Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently diagnosed with Celic disease


Babygirl877

Recommended Posts

Babygirl877 Newbie

hi I’m Stephanie from Saginaw Michigan. I was recently diagnosed with Celic disease this month march 2025 on the date of the 17th I was scared my body was trembling from crying after I tmi threw up blood with undigested food. I thought that night that I was dying I texted my family and my close friends and my boyfriend scared. They told me to go in when they found me in the bathroom shaking leaning up against the bathroom wall with my hand over my mouth I’m 37. A year and a half ago I was diagnosed with diabetic gastropresis another problem that I didn’t want to ever have. The same night I was diagnosed with Celic disease  guess they had diagnosed me with gastritis which is another symptom of gastropresis. I am scared but as long as I have God my fam and my boyfriend by my side it helps me calm down. In other ways I know I’ll be ok. Everything has to be gluten free and I’m gonna try nervous and scared don’t know what to expect from this journey. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the  forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help: 

 

Babygirl877 Newbie

Thank you so much 

Scott Adams Grand Master

Hi Stephanie, I’m so sorry you’ve been going through such a frightening and overwhelming time. A celiac diagnosis on top of gastroparesis and gastritis is a lot to process, and your feelings are completely valid. It’s wonderful that you have such a strong support system—leaning on them (and your faith) will make this journey easier. The gluten-free transition can feel daunting at first, but it does get better with time, and many people find relief once their body heals. You’re not alone in this! Sending you so much strength as you navigate these changes.

Babygirl877 Newbie

Thank you I know I will be ok and it’s a journey but I think gluten free lifestyle will help me with a little weight loss as well cause I struggle with this everyday. We don’t know what’s gonna be thrown at us.

Scott Adams Grand Master

If you replace the gluten products you normally ate with gluten-free versions, and I mean the breads, be careful, as many gluten-free products can be high in calories and low in nutrients (high carb).

  • 2 weeks later...
Kathleen Mostek Newbie

I just moved from Bay City. With gastritis, I found that conventional meds (Pepcid, pro tonic, sucrafate) made it worse. Peppermint tums (gluten free) saved me. There are additives in all meds. “Off the Wheaten path”, in Midland, is a drive for you….great sweets. Baynes in Freeland carries some “Third Coast” items, delicious! I also order from them, they are in Traverse City. 

You  have to keep a food diary! Even if you have been eating the same brands, keep checking labels.

Cosmetics, toothpaste both caught me! Even lip-balms. Pinterest has a lot of gluten-free tips and menus. There are apps that help you find eating establishments in your area.

lastly, hang in there….soon it won’t feel like a burden!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Help needed

    2. - trents replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice please

    3. - Russ H replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Confused about my results

    4. - Katiexox posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice please

    5. - Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,635
    • Most Online (within 30 mins)
      7,748

    skunk
    Newest Member
    skunk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the...
    • trents
      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity). 
    • Russ H
      There is a good paper here on causes of seronegative villous blunting. The most common is seronegative coeliac disease. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Katiexox
      Desperately in need of some advice of possible 🫠 (sorry for the long post but I’m one exhausted mama) My daughter is just gone 2 years old, for as long as I can remember she’s had problems with her stomach, she was diagnosed with a Dairy and Soy allergy so has been dairy and soya free since around 7 weeks old. I’ve been begging the doctors to listen to me and to look into it, I came across celiac disease a few months ago and pushed for her to be tested. Some of her symptoms are  - Extreme stomach pain, she’s never had a night where she isn’t rolling around in her bed screaming in pain (not just a cry, she will be fast asleep and then let out a high pitch scream and start crying) this...
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  When I looked this one up I didn't see any gluten ingredients.
×
×
  • Create New...