Do Drs. actually help at all?

[Nitsa]

A dr suspected i had a gluten issue 7ish yrs ago. Now I've no dr. I read here how a dr told someone to take Beano & it's not gluten free & when i called Beano, they said it was. Now i wonder if THAT'S making me worse. Seems there's nothing i can eat & it's scary feeling drained & unable to even drink water at times. Even labeled gluten free rice made me sick. So if, IF I can get a dr, will it be a waste of time & confusing & I'll end up doing the same as I'm doing now--seeing what foods i can eat by the reaction? 

[Scott Adams]

If you are still having issues after 7 years on a gluten-free diet, you should definitely consider going to your doctor about this.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

[Nitsa]

17 minutes ago, Scott Adams said:

If you are still having issues after 7 years on a gluten-free diet, you should definitely consider going to your doctor about this.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

I don't have a dr currently. That's why i asked. Also, i only just went gluten-free recently & tryna sort things out. Thnx

[Nitsa]

I've a diary that lists EVERYTHING. What i eat, drink, meds, how i feel, did i bellyrub... EVERYTHING. Kept it since the start. I'm always looking to see what's ok & not.  I keep adding foods that were ok to the not ok list.

[Scott Adams]

It's great that you've been keeping a food diary, and this will be very helpful for you to identify foods that cause your issues. Many people who are gluten sensitivity also have additional food sensitivities. 

[knitty kitty]

@Nitsa, welcome to the forum!

You may feel better taking Betaine Hydrochloride or DAO (Diamine Oxidase) supplements, both are digestive enzymes.  

With digestive enzyme supplements, food gets digested better.  Poorly digested carbohydrates, like your gluten free rice, get digested by intestinal bacteria with gas and bloating as a result.  

You can also try a Paleo diet, just meat and veggies, for several weeks in order to starve out the carbohydrate loving bacteria.  If you change your diet, you change the intestinal bacteria, your microbiome.

Keep us posted on your progress!