news. What a nice church! You said your daughter was 4?

Smunkeemom Enthusiast
oh that is such good news. What a nice church! You said your daughter was 4?

yep, she is 4 and has been gluten free since October of last year.

My other daughter is 2 and has been gluten free since May of 2004 so she is past the "adjustment" and also doesn't really remember eating gluten.

TCA Contributor

I think I'm going to ask my church to go gluten free in the nursery since my kids are still both in there. It's a small church, so they'll be the only ones there sometimes. It would just be so much easier than having to constantly worry. How do you handle the play dough issue though? My 3 year old has been begging for some and I haven't yet been able to make him understand. Any suggestions?

Way to go Smunkeemom! Glad it's getting better. We're getting there too, slowly but surely!

How do all of you handle pot luck dinners at the church? Got one coming up. I don't mind taking a dish to share that is gluten-free, but I worry about CC. Any suggestions?

Smunkeemom Enthusiast
I think I'm going to ask my church to go gluten free in the nursery since my kids are still both in there. It's a small church, so they'll be the only ones there sometimes. It would just be so much easier than having to constantly worry. How do you handle the play dough issue though? My 3 year old has been begging for some and I haven't yet been able to make him understand. Any suggestions?

we make playdough with gluten free flour at church for everyone to use, and at home we make some using peanut butter that's edible (peanuts aren't allowed at the church nursery)

How do all of you handle pot luck dinners at the church? Got one coming up. I don't mind taking a dish to share that is gluten-free, but I worry about CC. Any suggestions?

I usually bring my own spoon for my dish and try to keep an eye on the table to make sure people aren't using it anywhere but there, also I mark the dish "gluten free" so that people know it's special (and shouldn't be contaminated) and also on the off chance that there is a person with celiac disease visiting.

Most of the time they make room for my dish at the front of the table and keep things pretty well away from it, so that there is less chance of dripping.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

you can buy a gluten-free dough from Discount School Supply it's called Colorations

or I have a recipe that works great that you can make at home. I usually make enough for my daughters class at school and provided a small amt. for her sunday school class.

TCA Contributor

I'd love your play dough recipes! Thanks. I've never heard of that store, Nini. I'm in Alabama, so it may not be here. Can you order from them?

I found the play dough on the web! Woo Hoo! Happy day!

Smunkeemom Enthusiast

Peanut butter playdough

* 3 1/2 cups peanut butter

* 4 cups confectioners' sugar

* 3 1/2 cups honey

* 4 cups dry milk powder

1. In large bowl, cream together peanut butter and confectioners' sugar, then beat in honey and fold in milk powder. Divide into 15 equal portions and refrigerate or freeze until ready to use.

It tastes really good, and freezes well.

Also (speaking of freezing) on the same day that I make this I also make gluten free cupcakes and freeze them individually and then when there is a birthday party we are invited to (or a church pot luck) we thaw one out, frost it, and take it with us, that way the girls always have cake whenever others do too :)

mrsnj91 Explorer

Maybe the teachers at your church can read a story about children who are all different and then talk about what makes each child in class different. (The library has some wonderful books for something like this.) Openly pointing out your DD's Celiac and what that means. She can basicly explain it like an allergy so the young children would better understand. Often children respond that way simply because they don't know. They are probably picking up on the fact your DD is "different". Perhaps pointing out what makes her (and the others) special will help the children understand better and be more accepting. Then offer to bring in some safe snacks to share with her friends so they see her food isn't so different. Since it is church you can point out that Jesus loved everyone no matter who they were or what made them "special". Just some thoughts. 4yr olds are pretty much open minded about things like this.

It is wonderful about the changes in the church. It will make her life so much happier.

jenvan Collaborator

Great to hear about the people who are being responsive and solution-oriented to the group outings etc. Thanks for sharing!

Cheri A Contributor

That's wonderful that your friends and church are being so accomodating!!

I wish I knew more people IRL whose kids had allergies so we could band together for a girl scout troop or something. All the food flying is one of hte reasonsthat I have kept my dd out of scouts.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,626
    • Most Online (within 30 mins)
      7,748

    marianmanu
    Newest Member
    marianmanu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.