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Celiac Disease Quiz #4 - Dietary Compliance


Scott Adams

Celiac Disease Quiz #4 - Dietary Compliance  

320 members have voted

  1. 1. Have you been diagnosed with celiac disease, or need to be on a gluten-free diet due to non-celiac gluten sensitivity?

    • YES
      306
    • NO
      7
  2. 2. Do you eat out in restaurants?

    • YES
      247
    • NO
      66
  3. 3. Do you ever eat at the houses of friends or relatives?

    • YES
      233
    • NO
      80
  4. 4. How strict are you with regard to your gluten-free diet?

    • Extremely strict
      179
    • Very strict
      85
    • Strict
      40
    • Not very strict
      9
    • Not strict at all
      0
  5. 5. Do you ever cheat on your gluten-free diet?

    • YES
      63
    • NO
      250
  6. 6. If you cheat on your gluten-free diet, how often do you do this?

    • Zero - I never cheat
      241
    • 1-6 times per year
      46
    • 7-12 times per year
      10
    • 13-25 times per year
      10
    • 25 times or more per year
      6
  7. 7. How difficult is it for you to maintain a 100% gluten-free diet?

    • Extremely difficult
      55
    • Very diffilcult
      81
    • Difficult
      91
    • Not difficult
      75
    • Easy
      11
  8. 8. Do you avoid travel or trips because of your gluten-free diet?

    • YES
      129
    • NO
      184
  9. 9. Are you satisfied with the availability and quality of gluten-free foods?

    • YES
      91
    • NO
      222
  10. 10. Do you seek out gluten-free foods with a gluten-free certification?

    • YES
      278
    • NO
      35
  11. 11. Do you seek out foods with "gluten-free" on their label?

    • YES
      304
    • NO
      9
  12. 12. Do you include foods in your diet that say "Made in a facility that includes wheat," or "Made on equipment that processes wheat products"?

    • YES
      87
    • NO
      226
  13. 13. Do you understand ingredients on packaged foods well enough to spot hidden gluten ingredients?

    • YES
      201
    • NO
      112
  14. 14. Do you trust restaurants that provide a gluten-free menu?

    • YES
      110
    • NO
      203
  15. 15. Would you travel more if you didn't need to be on a gluten-free diet?

    • YES
      207
    • NO
      106

This poll is closed to new votes


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Scott Adams Grand Master

Dietary Compliance


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    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
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