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Frequent nausea after gluten-free diet

petitojou
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petitojou Newbie
petitojou
Posted

Hi! I’m so happy to have found this site. It’s been three months since I was diagnosed as Celiac and also three months since I started my gluten-free diet. 
 

September was my first month without heavy symptoms like diarrhea and extreme fatigue. But I still get frequently nauseous after eating, especially things with corn starch and the most common used flours without gluten. But even when I eat clean and fruit based, I still have nausea and deep ugly heartburns. Does anyone else feel like that? I have great difficulty in making proper and good meals due to that, since I end up reacting to anything, leading also to gastric reflux. 
 

My blood tests were okay and both my doctor and nutritionist recommend digestives enzymes- but both gave me nausea. Unfortunately at home, even with all the care I have, I’m still exposed to possible gluten contamination. Could that also be the cause? I’m still waiting to get a endoscopy done to see how everything it’s fairing, but it’s both mentally and physically exhausting since I expected to be feeling a lot better and eating better.
 

Detail: I did not have frequent nausea while gluten intoxicated! I had severe heartburn and reflux, but no nausea. 
 

Thank you so much already for anyone who reads it! ❤️

English is not my main language, so pls understand in case of any present errors! Being able to communicate with fellow tummy warriors is my joy. Blessed healing for us. 

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trents Grand Master
trents
Posted

Welcome to the forum, @petitojou!

You say, "Unfortunately at home, even with all the care I have, I’m still exposed to possible gluten contamination." Are you living with family who are still consuming wheat products? Are you living with your parents? Are you "at home" every day or only occasionally? Is this cross contamination you speak of from shared cooking surfaces and utensils or are wheat/barley/rye (the gluten grains) intentional ingredients in the food you share with family members? Could you elaborate please?

petitojou Newbie
petitojou
Posted
  • Author
13 minutes ago, trents said:

Welcome to the forum, @petitojou!

You say, "Unfortunately at home, even with all the care I have, I’m still exposed to possible gluten contamination." Are you living with family who are still consuming wheat products? Are you living with your parents? Are you "at home" every day or only occasionally? Is this cross contamination you speak of from shared cooking surfaces and utensils or are wheat/barley/rye (the gluten grains) intentional ingredients in the food you share with family members? Could you elaborate please?

Hi! Thank you :) 

Of course! I still live with my family; there used to be six of us, and now there are four. I rarely leave the house or eat out. Although my mother has also been diagnosed with celiac disease, she does not follow the same precautions as I do. I use separate kitchen utensils (different spatulas, pans, dish towels, plates, toaster - almost everything since I’m highly sensitive), and my food is kept separate in the kitchen. The other two people who live with us consume gluten daily, but unfortunately they are not careful. Although we frequently clean the kitchen surfaces and other utensils (such as the microwave, towels, and tables), because they consume gluten constantly, there are always gluten crumbs everywhere! And more complicated contaminations have happened before. I try to eat separately in my room to avoid it as much as possible, but even on days when I am sure there has been no contamination, I feel nauseous (sometimes I feel like just the smell is enough for it). Does the food inside the fridge should also be separated and in its own shelf? I think that might be the problem too. 

I really wanted to leave my home to live a more peaceful and less stressful life in terms of cross-contamination, since the people around me are not careful, but given my current circumstances, it is impossible… so I’ve been trying to deal with it calmly? 

trents Grand Master
trents
Posted

Let me suggest some possibilities for your nausea/heart burn besides gluten cross contamination that are common in the celiac community:

1. You may have other food intolerances. This is exceedingly common in the celiac community. The two most common food offenders are oats and dairy products. Eggs, corn and soy are also on that list. But it can be almost anything. You might start with eliminating oats and dairy for a few weeks and see if there is improvemen.t

2. You may have MCAS (Mast Cell Activation Syndrome)-histamine intolerance: you should research this.

3. You may have SIBO (Small Intestine Bacterial Overgrowth)

4. You may have an H. Pylori infection or a Candida yeast infection

Unfortunately, celiac disease often brings along its friends. Often it generates other health issues by the time we ever get it diagnosed such that going gluten-free is not the only answer to the problem. We can be over simplistic and naive about it in this since.

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      Hi! Thank you so much! This was truly helpful. Most doctors I went to were absolutely uninformed and unprepared to treat a celiac patient. I will check for all the things you shared and focus on healing first! Really really thank you! Have a blessed day. 
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