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Do Drs. actually help at all?

Nitsa

By Nitsa
in Doctors

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Nitsa Apprentice
Nitsa
Posted

A dr suspected i had a gluten issue 7ish yrs ago. Now I've no dr. I read here how a dr told someone to take Beano & it's not gluten free & when i called Beano, they said it was. Now i wonder if THAT'S making me worse. Seems there's nothing i can eat & it's scary feeling drained & unable to even drink water at times. Even labeled gluten free rice made me sick. So if, IF I can get a dr, will it be a waste of time & confusing & I'll end up doing the same as I'm doing now--seeing what foods i can eat by the reaction? 

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Scott Adams Grand Master
Scott Adams
Posted

If you are still having issues after 7 years on a gluten-free diet, you should definitely consider going to your doctor about this.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

Nitsa Apprentice
Nitsa
Posted
  • Author
17 minutes ago, Scott Adams said:

If you are still having issues after 7 years on a gluten-free diet, you should definitely consider going to your doctor about this.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

I don't have a dr currently. That's why i asked. Also, i only just went gluten-free recently & tryna sort things out. Thnx

Nitsa Apprentice
Nitsa
Posted
  • Author

I've a diary that lists EVERYTHING. What i eat, drink, meds, how i feel, did i bellyrub... EVERYTHING. Kept it since the start. I'm always looking to see what's ok & not.  I keep adding foods that were ok to the not ok list.

Scott Adams Grand Master
Scott Adams
Posted

It's great that you've been keeping a food diary, and this will be very helpful for you to identify foods that cause your issues. Many people who are gluten sensitivity also have additional food sensitivities. 

knitty kitty Grand Master
knitty kitty
Posted

@Nitsa, welcome to the forum!

You may feel better taking Betaine Hydrochloride or DAO (Diamine Oxidase) supplements, both are digestive enzymes.  

With digestive enzyme supplements, food gets digested better.  Poorly digested carbohydrates, like your gluten free rice, get digested by intestinal bacteria with gas and bloating as a result.  

You can also try a Paleo diet, just meat and veggies, for several weeks in order to starve out the carbohydrate loving bacteria.  If you change your diet, you change the intestinal bacteria, your microbiome.

Keep us posted on your progress!

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    • Francis M
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      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
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      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
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      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
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      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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      The Happy Tart review

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      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my wife, to realize we can't patronize the place anymore.
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