Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Info.....

Lollie

By Lollie
in Coping with Celiac Disease

Recommended Posts

Lollie Enthusiast
Lollie
Posted

Hi all! I posted last week about getting glutened last week on Tuesday. Well I was up the last two nights sicker then I've been in quite some time. I really have no idea why. I always have had gastric problems, all of my life, ulcers, gastritus, IBS, ect..... When I went gluten-free it was a complete turn around in my health. No more meds, no acid reflux. But then just last week with the accidental gluten I really started to feel awful again. I was sick for about 2 days after, and had started to feel better. Then wham!!! It's back again, and even worse then before. And last night was really bad. I didn't get any sleep at all.

The only thing I can think of is CC from eating at Chili's, but I was really careful about what I ordered. I ate the same thing I have eaten there before with no trouble at all: hamburger pattie with cheese, no bun, and the seasonal veggies. That's all I ate yesterday, because by dinner time I was too sick to eat.

If anyone has any suggestions, or similar instances I would love to hear them. I am having a really hard time today.....I want to just eat some bread......but I know I would just feel even worse. I've been gluten-free for 4 months.

Thanks in advance!

Lollie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

I'm sorry you feel so awful, I hope you find relief soon.

My stomach has been screwed up lately too, as I'm writing this, my stomach feels like it's trying to eat itself again, and it's not making me real productive at work. My stomach has been messed up ever since a course of antibiotics. Have you taken any new meds or anything lately?

I've started taking probiotics to see if that'll help, maybe that'll help you? Maybe it'll help just to get some food into you, like plain rice or applesauce. It might help to calm things down.

Feel better :) Sorry I couldn't be more help

mouse Enthusiast
mouse
Posted

You might try cutting out all dairy until your stomach settles down. Sorry I could not be more help.

Lollie Enthusiast
Lollie
Posted
  • Author

Thanks ChelsE! I'm going to try something real plain in a minute, maybe applesauce or cottage cheese. Sorry to hear your feeling bad again. I was doing probiotics, then I just stopped, I just forgot about them. They did seem to be helping, though.

I did take some Pepcid AC. I didn't even look into it to see if it was gluten free. If that's it I'm going to scream...... :o

Will let you know.....

Lollie

You might try cutting out all dairy until your stomach settles down. Sorry I could not be more help.

I've been putting that off......I just didn't feel like I could cut out dairy on top of gluten. But if I can't figure out the culprit.....I guess I'll have to give it a try!

Lollie

Lollie Enthusiast
Lollie
Posted
  • Author

I just got off the phone with the company that makes my generic version on Pepcid and they said that the generic does contain gluten! <_< Regular brand does not.

Man! That means that the worse I've been feeling, the more med I took, the worse the gluten intake.....

Sometimes I think this is all ridiculous.....

And to top it all off, my mom called, she could tell I didn't feel well. I tried explaining it all to her, but she said I was just going overboard. That the small amount of gluten in a pill couldn't cause me to be sick like I am. She said that it was just my stress level, which I admit has been elevated lately. But I know the difference between stress feeling icky, compared to gluten feeling sick. I sometimes think my mom is just throwing salt in a wound. :(

Anyway- In case anyone has a store brand acid reducer.....call ahead and make sure its gluten free. Lesson of the day: Always call and check!

Lollie

jerseyangel Proficient
jerseyangel
Posted

Oh Laura--Sorry your conversation with your mother got you down. We know just how possible it is to be sick from "just the amount in a pill". Actually, even less will do it too :D . Good thing you called and checked--now you will start to feel better for real!

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

wow! sorry to hear that you are feeling so bad. I hope you feel better soon. Thank you for the info on the store brands of acid reducer. I have Pepcid in the closet and I have taken it for heartburn.. and usually it helps. I am glad to hear that I havent been glutening myself. I do hope you feel better soon!

Tinkerbell

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
Posted
  • Author

I am feeling better. I think sometimes just knowing what did it makes it better. I bought some name brand pepcid today.....so I 'll be prepared next time.

As far as mom, well, I know better then to try and talk to her about this. She trys sometimes, and to a certain point, then she just decides enough. I'm just glad I can come here and tell you guys about it and ya'll understand! It really does mean alot to me!

I'll stop now, getting teary eyed, (I'll blame it on the gluten :D ).

LOL

Lollie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748
    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.