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Is it gluten in sorbitol, mannitol, xylitol??


Lindquist

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Lindquist Contributor

I have bought some b12 supplements in tablet form, it has sorbitol and xylitol in that. I wondering if that from wheat and has gluten in it? I get stomach pain of it. 

And my other b12 doctor prescribe out for me is made of mannitol. Even make me worse.

I haven't been active since 1 april 2023 , have been so busy with work sorry.


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Scott Adams Grand Master

Alcohol sweeteners are usually gluten-free, but they are a very common cause of IBS-like symptoms in many people. We have an article on this topic that will be published on Celiac.com this Saturday.

  • 2 weeks later...
Lindquist Contributor

Is there a connection between histaminintolerance and celiac too?

Scott Adams Grand Master

There is some evidence to suggest a potential connection between histamine intolerance and celiac disease, although the relationship is not fully understood. Histamine intolerance occurs when there is an imbalance between histamine levels in the body and the body's ability to break down histamine. This can lead to symptoms such as headaches, digestive issues, skin rashes, and respiratory problems.

Celiac disease, on the other hand, is an autoimmune condition triggered by the ingestion of gluten, a protein found in wheat, barley, and rye. While celiac disease primarily affects the digestive system, it can also cause systemic symptoms and affect other parts of the body.

Some researchers have suggested that individuals with celiac disease may be more prone to histamine intolerance due to disruptions in the gut microbiome and increased intestinal permeability (leaky gut) associated with celiac disease. Additionally, some foods that are high in histamine, such as aged cheeses and fermented foods, may also contain gluten, which could exacerbate symptoms in individuals with celiac disease.

However, more research is needed to fully understand the relationship between histamine intolerance and celiac disease, as well as the mechanisms underlying any potential connection.

Scott Adams Grand Master

Here is the article:

 

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    • FayeBr
      Thank you for your reassurance. It can sometimes feel very lonely with this disease and a constant battle. The product was Gaviscon Advance Aniseed which I was taking every day due to having gastritis from my gluten exposure. It states on the leaflet that it does not contain gluten. So I thought I was safe. But my symptoms were getting worse each day, causing me to take more gaviscon. I was in a spiral without knowing it. I knew that nothing else had changed for me other than the product. I emailed the company and was informed that although there were no gluten ingredients, they don’t test for gluten and can’t guarantee that it doesn’t contain gluten from the manufacturing process. I stopped it immediately, which was difficult as my gastritis was awful. My symptoms began to improve slightly as they do each day. Yesterday my reflux type symptoms were less too. But it is a slow road to recovery this time as I have said. I have been ill now for 2 months and 2 and a half weeks into recovery.  I am in the UK and find it hard to understand how medication can hide ingredients nowadays, with all allergies and intolerances. I react to soy too like gluten and I ask my gp for meds that are soy and gluten free. They then say to ask the pharmacist. I ask the pharmacist who tells me that it is for me to read the ingredients on the information leaflet. Where do you go from there? Also I ask the gp for a prescription to pay and get compounded meds privately and they refuse. I don’t understand why the pharmaceutical industry are not made to list the top allergens and all ingredients simply and transparently.  But thank you again for your advice. I feel like I have lost the last few months. Literally too with the brain fog and memory loss. You’re so right about the feeling of helplessness. Onwards and upwards! 
    • Scott Adams
      Thank you so much for sharing your story with such honesty and detail. Please know that you are not alone in this struggle, and your experience, while incredibly challenging, is more common than those "gluten-free miracle" stories on social media would have you believe. It's completely understandable to feel isolated, but your diligence in tracking your symptoms, following up with scopes, and working with professionals is truly commendable. It's encouraging that your villi have healed, which proves you are successfully avoiding the large-scale damage of gluten; however, it's clear your immune system remains in a heightened state of alert. Your intense reaction to the quinoa flakes is a classic sign of this hypersensitivity. Given the reputable brand, it's highly unlikely to be gluten cross-contact. It's much more probable that you are reacting to the quinoa itself—perhaps due to a separate intolerance, its saponin content (which can irritate some sensitive guts), or cross-reactivity, where your immune system mistakes similar protein structures for gluten. Your nutritionist's plan for a simplified, grain-free (except rice) baseline is an excellent strategy. The goal is to calm your nervous and immune systems down completely before slowly testing individual foods, like avocado or even quinoa in its whole form, to identify the true triggers. Remember, healing from years of damage takes time, and setbacks are part of the journey. Be kind to yourself; you are doing everything right by continuing to investigate and advocate for your health. Your path to feeling better may be more complex, but it is absolutely valid.
    • Scott Adams
      When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. There are a couple of things that can help you feel like you have "regained control," and the two that I recommend are learning to read ingredient labels so that you can shop with confidence, and the other is learning to become a good cook (if you aren't already). If you can master these two, then you have regained control of your diet, and can eat safely and recover. To help this site has extensive recipes and cooking sections: https://www.celiac.com/celiac-disease/gluten-free-recipes/ https://www.celiac.com/celiac-disease/gluten-free-cooking/ The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.        
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      Thanks for sharing this! Bread machines are still the way to go if you want outstanding gluten-free breads.
    • Scott Adams
      What you've described is every celiac's nightmare, and it's very frustrating to be failed by a product that was specifically labeled as safe. It would be great to know which product it was so others here can be warned. Six weeks of inadvertent exposure is a significant insult to your system, and it's no wonder that after two weeks you are still feeling the effects. The body, especially the nervous system when dealing with ataxia, needs considerable time to calm the inflammatory response and begin to heal. It's common for a major glutening to take several weeks to even a few months for symptoms to fully resolve, so be patient and gentle with yourself—you are on the right track. The anxiety and panic are also a very real, physiological part of the reaction for many of us, compounding the feeling of helplessness. What you're feeling is not a step back to your pre-diagnosis state; it's a severe but temporary flare. Focus intensely on the basics now: rest, hydration, and simple, whole foods. You have not undone all your progress. Your body remembers how to heal; it just needs time and a safe environment to do so. You are not alone in this.
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