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These are the tests the VA is doing?


hayley3

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hayley3 Contributor

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

  • hayley3 changed the title to These are the tests the VA is doing?

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hayley3 Contributor
10 minutes ago, hayley3 said:

Endomysial AB, IgA

Immunoglobulin A, QN

Tissue Transglutaminase IgA

Anti-Gliadin Profile

If the Endomysial test comes back negative does that negate the positive biopsy?

 

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

frieze Community Regular
16 hours ago, hayley3 said:

Since I can't edit 30 seconds after posting...the biopsy was a skin biopsy for Dermatitis Herpetiformis.

Since your biology is positive,  you need NO further testing! Commence gluten free.  From reading other of your posts, also low tyramine,  which is no fun either!  If you need help, try migraine sites. 

hayley3 Contributor

Thanks...I was hoping a healed stomach could process the tyramine better.

frieze Community Regular
On 2/1/2024 at 8:54 AM, hayley3 said:

Thanks...I was hoping a healed stomach could process the tyramine better.

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

hayley3 Contributor
49 minutes ago, frieze said:

Look into microbiome. Tyramine can be produced to excess in the small intestine if the bacteria is not balanced properly.

I've been trying since 2006 to fix my microbiome.  I knew something was off.  I was dx'd with SIBO by endoscopy.  But now that I know I have celiac, that explains why I never could get better, no matter what I did even water fasting which did help briefly but then I'd eat wheat again. 

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    • nanny marley
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      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
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    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
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