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Newbie

steveindenver

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steveindenver Contributor
steveindenver
Posted

Just want to officially say hi to everyone and let them know this message board has been a huge help for me. I received my blood work results almost a week ago, and am awaiting my biopsy results, but the doc said for the most part, "You've got Celiac". So, I will trying to bring awareness to this disease among family and friends. I know my mom will not understand, and will be worried. Typical Jewish mom! :-) I am just looking forward to my first day of not having the trots and having a solid BM again.

I've found a support group but the next meeting is on June 1 (so over a month from now!). So until then, this board is my support.

Thanks everyone

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lonewolf Collaborator
lonewolf
Posted

Welcome! Hope we can be of help to you!

Rusla Enthusiast
Rusla
Posted

Welcome to the group. I have been unable to make it to any of my support meetings because of when they are held. I am sure glad I have this place for support.

jerseyangel Proficient
jerseyangel
Posted

Hi Steve--I just wanted to welcome you in! :) You have come to the right place! Feel free to ask any questions that might come up along the way--and that goes for your mom, too :D If you need any help going gluten-free, just let us know.

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the group. It's a tough transition at first, but like all new skills, once you get the hang of it, it'll be easier. You've found a wonderful, supportive, informative, helpful bunch of people who'll have lots of information and support for you - and will welcome any information and support you have as well! :-)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hi and welcome! I am still kind of new at this myself. I just wanted to let you know from my own experiences that this is a place full of wonderful people with some great advice. Any questions you might have you can ask here and someone somewhere will have somesort of answer. Its amazing! The support you receive here is golden. Again, welcome to our group!

DingoGirl Enthusiast
DingoGirl
Posted

Hi Steve - - this is a great place for questions and answers, really nice people. I am new also and pleased to report that my bowels "shaped up" nicely and pretty quickly on the gluten-free diet. Welcome!

Susan

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TCA Contributor
TCA
Posted

Welcome! Let us know what we can do to help!

steveindenver Contributor
steveindenver
Posted
  • Author

Thanks, everyone. It's nice to have this kind of support. I can't imagine doing this without the Internet. I got a little scared today, since I am moving into the "unknown zone" but then I calmed down and realized, there is no reason to be scared. This is a healthy change, one I am in control of with my diet, so no reason to be scared.

Guest nini
Guest nini
Posted

welcome to this board! you will find all kinds of useful information here and lots of joking around and tons of emotional support! ask any questions you may have and we will do our best to answer!

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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