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Celiac in 20 year old and very light periods

Sammy7

By Sammy7
in Related Issues & Disorders

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Sammy7 Newbie
Sammy7
Posted

Hi 

Does any teenager or someone in their 20s have really light periods with celiac disease. 

Is it something to worry about? 

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Scott Adams Grand Master
Scott Adams
Posted

We've had similar reports, this thread may be helpful:

 

Wheatwacked Veteran
Wheatwacked
Posted

Hi Sammy7

One of the effects of Celiac Disease is malabsorption of essential vitamins and minerals.  Unfortunately it seems that most doctors are happy with, "You have Celiac Disease. Don't eat gluten. Goodbye".  Even on a nutritionally complete gluten free diet, most will still have vitamin D deficiency.  It is more of a cultural thing.  We are advised to avoid sun and when not possible to use sunblock.  Even if you eat liver, beef liver has 42 IU vitamin D in 3 ounces. You would have to eat 30 ounces a day to reach the minimun daily requirement.  Tthough very rare, almost every discussion of vitamin D includes the dire warning of hypervitaminosis.

Find out your 25(OH)D blood concentration to get your baseline.  If you are low maybe the doctor will start you off with a 50,000 IU shot of D2.

Vitamin D is only one of many things that can cause your symptoms.  I understand that some athletes get it from hard training.  Supplementing vitamin D is cheap and easy and safe. It will help, not hurt no matter what your current status.  10,000 IU of D3 a day will eventually get you to 80 ng/ml (range is 30 ng/ml to 150.).  You may be pleasantly surprised to find it was that simple.

Quote

In the Low D group [25(OH)D concentrations below 30 ng/mL],  40% of participants reported menstrual disorders, 27% were classified as having oligomenorrhoea, and 13% as having amenorrhoea. In the Normal D group ]25(OH)D concentrations equal to or above 30 ng/mL] , only two subjects reported menstrual cycle disorders of which one had oligomenorrhoea and one had amenorrhoea.Lower concentrations of 25(OH)D were associated with long cycles (oligomenorrhoea or amenorrhoea). Women who were below the recommendation of 30 ng/mL of 25(OH)D had almost five times the odds of having disorders in menstrual cycles than did women who were above 30 ng/mL.  The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study

 

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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