Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ore Ida Tater Tots Gluten


NimaWishing

Recommended Posts

NimaWishing Newbie

My daughter is a super sensitive Celiac, and she was just glutened by Ore Ida Tater Tots, which are labeled gluten-free on front of the bag, but not certified on 9/25/24. We will not eat anymore Ore Ida until they are certified.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, @NimaWishing! You may already know this but the difference between "Gluten Free" and "Certified Gluten Free" is the difference between having less than 20 ppm and less than 10 ppm. "Gluten Free" is an FDA standard and "Certified Gluten Free" is a standard of the GFCO, a nongovernmental third party certifying organization recognized internationally. 

Edited by trents
knitty kitty Grand Master

Welcome to the forum, @NimaWishing,

I cannot tolerate Ore Ida Tater Tots either.   Ore Ida Tots contain corn, which some Celiacs, like me, react to.  Those Tots also use Sulfites to keep the potatoes from discoloration and to promote browning.  Some Celiacs, like me, develop a Hypersensitivity to Sulfutes in foods and medications.   

I buy store brand tater tots which don't contain those fancy expensive additives and they are cheaper.  No gluten free certification, but no gluten nor corn nor Sulfate ingredients either.  

Hope this helps!

SunshineV Newbie

@NimaWishing That is interesting that you mentioned the tater tots.  I have a very serious case of celiacs, diagnosed 1 month ago and still feel sick, have abdominal pain etc. even after adhering to eating gluten free and not eating out.  

question for you…Is there any chance it could be from something else your daughter ate? Is your house gluten free? Are you cooking the tater tots on a pan or fryer that had been used for gluten items previously?

There is no judgement at all, I’m just asking because for me personally( per my dr.) someone could leave a crumb on the counter and it accidentally gets in my food I will be glutened. 

My question for all is…. when a product like “Simply Mills” cookies are Certified gluten free, which I do eat..

how can it truly be safe if the box also says (made on a line that also processes tree nuts and wheat)??

On another note, This puts me back in panic mode because it’s impossible to find all your ingredients certified and what if it’s like the cookies and is certified ??

Prayers for your daughter! I’m so sorry she has to go through this.

I hope you all have a blessed day and feel good!


 

trents Grand Master

Are you aware that the food labels "Gluten Free" and "Certified Gluten Free" are not equivalent? And are you aware that neither of them actually mean there is no gluten in the product, just that the gluten level is below a certain level? Gluten Free is an FDA designation indicating there should be less than 20 ppm of gluten and Certified Gluten free is a GFCO designation indicating the product should have less that 10 ppm of gluten.

Scott Adams Grand Master

While anything is possible, I'd like to still defend Kraft-Heinz and their Ore-Ida Tater Tots with regard to gluten. Kraft-Heinz has, for well over a decade, had an excellent allergen policy where they disclose any possible allergens on their labels. If you are having issues with them, could it be due to another intolerance/sensitivity?

Their regular Tater Tots don't have gluten-free on their label, but also do not disclose wheat as an allergen, and here are the ingredients, with "Natural Flavors" being the only one that is suspicious:

Regular Tater Tots:

Quote

POTATOES, VEGETABLE OIL (SUNFLOWER, COTTONSEED, SOYBEAN AND /OR CANOLA), SALT, YELLOW CORN FLOUR, DEXTROSE, SODIUM ACID PYROPHOSPHATE, DEHYDRATED ONIONS, SODIUM SULFATE, NATURAL FLAVORS.

Their Crispy Tater Tots do say gluten-free on their label, so perhaps go for the Crispy version? The Crispy version also includes Natural Flavors, so I doubt the Natural Flavors would be a source of gluten:

Crispy Tater Tots:

Quote

POTATOES, VEGETABLE OIL BLEND (SOYBEAN AND COTTONSEED), SALT, CORN FLOUR, DEXTROSE, DEHYDRATED ONION, SODIUM ACID PYROPHOSPHATE (TO RETAIN NATURAL COLOR), NATURAL FLAVOR.

image.png

knitty kitty Grand Master

This is the label from my store brand "tater bites" :

"Potatoes, Vegetable Oil (Contains One or More of the Following Oils: Canola, Soybean, Cottonseed, Sunflower, Corn). Contains 2% or Less of Modified Corn Starch, Dehydrated Onion, Dextrose, Salt, Sodium Acid Pyrophosphate (To Promote Color Retention).

Allergen Info
Free from Does Not Contain Declaration Obligatory Allergens."

 

These do not contain corn flour nor Sodium Sulfate.   It does contain a small amount of corn starch.  

Some people can react to the corn protein, zein, in a way similar to gluten.   I react to corn as well as to gluten.   Following a Paleo diet or simply removing all grains from the diet while healing after diagnosis can help reduce the risk that the body will react to other carbohydrate proteins in corn and oats.

 

References:

The Prevalence of Anti-Zein Antibodies: A Comparative Study between Celiac Disease and Irritable Bowel Syndrome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7922782/

Prolamins of maize and wheat differentially affect intestinal cells both in biopsies of celiac patients and CACO-2 cell line

https://www.tandfonline.com/doi/full/10.1080/09540105.2015.1086316#abstract

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunshineV Newbie

@trents Yes , My Dr made me fully aware of everything you said.
It just seems kind of sneaky in a way though that a company can say they are certified yet, they have food lines with wheat??

It makes me wonder if products that may not be certified but that do not produce any gluten type products may in actuality be better… Does that make sense…

knitty kitty Grand Master

Yes, a company that has dedicated lines where gluten is never processed on it is optimal.

trents Grand Master
17 hours ago, SunshineV said:

@trents Yes , My Dr made me fully aware of everything you said.
It just seems kind of sneaky in a way though that a company can say they are certified yet, they have food lines with wheat??

It makes me wonder if products that may not be certified but that do not produce any gluten type products may in actuality be better… Does that make sense…

Yes, it does make sense.

Scott Adams Grand Master
17 hours ago, SunshineV said:

@trents Yes , My Dr made me fully aware of everything you said.
It just seems kind of sneaky in a way though that a company can say they are certified yet, they have food lines with wheat??

It makes me wonder if products that may not be certified but that do not produce any gluten type products may in actuality be better… Does that make sense…

I am not sure where you are getting "they have food lines with wheat" for these products, as Kraft-Heinz has always declared any major allergens on their labels, including if a product is made in a facility that makes wheat products. Also, even their Crispy Tater Tots are not certified gluten-free, but are labeled gluten-free.

SunshineV Newbie

@Scott Adams I wasn’t referring to Kraft Heinz. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,421
    • Most Online (within 30 mins)
      7,748

    john rands
    Newest Member
    john rands
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.