Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Is Scheduled For April 25

Aquina1300

Recommended Posts

Aquina1300 Rookie
Aquina1300
Posted

Hello everyone :D

Part A lI left last Thursday to stay with my family over Easter. :D I came home Monday night. My dr's nurse had left several messages on my machine saying I had a biopsy scheduled for me the next day. <_< However, I had to go to work, so I canceled the biopsy and I rescheduled for April 25. The internist who does the biopsies only comes out to this area on Tuesdays. I live in a rural area in Minnesota in a town of about 500 people so most of the doctors are available one day a week.

I told my manager what the problem was so that she'd understand (I bake bread). Most people I work with have never heard about celiac. I am a little uncomfortable explaining to my manager and co-workers what the problem is. Maybe I am just being too weird, but I think they may think I'm nuts. :unsure:

Does anyone know if I could purchase some pamphletts or something that would explain to my manager and co-workers what celiac disease is?

I haven't told my family about this yet either. I'm not sure exactly how to tell them. :unsure:

I have a bowling banquet the night of the biopsy I'm the secretary of the ladies league. I am thinking of telling them I have an upset stomach and leaving early. :unsure:

Part B I plan to go gluten and lactose free after the biopsy. I am thinking that I should start with just veggies, fruits and tuna. Does this seem reasonable?

I don't know really what to eat and there aren't any natural or whole food stores around here. (The nearest one is in Minneapolis but that's too far away). I'm not sure what I should order off the internet by way of books and foods.

I'd really like to get your advice on what to do.

Thank you!

Aquina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


amybeth Enthusiast
amybeth
Posted

Good luck on the 25th!

As far as pamphlets go, I'm not sure - but there are many many on-line resources that you could share with people - or print from. It's hard to explain sometimes.

When I first went gluten-free I relied a lot on plain home-baked meats, fruits, and rice. Then I (slowly) started branching out.

Buying food online can add up costs quickly - but is also very convenient!!

Again, good luck.

Lisa Mentor
Lisa
Posted

Auuina:

First of all I as well as other welcome you to this site. You will learn so much here.

Let me see if I an can address your concerns:

First take one step at a time. Continue to eat gluten, breads, pasta, pizza and do it now because of it you diognoses those taste may not be available as you know it now.

Second, don't take two steps in front of the horse. Wait for you biopsy, and wait for the results.

Third, when all is done and you have some knowlege about what your difficulties are, then it will be time to adjust you diet, if your are diognosed with Celiac.

We will take you step by step as all here have been through this. With the gluten free diet, you have a few months of cramming information and then it all seems to level out as you learn and get the swing of things. It is really a non issue as you learn what is safe and what is not. In about six months, you will have it down.

Re schedule your appointment for the biopsy. It is a breeze and nothing to be scared about. Just remember to bring someone with your because you will not remember when the DR returns and tell you about the proceedure.

Best of luck and continue with your testing. Let us know.

Lisa

TCA Contributor
TCA
Posted

I'm sorry this is so stressful, for you, but most of us have been there, except for the bread baking part. Ugh! :blink: Not sure what to tell you there.....unless you could start baking gluten-free bread!!!! :)

I order online a lot since my daughter is ill and I can't leave the house much. These are some items I order:

From glutenfreemall.com I get Chebe pizza crusts, Enjoy Life Snickerdoodles, and Authentic Foods Flours and blueberry muffin mix. This is a good place to order a sampling of stuff. If you order 10 or more you get a 10% discount.

I love all the products I've tried from glutenfreegourmet.com. They have the BEST bread mix and Cake mix. I order by the case and it's much cheaper in the long run, but a lot up front. The yellow cake mix is really out of this wold, though. My gluten eating family love it too.

There are a lot of other places to try, but these are my favorite.

A good place to get a description of celiac disease is Open Original Shared Link

Your inital diet plan sounds reasonable, but you can add other meats safely, like Tyson chicken breasts, etc. If you're looking for more options, look around on this site. There is so much info.

I hope that helps. Good luck!

flagbabyds Collaborator
flagbabyds
Posted

I agree with everything that is said so far, take it one step at a time. Just go for the biopsy and see what the results are. Then if you are positive, then you can start easing your boss and co-workers into the idea of you probably not being able to work there anymore.

For the biopsy, it is a breeeze, not any problem. I have had 3 already, and didnt mind any of them. Just make sure you have someone there to drive you home after the procedure, because you will not be able to drive.

Good Luck!

Smitten Rookie
Smitten
Posted

I don't know if your closer to Rochester, but my mom gets a lot of stuff at a store there. If your interested, I can get the name of it. :o)

Thanks!

jenvan Collaborator
jenvan
Posted

Go here to view and print off the Chicago Celiac Disease Center's Fact Sheets--all about the disease, treatment, stats etc. They would be a good resource to share with your co-workers: Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

I agree with everything that's been said. The biopsy is a breeze -- NOTHING to it. You swallow some stuff to numb your throat, they give you a little happy juice, stick a brace between your teeth, then the tube, and it's over. Piece of cake.

I would highly suggest that you go to the site that JenVan recommended -- she has LOTS of knowledge about those kinds of things, and, to my knowledge, always knows the best ones to pull up.

Take a deep breath, take things one at a time, and it's going to be fine. Keep us posted on how things are going, and welcome to the forum . . . . . Lynne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.