Intussuseption Of Small Bowel

[Sis]

just recently diagnosed with celiac disease. Also suffering from bouts of intussueption of small bowel that my dr. says is seconday to the celiac disease. In pain all of the time seems like and with no help in sight. Does anyone else out there suffer from this who can offer some words of advice?

PS. New to this message board stuff

Sis

[StrongerToday]

Welcome - glad you're here! You'll learn a lot from this great group, be prepared to spend lots of time at the computer reading up on posts.

Sorry to hear you're in pain, and I'm afraid I don't know anything about it... but I'm glad you joined the group.

[trents]

What is "intussueption"?

[Sis]

It's when the intestine actually telescopes into itself. My Dr. says that it is pretty rare in adults but that there was so much damage to my small intestine from the Celiac Disease that it has caused the intussuception. I've done some research on it and most of what I've read say that usually the most common treatment is small bowel resectioning. I am going back to my GI Dr. Thursday.

Sis

[jerseyangel]

Sis--That sounds terrible. Good luck with everything

[trents]

It's when the intestine actually telescopes into itself. My Dr. says that it is pretty rare in adults but that there was so much damage to my small intestine from the Celiac Disease that it has caused the intussuception. I've done some research on it and most of what I've read say that usually the most common treatment is small bowel resectioning. I am going back to my GI Dr. Thursday.

Sis

I think you should consider giving your body a chance to heal from a gluten-free diet before you have someone taking out sections of your bowel. Experts say it can take up to two years for the small intestine to completely heal after going gluten-free. With removal of part of your small intestine you are introducing an automatic nutrient absorption handicap. Plus with bowel surgeries adhesions often come back to bite you down the road, requiring more surgeries. Of course, this is all easy for me to say. I'm not living with your pain.

[let-the -sun-in]

hi sis

i too have the same problem and it was picked up twice on a ct scan but since i went gluten free i just had another ct scan done and it was clear so i would give the gluten free a chance before you try surgury ,