Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Info.....


Lollie

Recommended Posts

Lollie Enthusiast

Hi all! I posted last week about getting glutened last week on Tuesday. Well I was up the last two nights sicker then I've been in quite some time. I really have no idea why. I always have had gastric problems, all of my life, ulcers, gastritus, IBS, ect..... When I went gluten-free it was a complete turn around in my health. No more meds, no acid reflux. But then just last week with the accidental gluten I really started to feel awful again. I was sick for about 2 days after, and had started to feel better. Then wham!!! It's back again, and even worse then before. And last night was really bad. I didn't get any sleep at all.

The only thing I can think of is CC from eating at Chili's, but I was really careful about what I ordered. I ate the same thing I have eaten there before with no trouble at all: hamburger pattie with cheese, no bun, and the seasonal veggies. That's all I ate yesterday, because by dinner time I was too sick to eat.

If anyone has any suggestions, or similar instances I would love to hear them. I am having a really hard time today.....I want to just eat some bread......but I know I would just feel even worse. I've been gluten-free for 4 months.

Thanks in advance!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

I'm sorry you feel so awful, I hope you find relief soon.

My stomach has been screwed up lately too, as I'm writing this, my stomach feels like it's trying to eat itself again, and it's not making me real productive at work. My stomach has been messed up ever since a course of antibiotics. Have you taken any new meds or anything lately?

I've started taking probiotics to see if that'll help, maybe that'll help you? Maybe it'll help just to get some food into you, like plain rice or applesauce. It might help to calm things down.

Feel better :) Sorry I couldn't be more help

mouse Enthusiast

You might try cutting out all dairy until your stomach settles down. Sorry I could not be more help.

Lollie Enthusiast

Thanks ChelsE! I'm going to try something real plain in a minute, maybe applesauce or cottage cheese. Sorry to hear your feeling bad again. I was doing probiotics, then I just stopped, I just forgot about them. They did seem to be helping, though.

I did take some Pepcid AC. I didn't even look into it to see if it was gluten free. If that's it I'm going to scream...... :o

Will let you know.....

Lollie

You might try cutting out all dairy until your stomach settles down. Sorry I could not be more help.

I've been putting that off......I just didn't feel like I could cut out dairy on top of gluten. But if I can't figure out the culprit.....I guess I'll have to give it a try!

Lollie

Lollie Enthusiast

I just got off the phone with the company that makes my generic version on Pepcid and they said that the generic does contain gluten! <_< Regular brand does not.

Man! That means that the worse I've been feeling, the more med I took, the worse the gluten intake.....

Sometimes I think this is all ridiculous.....

And to top it all off, my mom called, she could tell I didn't feel well. I tried explaining it all to her, but she said I was just going overboard. That the small amount of gluten in a pill couldn't cause me to be sick like I am. She said that it was just my stress level, which I admit has been elevated lately. But I know the difference between stress feeling icky, compared to gluten feeling sick. I sometimes think my mom is just throwing salt in a wound. :(

Anyway- In case anyone has a store brand acid reducer.....call ahead and make sure its gluten free. Lesson of the day: Always call and check!

Lollie

jerseyangel Proficient

Oh Laura--Sorry your conversation with your mother got you down. We know just how possible it is to be sick from "just the amount in a pill". Actually, even less will do it too :D . Good thing you called and checked--now you will start to feel better for real!

TinkerbellSwt Collaborator

wow! sorry to hear that you are feeling so bad. I hope you feel better soon. Thank you for the info on the store brands of acid reducer. I have Pepcid in the closet and I have taken it for heartburn.. and usually it helps. I am glad to hear that I havent been glutening myself. I do hope you feel better soon!

Tinkerbell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

I am feeling better. I think sometimes just knowing what did it makes it better. I bought some name brand pepcid today.....so I 'll be prepared next time.

As far as mom, well, I know better then to try and talk to her about this. She trys sometimes, and to a certain point, then she just decides enough. I'm just glad I can come here and tell you guys about it and ya'll understand! It really does mean alot to me!

I'll stop now, getting teary eyed, (I'll blame it on the gluten :D ).

LOL

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.