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Getting glutened symptoms


Aya77
Go to solution Solved by rautioj,

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Aya77 Rookie

Hello to all!

How long after getting glutened do you notice first symptoms? Especially those who have dizziness and balance problems.

I can’t pinpoint the culprit this time. In last 24 hours I haven’t eaten anything risky accept flat white and gluten-free muffin packed in plastic in Starbucks, for which I doubt it could be the culprit.


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  • Solution
rautioj Newbie

I have similar symptoms and often don’t experience symptoms for a few days or up to a week. Which makes it really hard to identify what I was glutened by.  And my symptoms seem to last for awhile once they start.

Scott Adams Grand Master

This varies greatly from person to person--some get symptoms within minutes, and for others it takes hours or even days.

This article, and the comments below it, may be helpful:

 

 

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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