Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food sensitivity testing? Worth it?


HilaryM

Recommended Posts

HilaryM Rookie

Hi all, it’s been about 7 months since I was diagnosed and stopped eating gluten. I’m strict and rarely eat anywhere but home but symptoms persist - fatigue, easily upset stomach, etc. one doc said to do food testing to see if there’s anything else I should cut out (dairy probably) but another said good testing is basically useless. Any thoughts? Insurance won’t cover it and it’s expensive so I’m leaning toward no but wonder if I should cut out dairy. Literally makes me want to cry on top of gluten also. Just tired of feeling as fatigued as I would when I was eating gluten (my main symptom). Plus I have pain in one hand that comes and goes and unsure if it’s related? 
 

thanks for any insight! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

I have had food allergy testing done and have mixed feelings about it. First, realize there is more than one method of doing it so you need to look into that. There is skin prick testing and there are blood tests. What is interesting is that you can compare the results from various kinds of testing and they can be significantly different. But there is usually some overlap as well. Typically, there are some false positives that can happen through cross contamination of the antigens used or just the fact that actual symptoms don't match test results. The other issue is that the list of offending foods that accrues from the testing can be quite long and encompass many common everyday foods that are difficult to avoid or difficult/unhealthy to drop from one's diet. I mean you have to eat something to stay alive! The testing will rank the degree of reaction of the different offending foods such as "high", "medium", "low". Focus on the strongest offenders would be one recommendation I have and also pay attention to how your symptoms line up with the test results if you decide to get this done. I would also push the ALCAT food sensitivity test as perhaps the most helpful: 

 

Edited by trents
Beverage Proficient

I had it done at the time that I was tested for Celiacs (blood testing only). My celiacs tests were super high positive, and all the attention went to that. The super high dairy results got ignored. But recently I inhaled some mold, and I got really sick, couldn't get into my doc for awhile, so I went back and reviewed those old blood test results, thought "oh yeah, the dairy!"  I cut out dairy for about a month waiting for that doc appointment, and lordie, a lot of my sinus issues since the mold exposure reduced dramatically.

On blood tests, they're only going to show anything for foods you are eating. If you aren't eating it, you won't have the antibodies? or whatever it is, in your blood, so an issue won't show up in the tests.  But yeah, the testing can point you in a direction you need to explore for things you are currently eating. 

Without doing the testing, you can research what are the most common issues with people (grains, dairy, alcohol, etc.) and try eliminating one by one for a period of time each to see if you notice any improvements.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.