Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Long Island, Ny [?]

Eugene

By Eugene
in Doctors

Recommended Posts

Eugene Newbie
Eugene
Posted

Hi,

My Dad has celliac. Was diagnosed more than 20 years ago.

I just did a blood test and it came back with the following POSITIVE results:

GLIADIN ANTIBODIES IGG - 92.1 H

GLIADIN ANTIBODIES IGA - 64.9 H

So I guess I need to see a specialist. How do I find the specialist in my area (Nassau county, NY)?

Can you by any chance recommend one?

TIA, Eugene

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

I don't know anyone to recommend, but welcome to the boards! I'm from L.I. originally... In southern Ca. now... How's the weather? ;)

Eugene Newbie
Eugene
Posted
  • Author
If he's already diagnosed, what kind of "specialist" are you looking for?

Julia's Husband

Thank you very much for the reply.

I'm not looking for a doctor for my Dad. He's gluten-free for ages and that seems to work for him. I mentioned him only to underline that I do have a family history.

My own blood test came up positive. So I need to see someone about biopsy and/or any other further testing.

I'm not sure if any reputable gastroentrologist can handle the next step or do I need "celiac specialist". That was the reason for my original post.

Eugene

penguin Community Regular
penguin
Posted

You could find a gastro that's associated with Winthrop Hospital, since it's a teaching hospital, you might have better luck finding someone that's up to speed with Celiac. The program is reputible, since they're associated with SUNY Stonybrook.

Long Island Jewish has some good doctors there as well. I'm always wary of private hospitals, though.

Eugene Newbie
Eugene
Posted
  • Author

If I go to an average gastro-enterologist for biopsy and then, if necessary, show the results to Columbia gurus, would it be much worse than going to Columbia right away?

In other words, where are expertise and experience really important: in performing the procedure or interpreting the results? Or is it truly both?

Another question. Do I understand correctly that biopsy is the logical next step after the initial positive blood test? Or do I need to do a more comprehensive blood test first?

TIA, Eugene

penguin Community Regular
penguin
Posted
In other words, where are expertise and experience really important: in performing the procedure or interpreting the results? Or is it truly both?

Another question. Do I understand correctly that biopsy is the logical next step after the initial positive blood test? Or do I need to do a more comprehensive blood test first?

If you have positive bloodwork, you have Celiac disease, plain and simple. All an endoscopy would do would be to see the extent of the damage, and to have a baseline I suppose in case they want to check your progress later.

My dr told me not to do the endoscopy when seeing if the diet worked would yield the same diagnosis. Just my dr. though, she's all for minimally invasive.

If you do go to a gastro for an endo, both procedure and interpretation are important. Several samples need to be taken for a biopsy, and someone who knows what they are looking at need to see the results.

Eugene Newbie
Eugene
Posted
  • Author
If you have positive bloodwork, you have Celiac disease, plain and simple.

I had two positive tests: both for GLIADIN (numbers are in my original message), however, ENDOMYSIAL test result was "<1:10".

Have I jumped the gun? Should've I considered the overall result inconclusive?

What do you think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

Eugene, to be quite truthful with you, usually unless you go to the doctor's experienced in Celiacs, then usually you educate the doctor. Dr. Peter Green is an excellant doctor, at Columbia University. And, for the most part, the best education you will receive about what to do, what works, what doesn't, what's safe, what isnt---can all be found in the celiac forums. Living this disease is the best way to overcome it--talking with others who deal with it on a daily basis too. This forum is a good source, Braintalk Communiteis is an excellant source for celiac web links Open Original Shared Link . I live in Suffolk County in the Islip area and so far, the doctors I have found are very willing to learn, but really don't have any kind of a handle on this. One doctor I have seen told me that his son has celiacs, that he can't have barley--I realized in one sentence that this man had no idea what he was talking about. Good luck, Deb

  • 2 weeks later...
de caps Contributor
de caps
Posted

Hi.

I go to a great GI doctor in Massapequa. Her name is Corina Serer.

She is very knowledgeable about celiac disease. (516)796-9000

Good luck,

Donna

jkmunchkin Rising Star
jkmunchkin
Posted

I think you're best off coming into the city and going to Dr. Green or Dr. Susie Lee at Columbia. I'm sure you can find a good doctor on LI, but you are so close to the city it's silly not to go to the experts.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,114
    • Most Online (within 30 mins)
      7,748
    Brysfrys
    Newest Member
    Brysfrys
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Zuma888
      Gluten challenge and Hashimoto's Thyroiditis

      By Zuma888 · Posted

      Hello, I was diagnosed with Hashimoto's thyroiditis about 3 years ago. At that time I quit gluten and it really helped my symptoms. I hadn't known that I should've tested for celiac before doing so.  Up till recently, gluten would cause my symptoms to flare up, although I never noticed anything with cross contamination, so I wasn't strict about that. But recently, I noticed I could get away with more gluten, and so I decided to do a gluten challenge to see if I had celiac and if I had to be strict. Note that my thyroid antibodies had been decreasing steadily up to this point. My anti-TPO had reached 50 IU/ml from 250 IU/ml (reference range 0-5.6) when I had first been diagnosed. After just a week of the gluten challenge, I measured my thyroid antibodies and they were at 799 IU/ml! I felt fine, but a few days after I started to feel the symptoms. Extreme brain fog, insomnia, diarheaa, fatigue, sleepiness yet cannot sleep, stomachache after eating gluten, nausea, swollen throat (probably due to my thyroid), burping, and gas. I cannot function properly. I'm also worried that I'm killing my thyroid. Should I just quit the challenge? It's been almost two weeks, but the first week I wasn't tracking well, so that's why I didn't want to count it. I can't eat gluten anyway because of my thyroid, but I wanted the diagnosis to know if I should be strict about cross contamination or not.  
    • Zuma888
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By Zuma888 · Posted

      You really saved me as I was on day 4 of 3 g per day for 6 weeks. Thank you very much!
    • trents
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By trents · Posted

      Two weeks is the minimum according to the guideline. I would go for four weeks if you can endure it, just to make sure.
    • Zuma888
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By Zuma888 · Posted

      Thank you so much! So I can do 10 g worth of gluten in the form of gluten powder per day for two weeks and that should be enough?
    • trents
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By trents · Posted

      It applies to both blood tests and biopsies. Guidelines for the gluten challenge have been revised for the very issue your question raises. It was felt by medical professionals that the longer term but less intense consumption of gluten approach was not proving to be reliable for testing purposes and was resulting in too many false negatives. But do keep in mind that the gluten consumption doesn't have to be in the form of bread slices. It can come in any form: pasta, cake, wraps, etc. Another approach would be to buy gluten powder at a health food store and mix it in a shake. The idea is to get at least 10g of gluten daily, whatever form it comes in.
×
×
  • Create New...