Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confusedks Enthusiast
confusedks
Posted

Carla,

What appt. is on Tuesday...LLMD?

Everyone,

Well I went to a party tonight and I guess I overdid it....I'll be in bed all day tomorrow...I can already tell. But I have a really sore throat and it feels almost like strep so my mom said if it's still bad tomorrow, we will call the Dr. I also had a low grade fever (99.0) earlier which is REALLY bad because it indicates infection with the PICC line.

I forgot to tell my mom but I took it again and it's now normal again. Well, good night everyone!

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted
hi everyone...am reading along but not typing much as I am staying in bed due to my back problems. Apparently the Chinese massage was a little too hard...LOL. It is better this afternoon but I couldn't hardly get around this morning.

Hope your back doesn't keep you down long.

I assume you are back at home and endured the bus ride.

Well I went to a party tonight and I guess I overdid it....I'll be in bed all day tomorrow...I can already tell. But I have a really sore throat and it feels almost like strep so my mom said if it's still bad tomorrow, we will call the Dr. I also had a low grade fever (99.0) earlier which is REALLY bad because it indicates infection with the PICC line.

I forgot to tell my mom but I took it again and it's now normal again. Well, good night everyone!

I hope you don't have strep and also that your PICC line isn't getting infected.

mftnchn Explorer
mftnchn
Posted

Yes, I'm home until the end of the month. Yay!

Nyxie63 Apprentice
Nyxie63
Posted

Well, I got the ultrasound report back. Been mulling it over since yesterday. Turns out there aren't any gallstones and everything else looks ok (except that they didn't review the kidneys on the u/s report. grrrrr). Only problem they found was a polyp in the gallbladder. Its not big enough for them to think its anything worrying. Problem is, gallbladder polyps aren't supposed to cause symptoms. Hrm.

So I'll be calling the doc tomorrow to see what he has to say about it. From the research I've been doing on this, the next step should be a Hida scan, along with some blood tests. If he doesn't suggest these or anything else, then its time to look for a new doc.... again. I've been seeing this guy for 2 years now and he's never once palpated my abdomen. Not that I really want him to do that, but I thought it was standard diagnostic procedure. Then again, I've kind of had my doubts about him from the start. What GI has never heard the term "bazooka barf" before????? <_<:lol:

Found that there's a celiac-knowledgeable GI over in Paoli, which is about 45 minutes from me. If he's more on the ball about that, then he might be more on the ball about other issues as well.

I decided to blow off the other blood testing last week (aldosterone, electrolytes, LH, FSH) because I found out my new holistic MD only allows a 1/2 hour for appts, rather than the hour I had with my old doc. I want to talk to her about the thyroid and gallbladder things and don't want to get sidetracked on issues that are somewhat less urgent to deal with. Time's going to be at a premium as it is, considering we have a lot of catching up to do. I'm seeing her this Friday. Should be interesting.

So anyway, that's my life at the moment.

----------------

Sherry,

I'll bet it feels soooo good to be home. :)

Kassandra,

Hope you're not getting strep. That would seriously suck on top of everything else going on. Crossing fingers it's not a PICC line infection as well.

Carla,

LOL re: hubby's mortification! At least its working! :)

dlp252 Apprentice
dlp252
Posted
Donna...I'm supposed to be going to Xmas in the Park with my ex...I dont know what day yet. I can assure you it wont be the 19th though. :P That was our anniversary...if it werent for that I'd definately wanna go that night and see you sing!

OMGosh, lol!!! Shoot...the date was originally the 14th but they changed it at the last minute to the 19th! I just found out last night our group is singing all three songs we've rehearsed! That means now we have to scramble to get in a couple of more practices before the 19th. Well, maybe you can come next year...we have sung there every year for the last 6 or more years, but with the new choir director no one ever knows exactly what will happen.

Sorry to hear that the neck pain has gotten so much worse again. I do hope that part of it anyway is due to the stress you've been under lately.

Yeah, I'm sure it has a lot to do with it. Stupid stress! :angry::lol:

The IV is gonna take 2 hours though!! I think I better bring my music and some good magazines. Unfortunately, they dont allow cell phone use in the IV room. :(

I think I can get away with texting though. ;)

:lol: Yeah, don't want that new phone to go to waste. :P

I guess you caught that huh. :ph34r:

Many of us probably caught that, lol.

Oh, hubby saw something that looked like rice today

Yeah, I'm still seeing that too...yesterday saw something else weird, lol. We just won't tell your DH you posted about it, lol.

I always am at Church early, then I don't pay attention to everyone coming in. Well, last week my braces weren't affecting my playing too much, so I took the solo ... usually I let the piano player do it alone because of my braces. Anyway, afterward I looked around ... there was standing room only in the Church ... it seats 1500 :o . Good thing I didn't look around before I played. :lol:

Yeah, that definitely would have freaked me out, lol. Fortunately I don't think I'll ever have to worry about solos again...the new choir director seems to pick the same people to do solos, and he can't remember my name, so I'm sure I'm safe. :P

Anyway, I emailed the nurse I bought the laser from to ask about the sleeping ... ever since I got it, I've slept with only half an Ambien. She said she's had similar results from others. She also said that there's a link on her website to Energy Essences which have a lot of natural sleep aides.

Hum, interesting. I'm thinking half my problem is work. :lol: I slept well again last night, and I really shouldn't have. I had a diet coke for lunch (I know, I know, lol), then I decided to stay last night and watch the whole program (I've been leaving right after I sing), so I didn't get home until much later...that usually throws off my sleep in some way, but I fell right to sleep and even though I woke up at 12:00, 3:00 and 4:00, I went back to sleep each time.

So two things are different about the last two nights. No work the next day is one, the second thing is that I've been having a different snack before bed. Last night and the night before, I've been having a nutrition bar with a protein/fat. It's called Think Green!, and Friday night I had it with a few cashews, and last night with a little macadamia nut butter. I was reading some info someone posted on the "low blood sugar during the night" thread that suggested a complex carb before bed. One of my HN doctors suggested snacking right before bed for the blood sugar issue, but I didn't find that it helped, but maybe because my snacks were mostly protein. So, I'll try the same snack tonight and see what happens...tomorrow is a work day, lol.

hi everyone...am reading along but not typing much as I am staying in bed due to my back problems. Apparently the Chinese massage was a little too hard...LOL. It is better this afternoon but I couldn't hardly get around this morning.

Egads, hope the back is better soon!

Well I went to a party tonight and I guess I overdid it....I'll be in bed all day tomorrow...I can already tell. But I have a really sore throat and it feels almost like strep so my mom said if it's still bad tomorrow, we will call the Dr. I also had a low grade fever (99.0) earlier which is REALLY bad because it indicates infection with the PICC line.

Glad the temp is back to normal...how are you feeling today?

Yes, I'm home until the end of the month. Yay!

Yay!

CarlaB Enthusiast
CarlaB
Posted
hi everyone...am reading along but not typing much as I am staying in bed due to my back problems. Apparently the Chinese massage was a little too hard...LOL. It is better this afternoon but I couldn't hardly get around this morning.

Looking forward to everyone's updates.

I hope you feel better soon.

Carla,

What appt. is on Tuesday...LLMD?

Yes, phone consultation with the PA.

I hope your fever is still down today.

AndreaB Contributor
AndreaB
Posted
I decided to blow off the other blood testing last week (aldosterone, electrolytes, LH, FSH) because I found out my new holistic MD only allows a 1/2 hour for appts, rather than the hour I had with my old doc. I want to talk to her about the thyroid and gallbladder things and don't want to get sidetracked on issues that are somewhat less urgent to deal with. Time's going to be at a premium as it is, considering we have a lot of catching up to do. I'm seeing her this Friday. Should be interesting.

Hope the new MD works out for you. I'll be waiting for updates when you have them.

Hum, interesting. I'm thinking half my problem is work. :lol: I slept well again last night, and I really shouldn't have. I had a diet coke for lunch (I know, I know, lol), then I decided to stay last night and watch the whole program (I've been leaving right after I sing), so I didn't get home until much later...that usually throws off my sleep in some way, but I fell right to sleep and even though I woke up at 12:00, 3:00 and 4:00, I went back to sleep each time.

So, I'll try the same snack tonight and see what happens...tomorrow is a work day, lol.

I'll be waiting for updates on this. I hope it works.

Another thing with work......do you wake up thinking you may have missed the alarm, forgot to set it...whatever. That could disturb your sleep too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Donna,

I'm feeling okay...not great, but not terrible. I think the party was just too much stimulation for me...lol!! What does EGADS mean?? I totally have no clue! :rolleyes:

It's really interesting because I have been eating mostly raw foods, and yesterday I had Tinkyada pasta with some home made pesto and then I brought mini Namaste Carrot Cake to the party and I am SO bloated! It's crazy. I still get bloated on the raw foods, but not as much as the food I ate yesterday.

The reason I thought of that is because the think green bars reminded me of my raw foods...lol.

Carla,

So it sounds like we'll be having lots of updates this week...yay!

Before I went to bed my temp was 96.7 and then just now it was 97.8, so I guess no fever for me...lol! But it does that, a huge fluctuation throughout the day...it's very strange.

Andrea,

I sure hope I don't have strep either....ugh. Just what I would need on top of everything else.

Sherry,

I am glad you are home now, but I am sorry your back is being problematic.

Kassandra

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Oh, hubby saw something that looked like rice today ... he's been on Humaworm for a couple weeks now. He'd be mortified that I just posted that on the web, LOL.

Poor Adam. :lol:

Do you get Scott F.'s newsletters?? His latest one mentions Humaworm.

Sheeesh...I'm like the *only* person NOT doing Humaworm! :lol:

I'll be seeing him next Saturday...I'll have to ask about it when we get to the parasites. I'll ask him if he's "seen" anything. :lol:

Look forward to your update. :)

Well I went to a party tonight and I guess I overdid it....I'll be in bed all day tomorrow...I can already tell. But I have a really sore throat and it feels almost like strep so my mom said if it's still bad tomorrow, we will call the Dr. I also had a low grade fever (99.0) earlier which is REALLY bad because it indicates infection with the PICC line.

Kassandra,

I hope you dont have to deal with an infection with the PICC line on top of everything else.

Yes, I'm home until the end of the month. Yay!

YAY!! Enjoy your time at home...I hope your back feels better soon. :)

Found that there's a celiac-knowledgeable GI over in Paoli, which is about 45 minutes from me. If he's more on the ball about that, then he might be more on the ball about other issues as well.

I'll keep my fingers crossed.....hopefully this GI will have some answers for you.

:lol: Yeah, don't want that new phone to go to waste. :P

NEVER! :lol:

I may be pretty good at following the advice of my Dr.'s....but never when it comes to the cell phone usage. Its like stuck to my head. :P

My boss said I could text her during my IV....I wont let my phone go to waste. ;)

I guess if I dont have problems with the IV I'll be getting them every 2 weeks...a few days after my DMPS treatments. Good thing I changed my plan to include more text messaging!

What does EGADS mean?? I totally have no clue! :rolleyes:

Kassandra...you're not the only one! :lol:

I'm clueless about alot of things. :rolleyes:

Donna's been typing "EGADS" since the beginning of this thread...and I have no idea what shes trying to say. :unsure:

I always think of Charlie Brown for some reason. :lol:

Andrea....I've been meaning to ask for an update from Charlie. Have you heard anything?? I think awhile back you were sending out pm's about his sisters progress. I'd love to hear how things are going.

I think my pm box is full but you can email me. :)

Also...I will probably call you sometime today. :)

CarlaB Enthusiast
CarlaB
Posted

Yes, I did see Humaworm in Scott's newsletter. You are probably the ONLY person in the WHOLE world not using it ... if you asked around at work, everyone there probably uses it, too. :lol:

I thought EGADS was like, yikes!

dlp252 Apprentice
dlp252
Posted
Another thing with work......do you wake up thinking you may have missed the alarm, forgot to set it...whatever. That could disturb your sleep too.

Well, no, I double and triple check the alarm before I go to bed, lol. BUT, I do think about the fact that I DON'T have much time left before I have to get up when I wake up after midnight. That alone could probably do it, lol.

I'm feeling okay...not great, but not terrible. I think the party was just too much stimulation for me...lol!! What does EGADS mean?? I totally have no clue! :rolleyes:

Donna's been typing "EGADS" since the beginning of this thread...and I have no idea what shes trying to say. :unsure:

It's another word for "Holy Cow", lol. I didn't know exactly what it meant either, but it's most often used as an expression of surprise, lol. Kind of like shock and awe rolled into one. :P

Nyxie63 Apprentice
Nyxie63
Posted
It's another word for "Holy Cow", lol. I didn't know exactly what it meant either, but it's most often used as an expression of surprise, lol. Kind of like shock and awe rolled into one. :P

I figured it was kinda like Great Oogly Moogly! LOL!

Btw, hubby uses Egads! too. :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Yes, I did see Humaworm in Scott's newsletter. You are probably the ONLY person in the WHOLE world not using it ... if you asked around at work, everyone there probably uses it, too. :lol:

:lol::lol:

Yeah...and that means I'm the ONLY person in the WHOLE world who's NOT staring in the toilet after bm's looking for "rice" and other foreign objects. :lol:

ShadowSwallow Newbie
ShadowSwallow
Posted

Rachel,

I'm not doing Humaworm yet. :lol: Going to do an endoscopy first (Friday). :P I hope your mineral IVs go well!

Kassandra,

Those temperature fluctuations are odd. Possibly it could have something to do with your adrenals? :blink: Yay for the LLMD appointment! Any news about the insurance yet? :angry:

Everyone,

Well, I'm sick. :rolleyes: Apparently contradancing was more than a bit too much for me last night (and my ankles/knees/calves/thighs started swelling halfway through, possibly aggravating toxins from the detox?).

Also, I have my results back from Entrolab, and they're rather interesting. Apparently I'm one of the 3% of Celiacs who don't have the "celiac gene" only the gluten sensitivity genes. :lol:

Fecal Antigliadin IgA 50 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 27 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 23 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 22 Units (Normal Range <10 Units)

HLA-DQ 3,1 (Subtype 9,6)

CarlaB Enthusiast
CarlaB
Posted

Hi Birdy, your Enterolab results are very similar to mine. :) My celiac blood tests were negative though. I'm curious whether I still would have antibodies with Enterolab's test since I've been eating "normal" for a couple months now ... but not curious enough to pay for the test, LOL.

What's contradancing?

Any kind of exercise made me herx in the beginning, but you need to do it! Dr. B has seen people get better from Lyme on exercise and no drugs! I've gone into remission myself from it .... I go even if I can't do much.

We recently found the best Mexican restaurant around here! It's funny because we're usually the only Americans in it .... that's saying a lot when you live in Ohio! LOL They even have Mexican Coke! We went there with the kids for lunch today ... I had enchiladas mole ... yum! And flan :ph34r: and a Coke :ph34r: .

My FIL was with us and commented on how good the refried beans were, and how they didn't spread all over the plate ... when he was finished, I told him that's because real Mexican refried beans have lard! Yum! I always buy the kind with lard at the grocery, too. Who wants refrieds with no fat? LOL

ShadowSwallow Newbie
ShadowSwallow
Posted

Contradancing is like square dancing, but without the funny costumes, and in lines (like they do in the Jane Austen movies). It's amazing fun, I do it once a month with a bunch of friends, but this is the first time I've had a reaction like that. Oh, Open Original Shared Link a better explanation of contra. :D It takes a lot of energy, though, and I'm going to be wiped out for the next week. Worth it, though! ;)

I've been thinking I need to start on something like chlorella because it seems like a lot of toxins are being stirred up, but not as many are being carried out.

:lol: I've been looking into lard to use for baking, there's this one brand that's supposed to be good... (non-hydrogenated).

confusedks Enthusiast
confusedks
Posted

Carla,

Ew...lard!!!! That's gross! LOL!!! I do love Mexican food, and we get a lot of really good mexican food here...being in LA, it's great! Actually when I moved to New Zealand, my dad and I couldn't wait to get back to LA for some REAL Mexican food!

Actually, I went out for Mexican Food last night and they marinate ALL of their chicken, meat, etc. in SOY SAUCE!!! I was SO annoyed, so I ended up getting just a salad....lol.

Birdy,

I have no idea about the temp changes....strange. It's just like the rest of my body...lol!

I'm not doing humaworm either...lol! And, no news on the insurance front. <_<

Rachel,

I still am convinced if I ever decide to do the humaworm, I WON'T be looking for rice in my bm's...LOL!! :lol:

Donna,

I googled it and it was really hard to find anything out....it said it's kinda like another way of saying "omg". I was glad to know I wasn't the only one who didn't know what it meant...lol!

Everyone,

Well, I woke up at about 9.30 and then ate something and then got back in bed and just woke up again...it's 3 here. LOL! I think my hemoglobin must be dropping as we speak...lol!

Kassandra

CarlaB Enthusiast
CarlaB
Posted

Kassandra, lard makes things taste good. :) McDonald's fries were so much better when I was a kid because they were cooked in lard/animal fat! The best refried beans have lard ... you just never knew it, LOL.

LA does have good Mexican food ... we used to not get it this far north, but we have a pretty good size hispanic population now, so there are some authentic places. Twenty years ago ChiChi's and Taco Bell were as Mexican as you got! I gained 10 pounds in 9 weeks in Mexico! :o:lol: I didn't think I'd ever have that food again!

An interesting observation I have made at this restaurant ... almost all the hispanic people in there, except for those who work there, are men. I wonder if it's just the men who come this far north looking for work. It would be interesting to know why that is ... out of the two times I've been there, almost all the hispanic customers are men.

Birdy, let me know how it goes for baking. My great aunt was known for her chocolate chip cookies ... and she used lard.

The dancing sounds fun! I wonder if chlorella would help you with it ..... drink lots of water, and use lemon ... that always helped me with herxing.

CarlaB Enthusiast
CarlaB
Posted

You guys should go to Lame Advertisement ... medical questions ... then look for SForsgrens' post -- terrain or germs. It's a 51 minute video ... it's fascinating.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
You guys should go to Lame Advertisement ... medical questions ... then look for SForsgrens' post -- terrain or germs. It's a 51 minute video ... it's fascinating.

I cant watch it since I'm on dial-up at home. :(

Gotta wait till tomorrow.

I checked out the thread....Scott's got more doctors than anyone I know!! :lol:

He sees everyone that I see...plus so many more! If only I had more $$. :P

dlp252 Apprentice
dlp252
Posted
I figured it was kinda like Great Oogly Moogly! LOL!

Btw, hubby uses Egads! too. :lol:

Aw, great googly moogly reminds me of Cecile who used to post regularly on this thread, lol. I think I got Egads from Monte Python, lol.

:lol::lol:

Yeah...and that means I'm the ONLY person in the WHOLE world who's NOT staring in the toilet after bm's looking for "rice" and other foreign objects. :lol:

:lol: :lol: Odd how this has just become part of my daily routine in the last year or so. :P

Well, I woke up at about 9.30 and then ate something and then got back in bed and just woke up again...it's 3 here. LOL! I think my hemoglobin must be dropping as we speak...lol!

No, no, no, it must not happen!

I checked out the thread....Scott's got more doctors than anyone I know!! :lol:

He sees everyone that I see...plus so many more! If only I had more $$. :P

Yeah, ain't that the truth, lol. I'm seeing a lot of them, but I'm way behind him, and slightly behind you. :P My next addition I would like to be the LED doctor...I'll be contacting you at some point for that, lol.

CarlaB Enthusiast
CarlaB
Posted
I cant watch it since I'm on dial-up at home. :(

Gotta wait till tomorrow.

I checked out the thread....Scott's got more doctors than anyone I know!! :lol:

He sees everyone that I see...plus so many more! If only I had more $$. :P

You can learn about a lot of it on the website Scott posted. For $350 you can send the doctor your blood smear and he'll give you advice. The whole thing is fascinating.

Yeah, you've got to draw the line somewhere .... that's why I haven't started LED ... that's the only thing I have available here that you guys are doing ... HBOT is available, too.

mftnchn Explorer
mftnchn
Posted

Hey Rachel, I'm not using Humaworm yet either, not until the end of the month. I don't like looking :ph34r: , but I figure I need to know if I pass obvious parasites because my doctor needs to know to give me the best care.

Ridgewalker Contributor
Ridgewalker
Posted

Quick update on my mom...

She's been taking that swish-and-swallow probiotic (Magic Mouth) for over a week now, and has seen only a tiny bit of improvement. On top of that, she's developed a female type yeast infection. She also realized that her nausea worsened in conjunction with the burning mouth and throat symptoms.

I told her it sounds to me like she's got a total-body systemic candida overload, and she reluctantly agrees. She already had acidopholus in the fridge, so she's going to use that up first. I'm going to hunt down some caprylic acid for her. She's still doing the Magic Mouth stuff, too.

She's started the candida diet, and HATES it already. :( I don't blame her. I wish she didn't have to do that, especially starting it at the holidays. She's always been such a healthy person in the past, I hope that she's able to beat this down relatively quickly!

BTW... When I was a kid, one of my friends got a tape worm. After the horror stories that went around the neighborhood, I've been an obsessive poop-checker ever since! :P

confusedks Enthusiast
confusedks
Posted

I just got the best Hannukah gifts ever!!!! OMG!! I got a gel eye mask to help with sinus pain, headaches, etc. AND one of those bed pillow things that have little arms. It's great to sit in bed and use my laptop now in bed!!! YAY!!!

Sarah,

I understand the anti candida diet sucks! There are some good recipes online though if she gets bored of chicken stir fry...lol!

Kassandra

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.