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These are the tests the VA is doing?

hayley3
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hayley3 Contributor
hayley3
Posted

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

  • hayley3 changed the title to These are the tests the VA is doing?
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hayley3 Contributor
hayley3
Posted
  • Author
10 minutes ago, hayley3 said:

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

frieze Community Regular
frieze
Posted
16 hours ago, hayley3 said:

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

Since your biology is positive,  you need NO further testing! Commence gluten free.  From reading other of your posts, also low tyramine,  which is no fun either!  If you need help, try migraine sites. 

hayley3 Contributor
hayley3
Posted
  • Author

Thanks...I was hoping a healed stomach could process the tyramine better.

frieze Community Regular
frieze
Posted
On 2/1/2024 at 8:54 AM, hayley3 said:

Thanks...I was hoping a healed stomach could process the tyramine better.

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

hayley3 Contributor
hayley3
Posted
  • Author
49 minutes ago, frieze said:

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

I've been trying since 2006 to fix my microbiome.  I knew something was off.  I was dx'd with SIBO by endoscopy.  But now that I know I have celiac, that explains why I never could get better, no matter what I did even water fasting which did help briefly but then I'd eat wheat again. 

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    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

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      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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