Help!

[junell]

I've been gluten free for 5 years, as well as being intolerant to gluten, my list of intolerances is growing.. from dairy, eggs, soya, yeast, to mushroom, garlic, onion, spinach and quite a few in-between, basically my diet is gluten-free cornflakes, rice, banana, almond milk and fish anything else causes bloating, severe abdominal pain, mucousy diarrhoea, lethargy, muscle and joint pain, kidney pain, headaches, and mouth ulcers. I've been told it's IBS, I think it's more than that... I've been sent to a gastroenterologist who tested for coeliac, if course it came back negative because, as I told him, I haven't eaten gluten for 5 years, he's asked me to eat gluten for 4 weeks and redo the blood test, so I've tried small amounts of crispbread for 3 days and am in agony, I can't do this for 4 weeks and then however long it'll take to recover. Has anyone got any suggestions, and is multiple food intolerances a common side effect of coeliac? I'm struggling! And struggling to be taken seriously 😒 

[trents]

Yes, the development of additional food intolerances is a common spinoff of celiac disease.

To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.

[Scott Adams]

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

[junell]

Thankyou so much for your replies. I have been gluten, dairy, egg and soya free for 5 years, and am mainly symptom free following an extremely strict diet but still symptoms flare up again and I have to do an elimination test to determine the cause.. basically my intolerances are still developing and I've found I can't eat: apples, grapes, raisins and other dried fruit, spinach, potato, tomato, onion, cabbage, leek, broccoli, mushroom, oily food, coconut oil, pork, sulphites, alcohol, spirit vinegar... I have difficulty breaking foods down, especially the skins of fruit and veg. I have been trying to reintroduce gluten in order to have a reliable ttg blood test, but I'm in so much pain.. abdominal spasms, joint and muscle pain, bloating etc etc, this is all from having half a wheat crispbread. I'm not sure if this is celiac or something else as there seems to be no sign of it getting any better. 

[Wheatwacked]

Are you supplementing any vitamins?  Recently added medications?

the ones that helped me the most noticibly was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine, B6 speeds up gastric motility, gastric motility, which is the movement of food through the stomach, is primarily achieved through peristalsis. Moving food faster helps bloating.

10,000 IU vitamin D

500 mg Thiamine or more

Choline  brain fog, fat digestion.  Since the recommended reduction in red meat and eggs, experts estimate that only 10% of the population eats the minimum RDA., 500 mg.  Choline is a large percentage of bile.  Many Celiacs are first diagnosed as Gall Bladder surgery candidates.  It works for a while, fut the the symptoms come back.

Iodine – 600 to 1200 mcg of Liquid Iodine

Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply. 

500 mg Pantothenic Acid vitamin B5

Low fat yogurt.  My favorite brand is Stonyfield.  Pasture fed means an omega 6:3 ratio of 1:1.  Comercial dairies feed grains and have omega 6:3 ratio  of 5:1.  Omega 3 is healing, omega 6 is inflammatory.

No fat yogurts, including greek style has various gums added to replicate the fatty mouth feel, and these gums like guar gum can have several side effects, especially if low vitamin B6 causes poor gastric emptying.

Quote

 

Digestive issues

Bloating and Gas: Guar gum's high fiber content can cause increased gas production and bloating, particularly in higher doses.

 

Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation.

The American diet is fortified.  Gluten free foods are not.

 

[knitty kitty]

@junell,

Can you get a DNA test to look for genes for Celiac Disease?  

Have you had your thyroid checked?

Have you been checked for nutritional deficiencies?  Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies.  

Talk to your doctor and dietician about supplementing with essential vitamins and minerals.