Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently diagnosed with Celic disease


Babygirl877

Recommended Posts

Babygirl877 Newbie

hi I’m Stephanie from Saginaw Michigan. I was recently diagnosed with Celic disease this month march 2025 on the date of the 17th I was scared my body was trembling from crying after I tmi threw up blood with undigested food. I thought that night that I was dying I texted my family and my close friends and my boyfriend scared. They told me to go in when they found me in the bathroom shaking leaning up against the bathroom wall with my hand over my mouth I’m 37. A year and a half ago I was diagnosed with diabetic gastropresis another problem that I didn’t want to ever have. The same night I was diagnosed with Celic disease  guess they had diagnosed me with gastritis which is another symptom of gastropresis. I am scared but as long as I have God my fam and my boyfriend by my side it helps me calm down. In other ways I know I’ll be ok. Everything has to be gluten free and I’m gonna try nervous and scared don’t know what to expect from this journey. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the  forum, @Babygirl877! You may find that your gastritis and your gastroparesis improve once you begin following a gluten free diet consistently. But to arrive at consistency in eating gluten free can involve a real learning curve. This might help: 

 

Babygirl877 Newbie

Thank you so much 

Scott Adams Grand Master

Hi Stephanie, I’m so sorry you’ve been going through such a frightening and overwhelming time. A celiac diagnosis on top of gastroparesis and gastritis is a lot to process, and your feelings are completely valid. It’s wonderful that you have such a strong support system—leaning on them (and your faith) will make this journey easier. The gluten-free transition can feel daunting at first, but it does get better with time, and many people find relief once their body heals. You’re not alone in this! Sending you so much strength as you navigate these changes.

Babygirl877 Newbie

Thank you I know I will be ok and it’s a journey but I think gluten free lifestyle will help me with a little weight loss as well cause I struggle with this everyday. We don’t know what’s gonna be thrown at us.

Scott Adams Grand Master

If you replace the gluten products you normally ate with gluten-free versions, and I mean the breads, be careful, as many gluten-free products can be high in calories and low in nutrients (high carb).

  • 2 weeks later...
Kathleen Mostek Newbie

I just moved from Bay City. With gastritis, I found that conventional meds (Pepcid, pro tonic, sucrafate) made it worse. Peppermint tums (gluten free) saved me. There are additives in all meds. “Off the Wheaten path”, in Midland, is a drive for you….great sweets. Baynes in Freeland carries some “Third Coast” items, delicious! I also order from them, they are in Traverse City. 

You  have to keep a food diary! Even if you have been eating the same brands, keep checking labels.

Cosmetics, toothpaste both caught me! Even lip-balms. Pinterest has a lot of gluten-free tips and menus. There are apps that help you find eating establishments in your area.

lastly, hang in there….soon it won’t feel like a burden!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.