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Newly dignosed Celiac


Rubii
Go to solution Solved by Wheatwacked,

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Rubii Newbie

Hi everyone, i was a symptomtic, i went to dr for fittness, he checked my last lab test after my Recent delvry i had iron deficiency anemia, i didnt took any suppliments for that, he sent my labs again along with ttg iga level, its came positive250, it was big shock for me, they did further test antiglidin, antiendomysial along with endoscopy biopsy , genetic testing within 10 days, all blood test came positive but biopsy is normal, since 15 days um gluten free totally, but  after going gluten free i feel stomach pain, almost every day , is it normal , if it is normal how long it will go


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trents Grand Master

Welcome to the forum, Rubii!

A normal biopsy despite having classic celiac symptoms and a high score on the TTG-IGA antibody test could be cause by a couple of things. One, your celiac disease could have been caught at an early stage before enough time had lapsed for damage to be done to the villous lining of the small bowel. Second, and this is more common than you think, the damage is patchy and the biopsy samples missed the affected sections of the duodenum and bowel. Many doctors doing the scoping do not take enough samples from various areas, i.e., the biopsy process is not thorough enough.

There is quite a learning curve involved in achieving a truly gluten free diet. Gluten is found in food items you would never expect it to be. It is easy to cut out the large sources of gluten but it's the hidden ones that trip the beginner up. Also, many celiacs react to dairy the same way they do gluten and oats as well. The proteins in these two foods are similar to gluten. I offer this primer: 

 

Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

 

Rubii Newbie

I didnt have  symptoms, i just went for my job fittness and all this happen, my test came positive, so it was big shock for me to have disease without symptoms, further after going gluten free i feel dizziness, abdominal cramps on off, anxiety, depression, crying episodes. 

trents Grand Master

Sorry, in your first post you typed "a symptomatic" instead of "asymptomatic" so I misunderstood what you were saying. But anemia is a classic symptom of celiac disease.

  • Solution
Wheatwacked Veteran

Hello @Rubii,

Since gluten is addictive and effects the opoid rececptors, some people have a withdrawal that lasts 10 to 15 days.  When alcohol or substance use is halted, the brain is forced to readjust to its sudden absence. This leads to unpleasant physical and mental withdrawal symptoms. Diarrhea, stomach pain, and vomiting are often experienced by people going through withdrawal from opioids and other drugs.

Vitamin and mineral dificiencies are common and each has a set of symptoms.

Vitamin D deficiency is ubiquitous in newly diagnosed celiac disease.

Gluten containing processed food has some vitamins and minerals added to support the nutrients lost in milling.  There typically is no fortification to Gluten Free foods, so we need to be more aware. Low D compromises immune system, Thiamine and the other 7 B vitamins, Choline was B4 and is essential to fat digestion, deficiency can cause gallbladder symptoms.

 

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    • Scott Adams
      First off, I’m so sorry you’ve been dealing with this for so long—being sick for half your life is unimaginably tough, and it’s huge that you’ve finally gotten some answers. A celiac diagnosis can feel overwhelming (especially on top of being vegan!), but it’s also a turning point. Your body is about to start healing, and that’s hopeful! This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it is likely your villi healed, but if you are exposed to gluten regularly again the damage will likely come back and cause some potentially serious health issues.
    • CeliacNew
      Hey yall! I am dealing with a new diagnosis. I have been sick in some sort of way for 10 years. I am 22. I can’t remember a time in the last decade I have not had some strange symptom. This last year it got way worse. I lost 40 pounds and had to drop out of school. I ended up getting and endo and blood tests and got positive results for celiac. I am looking for advice of ANY type. I am vegan so this is a big adjustment to add this to my diet. Thansk fro the help. 
    • sheba
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    • Scott Adams
      Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 weeks into the challenge, it’s possible more symptoms could reappear if you continue. Celiac testing (bloodwork and endoscopy) is most accurate after a full 6 weeks of gluten, so sticking with it for now is wise. That said, your joint/tendon issues (especially the Achilles stiffness) are interesting—they can be linked to celiac disease or other autoimmune conditions (like rheumatoid arthritis or even reactive arthritis). Have you been tested for celiac antibodies yet? If not, that’s the next step. If the tests come back negative, NCGS or another immune-related issue (like FODMAP intolerance or mast cell activation) might still be at play. It’s also worth noting that recurrent miscarriage and elevated liver enzymes can be linked to celiac (it’s often underdiagnosed in women with ‘atypical’ symptoms like yours). But if celiac is ruled out, a rheumatologist or a gastroenterologist who specializes in immune-related GI issues might help explore other possibilities (like Hashimoto’s, Sjögren’s, or connective tissue disorders). Hang in there—it’s frustrating not to have clear answers, but you’re doing all the right things by paying attention to your body and pushing for testing. Keep us posted on how the rest of your gluten challenge goes!
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