Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

transglutaminase IGA Ab still present, but low

Darcee
 Share

Recommended Posts

Darcee Newbie
Darcee
Posted

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DonnaNM Rookie
DonnaNM
Posted

I'm not a doctor.  However, my blood doctor told me because I have Celiac disease the antibodies will always be present.  So don't panic, but discuss it with your doctor.  

Scott Adams Grand Master
Scott Adams
Posted

For some people there are other conditions that can cause elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA). This article discusses them:

 

 

Raquel2021 Collaborator
Raquel2021
Posted
21 hours ago, Darcee said:

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

If greater than 15 is normal then I think is normal to still have a few antibodies.  I recently did mine, being gluten-free for 3 years and follow a similar style diet and mine were 7. My Dr told me that was good.

Jane07 Enthusiast
Jane07
Posted

do you think if it below 15 it not consided postive for celiac in the lab

Darcee Newbie
Darcee
Posted
  • Author
42 minutes ago, Jane07 said:

do you think if it below 15 it not consided postive for celiac in the lab

I do not understand what you wrote.  I know that greater than 15 from this lab indicates Celiac.  However, I've had my daughter tested (to make sure she doesn't have it) and her value from the lab was <1.  Mine was 3.6 so I was just wondering if it's normal to still have antibodies present regardless of your gluten free diet (14 years) or if having any antibodies present (less than 15) means you are still reacting to gluten from an unknown source then.  

Jane07 Enthusiast
Jane07
Posted
On 2/13/2024 at 11:33 PM, Darcee said:

I've been gluten free for 14 years now and recently (last 2 years) did a full elimination and re-introduction following the AIP protocol and am now essentially eating paleo plus rice.  The rest of my household is not gluten free however.  I had my transglutaminase IGA ab tested and it was 3.6.  Greater than 15 is considered positive for Celiac on this lab.  However, the fact that I have had a VERY clean diet for the last 2 years and still have antibodies present makes me concerned.  Do you think I'm getting cross contamination from touching gluten products in my house or does that value of 3.6 mean nothing?  I would just assume if I'm not exposed to any more gluten I should've have any antibodies at all.  Thanks for any advice!

ok thanks its not in the normal range for me yet. its just been about a year on a gluten free diet it difficult,  

im  hope things improve i get  to the normal range. i will keep trying.

wow you done it for 14 yrs good luck

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

If your goal is to get the level near zero you may try a casin/milk-free diet to see if that works, as per the article I shared.

Rogol72 Community Regular
Rogol72
Posted

I had a coeliac panel last year to see if any sneaky gluten was getting into my system, the ttg result was 3.1.

I had another done last week, and it came down to 1.7.

flowerpen Newbie
flowerpen
Posted
On 2/13/2024 at 11:23 PM, DonnaNM said:

I'm not a doctor.  However, my blood doctor told me because I have Celiac disease the antibodies will always be present.  So don't panic, but discuss it with your doctor.  

I thought it was normal, as in for non- celiac individuals, to have these antibodies. I've been mostly gluten free for years, operating under the assumption I had an intolerance, and I have always landed in the mid-normal range (7-10 with 20 being the cutoff). 

Is it normal for non-celiacs to have none or almost none?

Scott Adams Grand Master
Scott Adams
Posted

The antibodies used in celiac disease screening are very specific to people who have an autoimmune reaction to gluten, so those without celiac disease or gluten sensitivity normally test at or near zero.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      They both do. The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less...
    2. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    3. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    4. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    5. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748
    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.