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Rachel--24

Omg...i Might Be On To Something

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I agree that if we are really ill that detoxing must be done carefully. I've read that cilantro oil is used to pull mercury from the body but that it is important to take chlorella with that so that the chlorella takes the mercury out of your body and it is not reabsorbed through a leaky gut. I'm seeking professional help with this, I've become very wary of health food store remedies and my own ability to figure it out.

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Thank you for the caution on detox. I have looked into it but don't want to do it now with the baby for one. I believe my doctor would be helping me with it once I'm ready, but I don't think he will if I don't have my amalgams removed. As I've mentioned before, even after I get the other 4 crowns done (or pull two of those), then I'll still have 2 left. He's already suggested supplements to take of which I'm not taking alot. I've heard plusses and minuses on higher doses of supplements.

Andrea, if you get your amalgams removed, it's very important to do a proper detox so the mercury that is released is eliminated. The just eating naturally, light exercise, and lots of rest works for other things, but amalgam removal is serious. I felt like I had the flu for a coupld days after each removal.

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It's amazing what mold can do. I am 99% positive that that was the problem in our evil vortex apartment. It can do crazy things to you....a lot of people think it's BS because mold is everywhere. Could you have any exposure at work? I was just reading an article that sid that Erin Brockovich bought a house after her settlement and it was brand new and turned out to be infested with toxic mold.

Bev, in your case I always suspected mold....as soon as you started saying stuff about your apartment...mold or contaminated water popped into my head. There was another poster (not around anymore)...she kept thinking she was getting glutened really bad...but only in her own home....I thought the same thing for her situation....mold. We are extremely vulnerable when our immune sysyem is already under stress.

The reason I never suspected mold as a possibility for me is because of the fact that I feel the same wherever I go. There was no noticeable improvement when I traveled to different areas. I also think I would pick up on it right away.....the same way I pick up on other things that affect me. I can tell fairly quickly if I get in an environment where something isnt good for me. When I was at my friends "moldy" house I ended up crying the whole time I was there. I told him I was never coming back...he had just moved in and I helped him set up his stuff....I spent the night and never went back there again. He ended up moving shortly after....because of the mold.

The doc said to most definately stay out of any area that might be moldy....it would be very bad for me right now. I know hes right about that.....I already learned from my experience at the moldy house.

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Rachel,

Wow--after all this time! I think your doctor sounds very sensible, in that he's not jumping right in with the antibiotics--the big guns, so to speak. I like the fact that he is methodicly going after your various issues. In the long run, I feel this is the best approach.

I have a feeling that things are going to keep getting better and better for you :)

Thanks Patti....I hope so!! :)

Yesterday I was a little disappointed at first....I wanted a faster approach I guess. Now that I've thought about it more...I'm sooo glad about the way he's going about this and I think he's doing the right thing for me.

I barely know much at all about Lyme treatment....there are alot of different options/approaches. It seems like the people who are put on antibiotics either sufer tremendously the first 2-3 years of treatment or they just never get better from the antibiotics. I get the feeling antibiotics are only really effective in the beginning stages....not so much when the immune system is already severely taxed and the disease has become chronic.

I'm thinking the best way to go about this for me would be to concentrate on detox, getting rid of other stressors that could be contributing....like any unknown food sensitivities, just mainly taking the stuff that the doc says will help my body with all this. I think after I've detoxed some, took more stress off my immune syatem I can start some of the alternative methods used for treating Lyme....the salt/vit c or cats claw or whatever else.

After all this when my body is feeling much stronger and my immune system isnt so taxed and I'm not feeling so chemically sensitive....I think THEN....I would like to take antibiotics. I think maybe they would be MUCH more effective if my immune system was strong and fighting the Lyme. The big guns could be brought in last and hopefully at that point they would blast those Lymey suckers to death!! :D

I really have no idea what I'm talking about but it sounds good. :lol::lol:

Back to mold...I wonder if I react to rice because of mold?? :unsure:

Grains are supposssed to be really moldy so I've been contemplating this for awhile now. <_<

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Yea Rachel--I think that's a wise approach. Take care of the periphrial problems, and set the stage for the antibiotics to work on the target.

Not that I know what I'm talking about either--but at least we understand what we mean :blink::lol:

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Every time I've had a metal crown it always feels like the tooth is too big...the bite never feels right...feels okay in the office while they're testing it but as soon as it's cemented in and I get home it always feels "wrong".

Donna....thats exactly what was happening once I got those gold crowns. I'd actually never had a crown before....only the 4 amalgams I'd had since childhood. I never had any work at all since I was little. The crowns felt too big and my bite was off....The ones Dr Adams put in never gave me any trouble at all. I wonder if it had something to do with the metals in the crown. It was fine when they put them in but then I'd get home and a week or two later...they werent fitting right...I had to go back several times before I just had them taken out all together. The crown that seemed to have "gases" coming out from it was especially bad. It seemed like gases (or some other unseen force) was actually "pushing" the crown out of its spot. I swaer it was the most bizarre thing ever. :unsure:

I'm glad you're break-up went smoothly. B)

Not that I know what I'm talking about either--but at least we understand what we mean :blink::lol:

:lol::lol:

Yeah...as long as it sounds good to us...and we sorta understand it and

OMG....we might be on to something!! :lol::P

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Rachel,

Sounds good to me too.

Let's see what your doctor thinks. :)

:lol::lol:

Yeah...as long as it sounds good to us...and we sorta understand it and

OMG....we might be on to something!! :lol::P

:lol::lol:

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Regarding the electronic testing, did he give you a name? I did the bioscan, I'm not sure if this is what he is referring to?

Julie,

Nope he didnt specify or give a name. I'm thinking its the same thing though....sounds like it anyway. I'm gonna try to call the lady today and I'll make sure I ask. Sounds like it could be usefel....it seems like the Dr. wants to use the info. gained from it as a starting point as far as how to go about treating me.

He said all my reactions arent immunological (sp?)....which is why they dont ever show up in tests. Out of all the tests I've taken I'm fine with everything except banana and some spices (and those are very low). He said my reactions are very real but cant be measured in any type of testing. Its an issue of liver problems, cells not functioning properly....all metabolic type things....not immunological.

The Dr. asked alot of questions about the health of my family members. Part of it was wanting to know if anyone else was getting sick from maybe something in my environment...like mold. I think he also was wanting to see if there was something genetically linked. I got the feeling that was one of the reasons for all the questions....but everyone in my family is healthy...except me. :(

He said all these types of problems can be inherited in some cases but in the case of a person being healthy all their life and then suddenly get hit with something like this....it means something happened to that person. Soo...something had to have happened to me. I musta got bit by a tick. :angry:

He asked alot of questions about camping, areas I traveled to...did I get flu-like symptoms....see a bite...stuff of that nature. I did get strange flu-like symptoms in Sept 2000...it was right when I got back from Tahoe and it was totally bizarre....like nothing I'd ever experienced before...but it only lasted 1-2 days....then I was fine. I also saw a strange bite but cant remember if it happened in that same time-frame.

I started getting symptoms in late 2002...so nearly 2 years later. I asked him if it was possible to have Lyme for those 2 years w/out symptoms. He said it often happens that way. My immune system could have suppressed it since I was otherwise healthy but then I could have got hit with something else or alot of stress and as a result I started getting sick. I asked about the amalgam removal....could that have done it? He said yeah.....any type of stress could have done it. I did go camping the same time I got sick so maybe I got bit again??? Or maybe the mercury tipped the scales. <_<

All I know is that after that last camping trip...I did NOT get flu-like symptoms or a strange bite. That was all back in 2000.

Oh Julie,

I totally agree about the detoxing. I tried all that on the candida diet. Holy Cow....some of those things got me so much worse! Never again...I dont try to experiment with supplements or any of those other things anymore. They say "die-off" is a "good" thing but I'm not really into the whole "If I feel like crap I'm getting better theory". <_<

Maybe if the "die-off is brief....I think that would then be normal...but not if you constantly feel that way...I dont see how that can be good. :unsure: I think it means you're body cant handle whats being done to it and you should STOP or slow down. I learned the hard way. <_<

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Rachel,

I didn't realize you had gotten bit in 2000. I thought you're camping trip/crown amalgam incident in 2002 was the time in question. That would make perfect sense that the gold crowns, then the amalgam removal would tip the scale with the additional onslaught on the immune system.

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Not that I know what I'm talking about either--but at least we understand what we mean :blink::lol:

:lol::lol: Patti, this made me chuckle.

Rachel,

I will have to refresh my memory on the bioscan, it's been awhile for me, but I do feel it can be an excellent tool to help with the healing process. I am pretty certain it is detecting things at the cellular level, something regular testing doesn't pick up on.

I also test as fit as a fiddle in all the tests I have taken, nothing ever shows up yet I have been sick as a dog.

I like your doctors explanation of being metabolicly (is that a word, looks funny :lol: ) maybe it is metabolically sick.

I'm excited, I feel like we are going throught this right along with you. We are going to learn so much :D

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Julie,

You're so right about all of us learning together! I never (with the exception of iron levels) test positive for anything. Yet, I haven't felt really well in years. This is most interesting.

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You're so right about all of us learning together! I never (with the exception of iron levels) test positive for anything. Yet, I haven't felt really well in years. This is most interesting.

Me three! Not even iron was off in my case!

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Rachel,

I didn't realize you had gotten bit in 2000. I thought you're camping trip/crown amalgam incident in 2002 was the time in question. That would make perfect sense that the gold crowns, then the amalgam removal would tip the scale with the additional onslaught on the immune system.

Andrea, I cant say for certain when I got bitten. All I know is that I showed the bite to Michelle....she remembers it too. I'm pretty sure she was living in the house when I had shown her the bite so it wouldnt have been after the 2002 camping trip...it would have been before that. She remembers...the other day she said it was on my shoulder. Thats exactly where I remember seeing it...on my shoulder.

I dunno though....I cant recall if the bite was around the same time I got back from Tahoe and had the flu-like symptoms. If I could rememeber that one detail I would know for sure...but I cant.

The bite did have a little circle around it....I'm pretty sure it did which is why I thought it looked strange. Plus it stayed on my shoulder for a long time....maybe 2-3 weeks??? The circle was small though...maybe smaller than a dime or about that size. When I looked at pics of Lyme Disease bulls-eye rash it looked nothing like it. The pics I've seen online are all big.....very noticeable....this one was small and stayed the same size till it finally went away. Stupid ticks. :angry:

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I like your doctors explanation of being metabolicly (is that a word, looks funny :lol: ) maybe it is metabolically sick.

I dunno about the "metabolic" word....I was kinda guessing cuz I couldnt remember exactly how he said it. I may have spelled it wrong too. :lol:

I'm excited, I feel like we are going throught this right along with you. We are going to learn so much

Yeah....you guys are probably gonna learn WAY more than you ever wanted to know about Lyme and who knows what else... :P

I also test as fit as a fiddle in all the tests I have taken, nothing ever shows up yet I have been sick as a dog.

Last month the Dr. told me to bring in all my lab reports next visit. This time I had a huge stack with me....he was like "Wow....all that?" :blink:

I told him I had tons more tests done but they didnt send me the results for most of them....this was just a small portion of what was done. :lol:

Everything is perfectly normal on all the labs. The whole freakin stack. He couldnt believe how much testing I'd had done...I said "Yeah....and I didnt learn one thing from any of them!".

He said it was still valuable because it tells him that I dont have a physical illness....I dont have cancer or anything like that.

He said the problem with mercury, Lymes, mold and stuff like that is that they are extremely difficult to detect and diagnose since they dont cause abnormal labwork....they just cause alot of stuff that cant be determined so thats why Dr.'s believe its "all in our heads".

He said Lyme is intracellular so its messing with things that can cause alot of problems at the cellular level but nothing that would be seen on any bloodwork. I think he said "intracellular"...again...going on memory so it may not even be a word. :lol:

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Rachel,

I like learning. That way if anything ever looks suspicious with us or someone else I'll have suggestions on what to test for.

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I'm amazed too, I never would have thought when I joined this thread that you would be looking at Lyme or that I would either.

Rinne...I was thinking about this today at work.

I cant even believe it....I started this thread thinking I might be corn intolerant and then went through what seems like an endless amount of possibilities and diet restrictions....and now I have a probable cause...a REAL diagnosis! :o

I think it still hasnt really hit me because at work I would find myself thinking about what could be causing all this. I think its habitual now...I've been thinking about it almost non-stop for 4 years now so even if I have a diagnosis....I'm probably still gonna find myself wondering away at work....still trying to put all the pieces together. :lol:

Who knew it would come to this! :blink:

About the diets....I really cant eat any of that stuff....I could've eliminated stuff till there was nothing left but water...and the thing is I'd still be sick. The Dr. asked if I'd had aches and pains every day....I had to say YES....everyday for the last 4 years....not a single day w/out aches and pains....not a single day of feeling totally normal....and now it makes sense! :D

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The Dr. asked if I'd had aches and pains every day....I had to say YES....everyday for the last 4 years....not a single day w/out aches and pains....not a single day of feeling totally normal....and now it makes sense! :D

A big sigh of relief. Things will start on the uphill climb again. Better practice the belaying and whatnot. :P

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Rachel--When my husband was bit, the circle around the bite was the size of a dime. It's not always big. Also, he had flu-like symptoms and the other stuff I already told you about. The bite mark did last a while--I don't remember exactly how long, but more than a week.

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Judy, your mold story does not sound good. Have you been tested?

I know scares the heck out of me.

judy :ph34r:

HI all

gosh so much to catch up on.

Rachel so glad you have a good dr who was amazed at your size of test folder. :blink::o:huh::lol:

will keep tabs on you.

judy

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Rinne...I was thinking about this today at work.

I cant even believe it....I started this thread thinking I might be corn intolerant and then went through what seems like an endless amount of possibilities and diet restrictions....and now I have a probable cause...a REAL diagnosis! :o

I think it still hasnt really hit me because at work I would find myself thinking about what could be causing all this. I think its habitual now...I've been thinking about it almost non-stop for 4 years now so even if I have a diagnosis....I'm probably still gonna find myself wondering away at work....still trying to put all the pieces together. :lol:

Who knew it would come to this! :blink:

About the diets....I really cant eat any of that stuff....I could've eliminated stuff till there was nothing left but water...and the thing is I'd still be sick. The Dr. asked if I'd had aches and pains every day....I had to say YES....everyday for the last 4 years....not a single day w/out aches and pains....not a single day of feeling totally normal....and now it makes sense! :D

Rachel-

I haven't been posting lately but I have been following. I am so happy for you to ahve gotten to the bottom of things hopefully- you give me hope that one day I will get to the bottom of what is wrong with me. For now I'm still struggling to figure it out

Miamia

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The Dr. asked if I'd had aches and pains every day....I had to say YES....everyday for the last 4 years....not a single day w/out aches and pains....not a single day of feeling totally normal....and now it makes sense!

:( Me too, one way or another it has been years and these days if I get a moment or hour of a relatively pain free body I dance around the house. <_< It has become the norm.

I am at the point where I would be grateful for any kind of diagnosis that could lead to treatment, Lyme doesn't scare me anymore, and given my history I will be surprised not to receive a Lyme diagnosis, not knowing is making me feel crazy. :(

The Salt/Vitamin C treatment seems to be having an effect, this is too gross but I think there are parasites in my ****. :ph34r: My balance has improved also and my eyes don't seem quite as blurry although occasionally they still are.

Evie, I am glad to know that changing your pillow arrangement has helped the problem you were having with your neck.

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Rachel--When my husband was bit, the circle around the bite was the size of a dime. It's not always big. Also, he had flu-like symptoms and the other stuff I already told you about. The bite mark did last a while--I don't remember exactly how long, but more than a week.

:blink:

OMG Patti.....thats exactly what happened to me! That day I had the flu-like symptoms I also had a raging fever.....my roommate had to call the advice nurse at Kaiser...I couldnt even hold my head up. I couldnt even talk....I was totally listless. I took the next day off work and rested and after that I was fine. I've NEVER had symptoms like that before and I also never get fevers....it was just that one time.

I may have seen the bite around the same time....dang...I wish I would have payed more attention! :angry: Something must have been "not right" around the time I had the bite because I remember constantly looking at the bite.....wondering why it wasnt going away like a normal bite would. The odd appearance of the bite was really bothersome to me. I'm tomboy and am used to all sorts of bites, scratches, bruises and things of that nature...but I kept showing it to my roommate because its prescence was bothering me. I kept showing her that it wasnt gone yet...that the freakin thing was still there. I thought a weird spider had gotten to me. :( I can totally remember thinking "What the heck is going on with me...why is weird stuff happening?" I can recall thinking that so I know something else about me must have not felt right at that time or I wouldnt have been thinking that. Maybe I just had an overall yucky feeling at the same time as the bite but whatever happened it all faded away and then I was fine....great even. I felt great for exactly 2 years and then everything went to hell....FAST.

How frusterating....had either of us known about tick bites or what they look like...I could have been on top of this. Does it sound like this could've been the time of infection?? :unsure:

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Rachel-

I haven't been posting lately but I have been following. I am so happy for you to ahve gotten to the bottom of things hopefully- you give me hope that one day I will get to the bottom of what is wrong with me. For now I'm still struggling to figure it out

Miamia

Miamia....hang in there. Keep testing different things....one day you will get your answer. Just dont give up...many times I felt like it was useless....I wasnt getting anywhere and I'd cry...but then I'd wake up to a new day and just keep searching. I couldnt give up because I just know deep down that we dont get this way for no good reason...all of us were perfectly healthy at one time and we dont just fall apart w/out reason. Its hard to find the reason but its gotta be there....it doesnt make sense otherwise.

I knew whatever this was it was taking everything from me....sucking the life out of me....I would think about how my life was before this happened. I would focus on getting that back...every single time I thought of giving up I would think about all I'd lost and about how badly I wanted it back. The only way I could get my life back was if I found out why this happened...thats why I've been sitting in front of this computer...endlessly searching for the past 2 years. Who knows...maybe this isnt the end for me yet...hopefully it is but if not....its definately given me a whole lot of HOPE.

I really hope you can find something out soon too...just something to get you headed in the right direction. I'd been thinking about how you're doing since you hadnt posted lately....glad to see your post tonight. :)

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Hum, I have some Benefiber that my GI doctor wanted me to take...I wonder if that would work too...I think it's some kind of "gum" (can't remember if it's guar or xantham or some other type of gum)...I don't seem to have a problem with the gums so far as I can tell. Yep, increasingly I can't do popcorn either (actually it DOES make my dentist happy I DON'T eat popcorn, lol).

Not sure about that one. I think I took that a few years ago for cholesterol. :huh:

Just want to do some gentle, detoxes. Nothing DRAMATIC :D

Glad things are looking up Rachel :)

Miamia - you'll figure it out!

Judy- MOLD....I haven't seen that one. They have those detectors for that. B)

Hi Julium and Celia and Andrea and Patti and all...

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