Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Still Falling Out!

DingoGirl

By DingoGirl
in Coping with Celiac Disease

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

Hi all - - I've been gluten-free for nearly three months and my hair is STIll falling out significantly. Am wondering if any of you saw diminishment of this and how long it took. I'm quite concerned. BTW I am 44, so changes will naturally occur, but no signs of menopause yet. I'm no longer anemic, as far as I know....

Help! :o

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Susan--Gosh. I understand your concern. I had hair loss to the point where I had patches that were thin enough to see my scalp. For me, I began to stop losing after 3-4 months on the gluten-free diet and vitamins. At that point, I had my hair cut so the spots would blend in better. :( It's been 10 months now, and my hair has grown back in pretty well. It's not as thick all over as it once was, but at least there are no more thin areas. Are you feeling better overall at this point? Also, do you take any vitamins--a multi is a good idea. Hopefully, your hair will respond to the positive changes you have made soon. :)

Matilda Enthusiast
Matilda
Posted

..

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Good news, girls, thanks for replying. Patti, I do take a multi (Centrum), B supplement, and iron. Got blood results back, my iron is now NORMAL for the first time in years!! So, I can only hope the hair loss will end soon......'twould be one less thing to deal with! :)

Thanks!

Susan

sspitzer5 Apprentice
sspitzer5
Posted
Hi all - - I've been gluten-free for nearly three months and my hair is STIll falling out significantly. Am wondering if any of you saw diminishment of this and how long it took. I'm quite concerned. BTW I am 44, so changes will naturally occur, but no signs of menopause yet. I'm no longer anemic, as far as I know....

Help! :o

Susan

Hi Susan,

I'd get your thyroid checked. Low thyroid can cause hair loss and is very common with Celiac.

S

breadlover Newbie
breadlover
Posted

Hi everyone! My hair fell out when I was first diagnosed too. CHECK YOUR SHAMPOO!!! My doctor is very very smart and said to check the ingrediants of my shampoo and conditionor sure enough, Wheat gluten, hydrogolized wheat protion, wheat oil whatever you name it there were like five wheat ingrediants and if your a sensitive celiac is can externally effect you!! I stopped that shampoo got some gluten free stuff from whole foods and now my hair is back thick and gorgous. Good luck!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

AAAaaaagh!! didn't think of that....I've actually been using Nioxxin shampoo, expensive stuff to keep from LOSING hair - didn't even check ingredients! :ph34r:

did get my thyroid checked two weeks ago and everything looks okay, S, thank you for that as that had occurred to me as well.

One day, this will all make sense.......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aaascr Apprentice
aaascr
Posted

It took 6-7 months for my hair to stop

falling out - I also took biotin to help

the new growth.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

DingoGirl -- STOP SOY!

SOY is poison. It is what caused me my thyroid problem and will cause hair loss.

Have your thyroid checked and remove SOY from your diet. Really give it a try you'll get better. I am not kidding I promise!

I just noticed your last post. What were your thyroid blood levels, if you don't mind me asking??? Because everyones body is different. What is normal for you, might not be normal from me. I went to my doc a few weeks ago. I was bouncing off the walls in the hyper thyroid mode. The doc said "You are in the NORMAL range" it was a few number away from being a huge problem. I knew by listening to my body I was getting too much meduication in my system. She said "...your okay!" I wasn't -- I went to another doc and he changed my medication and I feel so much better.

And P.S. my hair stopped falling out. For me SOY and thyroid hyper or hypo causes hair loss for me.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Ms. Sillyak - - I have been concerned about soy, so hardly eating any at this point, but that just started. I think you were the one that posted some info earlier on soy and I had been following that...who knew!!!

And you know what, I think my doctor is kind of sick of me, so I may switch to another - not really liking her too much any more. :angry: She just brushed off my thyroid question and said, everything's fine. My "physical" yesterday, with pap smear? A whole THREE MINUTES. Anyway she wouldn't show me the thyroid numbers. So, I'll get a copy of my bloodwork and consult the experts!

Thanks for that information, hoping to be feeling better soon and stop the hair loss - - -

Susan

Rusla Enthusiast
Rusla
Posted

I agree on having your thyroid check. Make sure they check antibodies and have an ultrasound too. That is because the TSH can read normal when your thyroid isn't. I would lose handfuls due to anemia, thyroid and this. Now I don't lose so much hair but then, I have just eliminated over a foot of hair.

flagbabyds Collaborator
flagbabyds
Posted

For sure check your shampoo/conditioner because that can cause major problems. When I was diagnosed (as a baby) lost all my hair and took at least a year to have it kind of grow back, still took like 2-3 years to have normal hair again, but that was me being a baby.

breadlover Newbie
breadlover
Posted

Dinogirl always get your blood test results and start keeping a file! I have a celiac file and I bust that thing out all the time. Good job on switching doctors if they dont want to listen to our problems and help find someone who does. They dont know whats it like being celiac. Good luck! P.S i went thru the whole tyroid thing. My tests were elavated thyroid levels and then they re-tested and they were fine my bodys crazy i guess who knows.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748
    sleuth
    Newest Member
    sleuth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.