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Not Better In 3 Months

evie

By evie
in Coping with Celiac Disease

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evie Rookie
evie
Posted

I have been diagnosed by camera in intestines to be celiac but biopsy shows not celiac Have in testinal damage, have been on gluten free diet for 3 months with little improvement. Need help to cope/ shakiness, weakness, sore joints, belly aches and diahrrea!! Am so glad many of you have come past this stage and hopefully waiting for that day to come, I am sure it will. Keep up the good work for yourselves and others.

Love to all, evie

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jknnej Collaborator
jknnej
Posted

Hi Evie,

Keep up the good work. You can do this! We all did and although it is hard you will look back on these first few months later and be so proud of yourself.

And, you will feel so much better!!! We're here for you...

Felidae Enthusiast
Felidae
Posted

It could take several more months for you to feel better. You may also have to think about removing certain foods while you are healing, such as dairy and/or soy. It will get better.

Guest mvaught
Guest mvaught
Posted

evie,

chin up - you'll get better in time. it took me a few months to feel okay after going gluten-free. I was bloated and C for quite a while (which I have discovered it the after-reaction to getting accidentally glutened...forst D and all of the other symptoms - fatigue, joint pain, headace, etc. then bloating and C for about a week or two). So don't get discouraged....I know it can be frustrating to still feel bad when you are doing everything right - but you'll make it through. Yes, and as the others said - watch out for other allergies/intolereces like dairy, etc. Just when I thought I had it all figured out, i discovered that dairy is bad bad - at least for now (some people find it bad for a while and then are okay with it later). So, just hang in there, you'll see inporvements in things you didn't even know were a problem - my skin, hair and nails are all of the sudden so much better than they were before (my hair use to fall out in clumps and my nails were very brittle)...I use to think that it was just normal for me, but apparently it was just the celiac me. Just stick with the gluten-free...it can be hard sometimes to watch other eating pizza and the like (especially when you are not feeling better yet) - but every second of temptation and annoyance it worth it!! You will get better.

cheers,

Michelle

schuyler Apprentice
schuyler
Posted
I have been diagnosed by camera in intestines to be celiac but biopsy shows not celiac Have in testinal damage, have been on gluten free diet for 3 months with little improvement. Need help to cope/ shakiness, weakness, sore joints, belly aches and diahrrea!! Am so glad many of you have come past this stage and hopefully waiting for that day to come, I am sure it will. Keep up the good work for yourselves and others.

Love to all, evie

I'm in a similar situation. I was diagnosed 3.5 months ago and I am feeling no better than before. I actually got so sick on Sat from a really small glutening that I spent the day in the er because I was so dehydrated, shaky, and I kept passing out. All that I know is that we just need to hang in there and stick with the diet. I heard that aloe vera juice is supposed to help soothe belly aches. I'm not sure if it's true or not, but I'm going to buy some tomorrow and try it (it's worth a shot). For the diahrrea, the doctor at the hospital gave me a perscription for an anti-diahrreal med that he said he has given to other celiacs and has helped them. Well, when my mom went to get the meds, she noticed that it had wheat in it! So, there goes that! I hope that the other celiacs that he has given the meds to look at the ingredients. It's sad that a doctor who supposedly knows a lot about celiac, is giving celiacs a medication that has wheat in it. I was really looking forward to finally having some relief from D, but I guess I'll have to keep searching for something. I'll let you know if I find anything that helps with any of the symptoms. Good luck and hang in there.

Danielle

Guest nini
Guest nini
Posted

I didn't really start to feel better until about six months into the diet... also, I had to give up dairy for a while too, in the beginning because your villi are flattened they cannot absorb lactose, therefore most celiacs are lactose intolerant UNTIL the damage begins to heal. My GI reccommended staying off dairy as well as gluten for at least 6 months.

Also, at this stage you are still learning the diet, there is probably still some hidden gluten in your diet or in your personal care products, yes even shampoos and lotions matter... anything you touch with your hands has an opportunity to make it in your mouth without you noticing it... (touch hair with hands then eat something... it only takes a molecule of gluten...) anyway... also any of the gluten-free specialty products are even harder to digest inititially. It's better to stick with a diet of foods that are naturally gluten-free. Fresh fruits and veggies, clean meats and other proteins, simple grains like rice and quinoa...

hang in there!

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